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pediatricgastrosupport · Pediatric Gastroparesis Support Group

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Activity within 7 days:

6 New Messages - New Questions

Description

Pediatric Gastro Support Group (PGSG) is an online support group for parents of children with Gastroparesis (GP) - delayed stomach emptying. PGSG is for sharing experiences we encounter and for providing moral support for one another.

Why I started the group: my son basically stopped growing at 9 months. To find out why, we went to specialist after specialist. It was a long and grueling time trying to find out why he was in the negative percentile on the growth charts. The doctors thought I was worrying too much. But, I felt that I needed to keep urging for more tests. It’s a good thing I did because my son was finally diagnosed with GP. Hopefully, through meds we can improve his stomach output and get him to grow!

Anyway, I was told that gastroenterology is "totally different when you're talking about children". GP isn’t a very common issue with little ones and I couldn’t find support devoted specifically to parents of children with GP. So, I decided to start this group.

In our group, parents can share their frustrations and successes as they meet the challenges of dealing with GP. Raising a child with GP can be a tremendous challenge – a challenge that only other parents of children with GP can truly understand. If you have a little one with GP, please join us. We'd love to offer our support.

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 29 19 26 20 6 16 34 14 57 7 6
2008 38 31 60 24 6 15 6 7 33 8 11 27
2007 48 49 30 19 49 41 30 30 17 47 29 16
2006 46 27 95 69 53 10 12 24 14 19 14 30
2005 96 79 107 157 146 111 108 56 64 45 110 29
2004 69 64 47 21 23 50 33 40 34 57 53 57
2003 78 53 194 162 97 40 85 74 171 156 66 51
2002 1 6
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