Pediatric Gastro Support Group (PGSG) is an online support group for parents of children with Gastroparesis (GP) - delayed stomach emptying. PGSG is for sharing experiences we encounter and for providing moral support for one another.
Why I started the group: my son basically stopped growing at 9 months. To find out why, we went to specialist after specialist. It was a long and grueling time trying to find out why he was in the negative percentile on the growth charts. The doctors thought I was worrying too much. But, I felt that I needed to keep urging for more tests. It’s a good thing I did because my son was finally diagnosed with GP. Hopefully, through meds we can improve his stomach output and get him to grow!
Anyway, I was told that gastroenterology is "totally different when you're talking about children". GP isn’t a very common issue with little ones and I couldn’t find support devoted specifically to parents of children with GP. So, I decided to start this group.
In our group, parents can share their frustrations and successes as they meet the challenges of dealing with GP. Raising a child with GP can be a tremendous challenge – a challenge that only other parents of children with GP can truly understand. If you have a little one with GP, please join us. We'd love to offer our support.