Hello Steph

Thanks for bringing this to our attention.

It does look like an interesting resource and it's important that Patient Voices
should be set in the wider context of what's going on in the NHS and elsewhere.

It's encouraging that people are now recognising the value of stories - we just
need them to see the additional value of our particular stories!!

Our experience of working with the Institute was that they expected the stories
to convey particular messages and were disappointed when they didn't get quite
the stories they wanted ... often a tricky balancing act for us, but possibly
reflects a tendency to gather only particular sorts of evidence, or only the
evidence that supports a particular hypothesis or only the evidence that is
important to the interviewer/researcher rather than the authentic evidence of
experience that many of the stories reveal in relation to what matters to
patients/carers/clinicians.

We'll see if we can order a copy anyway!

all good wishes

pip



--- In patientvoices@yahoogroups.com, "stephstanwick" <stephstanwick@...> wrote:
>
> I cam acros  this resource recently its a booklet produced ny the NHS
Institute for Innovation and Improvement - its quite a good learning resource
and I got it for my Consultant Prasctitioners Trainees. The reason for bringing
it to everyones attention is that it talks about capturing stories, identifying
emotions, (emotional mapping) finding touch points etc. At our weekend we
discussed the unique selling point  for the Patient Vopices stories but I think
this is well presented whtever you might think about the way it broadens stories
etc. and its a good context against which to understand the processes that are
in the NHS at the moment - worth thinking about too in view of our taking
further the  ideas and future for Patient Voices and positioning it in the wider
NHS
> anyone else seen this yet?
> Steph
>

Ah yes. Hawk hunter Brian. Well, he made a wonderful story, full of humour and
very honest about the effects of RA and the ways in which involvement helped to
lift Brian out of that slough of despond and give him more confidence. It was
certainly a pleasure to have him there with us, quietly getting on with stuff
while we attempted to deal with not six, not eight, but ten new storytellers ;-)

I think there will be some stories, when we've recovered enough to sort them
out!!

I hope everyone is well...

pip x


--- In patientvoices@yahoogroups.com, bskclark@... wrote:
>
> Hi Everybody
> ??????? Just spent a jolly three days creating a new story with a good bunch
of people ,Pip and? tony as well ,somebody said it must be like riding a bike?
you
> don,t forget,not true i kept falling off my bike. It was as usual a very good
time tiring as usual but at least i was able to help some off the victims sorry
i mean
> storytellers with putting together their stories it will be well
worth?watching their stories when they become public. Never fails to amaze me
what goes on in other
> peoples lives,still everyone survived intact ,Pip and Tony were well worn out
with ten stories to sort out they worked long hours ,imagine me holding a glass
> of beer? and lets all give three cheers to Granny to be Pip and Tony ,well
done again you?two and thanks for having me.
> Hope everybody is okay . I am going to lie down now i am well and truly
shattered.
>
????????????????????????????????????????????????????????????????????????????????\
? Brian (Hawk hunter)
>

I cam acros  this resource recently its a booklet produced ny the NHS Institute
for Innovation and Improvement - its quite a good learning resource and I got it
for my Consultant Prasctitioners Trainees. The reason for bringing it to
everyones attention is that it talks about capturing stories, identifying
emotions, (emotional mapping) finding touch points etc. At our weekend we
discussed the unique selling point  for the Patient Vopices stories but I think
this is well presented whtever you might think about the way it broadens stories
etc. and its a good context against which to understand the processes that are
in the NHS at the moment - worth thinking about too in view of our taking
further the  ideas and future for Patient Voices and positioning it in the wider
NHS
anyone else seen this yet?
Steph

Well, yes, it was an impressive room and so nice to have Pep (and Ian) there,
smiling reassuringly across the Board room table. And it is always nice for me
to see the smiling faces of the sisterhood....

It was a good day and I think some good stories will emerge around mental health
issues.

Another good day on Wednesday in Leeds, with able support from Jo and Brian, and
plenty of encouragement for potential storytellers to add their voices to the
Programme.

Thanks to all of you for support and good thoughts.


I hope you have all managed to enjoy some sunshine this weekend. We are
preparing to go up to Liverpool for a workshop and then to Carol's inaugural
lecture on thursday, via a learning disability nurses' day in Huddersfield - so
we are not slacking!

with love to all

pip



<peppylivingstone@...> wrote:
>
> Yesterday spent the day in a very impressive room at Sheffield Town Hall
watching Pip weave her magic on some newcomers to Digital Stories. Lovely to
watch and be part of. Very powerful to see the effect the stories had on people.
> Pip showed photos of story tellers-Brian, Jenny and Fiona were all up on the
big screen!!!!! I nearly burst with affection to see your faces.
> Beginning to really understand how much work Pip and Tony put in to the whole
Digital Story process. Again am wondering how we can share the load.
> All for now. Pep. xxxxx
>

