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Reply | Forward Message #1308 of 1565 |
Re: [peoples with ostomy2] new bags

It seems my use of closed end pouches has caused quite a stir. For that I
apologize. Please allow me to clear this up.

This is not to condescend as there are others who read this list who are
unfamiliar with ostomies as some are in the pre-stages of surgery.
I have an ileostomy which, just like a colostomy, you have a stoma for
output. A person with an ILEOSTOMY has no colon at all (thus the name ILE -
the ileum portion of the SMALL intestine) where a person with a colostomy
(thus the name COL for the colon) still has some of their colon left.

People with an ileostomy must wear a flange (wafer, barrier) and a pouch as
the Ileo runs 24/7. Some people with a colostomy are able to irrigate and
thus don't have to have a pouch or flange.

I also have severe arthritis in my hands and am not always able to use them
sufficiently due to stiffness and pain to do the finer dexterity of movement
needed to remove a clip and clean a drainable pouch. So, my doctor wrote and
asked that my insurance company allow me to order sealed-end pouches for a
better quality of life. Thankfully, the insurance company deemed that a
'good reason' and covers the cost of my pouches.

Now some comments and questions of my own:

Debbie - Thank you for coming forward for me. That was very nice of you.

Jim - I'm sorry you have to go through that daily. I would think it would
cause more skin irritation to remove the flange daily. No doubt you have,
but I'll ask anyway. Have you tried other barriers? I was allergic to
Stomahesive barriers and had skin blisters all the time. When I switched to
Durahesive, my skin cleared up. Do you use eakin seals? That also helps my
skin.

JeansNTeegirl - I'm sorry this whole thing has upset you. I do have a
couple of questions. You stated with regard to myself,
"JeansNTeeGirl@... wrote: And you didn't read that she has an
ileostomy..she shouldn't need clips...
Should have a nozzle that folds or a slight twist and turn like a
faucet...."

I used drainable pouches with clips for the first 3+ years (I had my surgery
2/25/01) so I did need to use pouches with clips. What is the "nozzle that
folds or a slight twist and turn like a faucet?" I've never heard of that.

Also, you said, "JeansNTeeGirl@... wrote: ... I have a ileostomy and
a colostomy...and have since 1982....and"

I have an ileostomy because I can't have a colostomy since I have no colon.
How can you have both?

I hope things are better with all and appreciate any answers.

Thanks and have a great day!

Tina

----- Original Message -----
From: "debbie" <debcrd@...>
To: <peopleswithostomy2@yahoogroups.com>
Sent: Tuesday, December 05, 2006 3:55 PM
Subject: Re: [peoples with ostomy2] new bags


> Ok enough of this..all i stated is that ileo's have stoma's and use bags
> and that..I have been a nurse many yrs and every patient i have done with
> an ileo has a stoma,flange,bag if u are different more power to you..but
> what she is stating it sounds like her dr gave her a stoma and put a
> flange and bag over it..
>
> JeansNTeeGirl@... wrote: I give up trying to get across to
> you... I have a ileostomy and a
> colostomy...and have since 1982....and resent being condescended to... I
> am also a
> retired EMT and because I have not the patience to go any further with
> making my point.... If anyone has any further questions...please see
> Deb....
> Apparently she thinks she has all the answers...
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
> ---------------------------------
> Any questions? Get answers on any topic at Yahoo! Answers. Try it now.
>
> [Non-text portions of this message have been removed]
>
>
>
>
> Yahoo! Groups Links
>
>
>




Wed Dec 6, 2006 2:22 am

anangelseyes
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Forward
Message #1308 of 1565 |
Expand Messages Author Sort by Date

I got some samples from coloplast the one with the lock and roll and its working out good, so now I'm going to order them, Life's busy with 2 more weeks of...
~*!Min!*~
crazy_wheels83
Offline Send Email
Dec 4, 2006
3:10 am

Hi Min, I don't want to burst your bubble, but I tried the lock and roll from Convatec, and I too thought it was working good. Until, one AM I got up, and had...
Allen T. & Jacy H.
nursetatanka
Offline Send Email
Dec 4, 2006
4:36 pm

Hi Jacy, I can't use the other bags because they dig into my leg because I've got cerebral palsy and the clips left huge marks on in my inner thigh the lock...
~*!Min!*~
crazy_wheels83
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Dec 4, 2006
5:10 pm

