It seems my use of closed end pouches has caused quite a stir. For that I
apologize. Please allow me to clear this up.
This is not to condescend as there are others who read this list who are
unfamiliar with ostomies as some are in the pre-stages of surgery.
I have an ileostomy which, just like a colostomy, you have a stoma for
output. A person with an ILEOSTOMY has no colon at all (thus the name ILE -
the ileum portion of the SMALL intestine) where a person with a colostomy
(thus the name COL for the colon) still has some of their colon left.
People with an ileostomy must wear a flange (wafer, barrier) and a pouch as
the Ileo runs 24/7. Some people with a colostomy are able to irrigate and
thus don't have to have a pouch or flange.
I also have severe arthritis in my hands and am not always able to use them
sufficiently due to stiffness and pain to do the finer dexterity of movement
needed to remove a clip and clean a drainable pouch. So, my doctor wrote and
asked that my insurance company allow me to order sealed-end pouches for a
better quality of life. Thankfully, the insurance company deemed that a
'good reason' and covers the cost of my pouches.
Now some comments and questions of my own:
Debbie - Thank you for coming forward for me. That was very nice of you.
Jim - I'm sorry you have to go through that daily. I would think it would
cause more skin irritation to remove the flange daily. No doubt you have,
but I'll ask anyway. Have you tried other barriers? I was allergic to
Stomahesive barriers and had skin blisters all the time. When I switched to
Durahesive, my skin cleared up. Do you use eakin seals? That also helps my
skin.
JeansNTeegirl - I'm sorry this whole thing has upset you. I do have a
couple of questions. You stated with regard to myself,
"JeansNTeeGirl@... wrote: And you didn't read that she has an
ileostomy..she shouldn't need clips...
Should have a nozzle that folds or a slight twist and turn like a
faucet...."
I used drainable pouches with clips for the first 3+ years (I had my surgery
2/25/01) so I did need to use pouches with clips. What is the "nozzle that
folds or a slight twist and turn like a faucet?" I've never heard of that.
Also, you said, "JeansNTeeGirl@... wrote: ... I have a ileostomy and
a colostomy...and have since 1982....and"
I have an ileostomy because I can't have a colostomy since I have no colon.
How can you have both?
I hope things are better with all and appreciate any answers.
Thanks and have a great day!
Tina
----- Original Message -----
From: "debbie" <debcrd@...>
To: <peopleswithostomy2@yahoogroups.com>
Sent: Tuesday, December 05, 2006 3:55 PM
Subject: Re: [peoples with ostomy2] new bags
> Ok enough of this..all i stated is that ileo's have stoma's and use bags
> and that..I have been a nurse many yrs and every patient i have done with
> an ileo has a stoma,flange,bag if u are different more power to you..but
> what she is stating it sounds like her dr gave her a stoma and put a
> flange and bag over it..
>
> JeansNTeeGirl@... wrote: I give up trying to get across to
> you... I have a ileostomy and a
> colostomy...and have since 1982....and resent being condescended to... I
> am also a
> retired EMT and because I have not the patience to go any further with
> making my point.... If anyone has any further questions...please see
> Deb....
> Apparently she thinks she has all the answers...
>
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