What about trying the closed end pouch? I have an ileostomy and would normally use the drainable pouches, but since I have arthritis so bad in my hands,...
anangelseyes
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Dec 4, 2006
8:41 pm

I use the velcro ones and the clip 2 piece ones..so far never a problem but then i empty mine alot i have an ileo...wow throwing away your pouch each time u...
debbie
debcrd
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Dec 4, 2006
8:52 pm

My doctor had to intercede since it is unusual for some one with an ileo to used closed end. With the drainable, I wouldn't be able to work. They approved 240...
anangelseyes
Offline Send Email
Dec 5, 2006
12:39 am

I have to say something...lol I don't get that business of tossing a pouch each time you empty it... As was mentioned in a previous posting...how on earth...
JeansNTeeGirl@...
jeansnteegirl
Offline Send Email
Dec 5, 2006
1:26 pm

i use the coloplast 2 piece. i have to change both every day because of skin problems. so far ins. has covered all. Jim ... From: JeansNTeeGirl@... To:...
james gole
orca1927
Offline Send Email
Dec 5, 2006
5:37 pm

I can understand if you have to change the entire appliance.... I know insurance will cover that if there is good reason.... But just to toss a pouch ...
JeansNTeeGirl@...
jeansnteegirl
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Dec 5, 2006
6:02 pm

I think you missed she has severe arthritis so isn't able to do the clamps and velcro closing so it must be easier to do the "tupperware" seal of the bag to...
debbie
debcrd
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Dec 5, 2006
6:16 pm

I usually toss my pouches too, but only at work or when I'm out and about. I rarely, if ever, use open end pouches, so tossing the closed end pouch in public...
Amanda
manada698
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Dec 7, 2006
12:19 am

me too ... From: JeansNTeeGirl@... To: peopleswithostomy2@yahoogroups.com Sent: Tuesday, December 05, 2006 11:52 AM Subject: Re: [peoples with ostomy2] new...
james gole
orca1927
Offline Send Email
Dec 5, 2006
6:08 pm

And you didn't read that she has an ileostomy..she shouldn't need clips... Should have a nozzle that folds or a slight twist and turn like a faucet.... ...
JeansNTeeGirl@...
jeansnteegirl
Offline Send Email
Dec 5, 2006
6:39 pm

Yes I did read she had one i have an ileo too and i have a double stoma..and i wear a 2 piece if u have an ileo u have a stoma and need to use flanges and...
debbie
debcrd
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Dec 5, 2006
7:22 pm

I'm not sure what you mean by "I don't get that business..." My insurance DOES cover my medical supplies. Previously at 90%, but since I changed companies, now...
anangelseyes
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Dec 5, 2006
9:16 pm

I am in australia in queensland i pay $40 each year and get as many supplies as i need kezzie ... From: anangelseyes To: peopleswithostomy2@yahoogroups.com ...
Kerrie
kezzy47
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Dec 5, 2006
9:34 pm

I give up trying to get across to you... I have a ileostomy and a colostomy...and have since 1982....and resent being condescended to... I am also a ...
JeansNTeeGirl@...
jeansnteegirl
Offline Send Email
Dec 5, 2006
9:43 pm

Excuse me..You are the one that didn't understand...some of us with ileo's have stoma's and pouches.. JeansNTeeGirl@... wrote: I give up trying to...
debbie
debcrd
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Dec 5, 2006
9:51 pm

Ok enough of this..all i stated is that ileo's have stoma's and use bags and that..I have been a nurse many yrs and every patient i have done with an ileo has...
debbie
debcrd
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Dec 5, 2006
10:06 pm

It seems my use of closed end pouches has caused quite a stir. For that I apologize. Please allow me to clear this up. This is not to condescend as there are...
anangelseyes
Offline Send Email
Dec 6, 2006
2:27 am

Hi Have been following this thread with interest. A bag with a tap, to my knowledge is used for a urostomy, not an ileostomy. I have never heard of anyone with...
kajyann
Offline
Dec 6, 2006
12:52 pm

i have tried all of the skin protectors. i just have the skin that wont hold the wafer. the drs. at the univ. of chicago say they have not seen this before. i...
james gole
orca1927
Offline Send Email
Dec 6, 2006
4:45 am
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