Yesterday spent the day in a very impressive room at Sheffield Town Hall
watching Pip weave her magic on some newcomers to Digital Stories. Lovely to
watch and be part of. Very powerful to see the effect the stories had on people.
Pip showed photos of story tellers-Brian, Jenny and Fiona were all up on the big
screen!!!!! I nearly burst with affection to see your faces.
Beginning to really understand how much work Pip and Tony put in to the whole
Digital Story process. Again am wondering how we can share the load.
All for now. Pep. xxxxx

I believe the technical term is 'sisters' rather than members :-)
----- Original Message -----
From: "Tony Sumner" <tony@...>
To: <patientvoices@yahoogroups.com>
Sent: Monday, April 20, 2009 7:00 AM
Subject: [patientvoices] Monday morning 7am - and 10 new stories


Ten new stories ('Out of Africa', 'The first ten years are the worst', 'No
holding back', 'Inspiration from an unexpected quarter', 'In the face of a
child', 'Could you have anything better?', 'From sole to soul', 'The feet on
the sofa', 'Something out of the ordinary' and 'Angelic music') from members
of the Society of the Holy Child Jesus are released, taking the number of
stories on the website to over 200.
These stories tell of members' experiences of calling, vocation and life in
the order. They can be seen at:

http://www.patientvoices.org.uk/shcj.htm

Tony

It's taken some time but here I am!!!!!! Great to read all your stuff and the
photos were lovely- brought it all back. So hope to meet you all again some day.
Have survived the holidays and enjoyed the vibrancy that teenage lives bring
most of the time. However it is good to have space again. I am entering the
Summer Term with an optimistic heart.
Yesterday and today have been glorious. Vivid blue skies and the whole of nature
bursting forth!!!! I have tried to be Zen-like and keep in the moment!!! Yeh-who
am I kidding???!!!!!
Off to have lunch, read a book and have a little nap. How gorgeous is that !!!!
Much love from Pep.

--- In patientvoices@yahoogroups.com, "Pip Hardy" <pip@...> wrote:
>
> Way to go, as I believe they say... so glad you've had some time out Steph -
Lord of the rings at the Albert Hall sounds pretty cool.
>
> we've spent the day in the garden, which is the best therapy I know for
spending too much time in front of the computer.
>
> I'm really pleased you enjoyed the photos.
>
> love to all
>
> pip
>
> --- In patientvoices@yahoogroups.com, "stephstanwick" <stephstanwick@> wrote:
> >
> > I have just been in London with the family for a few days away and The Boy
whose best friend was a Hoover had his does of undergrounds amphibian vehicles
and buses and my Mike a dose of Lord of the Rings complete with full orchestra
at the Albert Hal. As for me - I stayed away from my emails and enjoyed good
weather and the family. But as punishment I have spent Saturday catching up -
but what a delight to see the retreat photos it made me smile and certainly
brightened the morning. It seems a long time ago now so I am keen to keep things
going and to make this work.
> >
> > Welcome all new members too - Pep lovely to see you on the photos and to see
you up there! love Steph
> >
>

Fantastic stories would have  loved to have been there to hear them first hand.

Ten new stories ('Out of Africa', 'The first ten years are the worst', 'No
holding back', 'Inspiration from an unexpected quarter', 'In the face of a
child', 'Could you have anything better?', 'From sole to soul', 'The feet on the
sofa', 'Something out of the ordinary' and 'Angelic music') from members of the
Society of the Holy Child Jesus are released, taking the number of stories on
the website to over 200.
These stories tell of members' experiences of calling, vocation and life in the
order. They can be seen at:

http://www.patientvoices.org.uk/shcj.htm

Tony

Way to go, as I believe they say... so glad you've had some time out Steph -
Lord of the rings at the Albert Hall sounds pretty cool.

we've spent the day in the garden, which is the best therapy I know for spending
too much time in front of the computer.

I'm really pleased you enjoyed the photos.

love to all

pip

--- In patientvoices@yahoogroups.com, "stephstanwick" <stephstanwick@...> wrote:
>
> I have just been in London with the family for a few days away and The Boy
whose best friend was a Hoover had his does of undergrounds amphibian vehicles
and buses and my Mike a dose of Lord of the Rings complete with full orchestra
at the Albert Hal. As for me - I stayed away from my emails and enjoyed good
weather and the family. But as punishment I have spent Saturday catching up -
but what a delight to see the retreat photos it made me smile and certainly
brightened the morning. It seems a long time ago now so I am keen to keep things
going and to make this work.
>
> Welcome all new members too - Pep lovely to see you on the photos and to see
you up there! love Steph
>

I have just been in London with the family for a few days away and The Boy whose
best friend was a Hoover had his does of undergrounds amphibian vehicles and
buses and my Mike a dose of Lord of the Rings complete with full orchestra at
the Albert Hal. As for me - I stayed away from my emails and enjoyed good
weather and the family. But as punishment I have spent Saturday catching up -
but what a delight to see the retreat photos it made me smile and certainly
brightened the morning. It seems a long time ago now so I am keen to keep things
going and to make this work.

Welcome all new members too - Pep lovely to see you on the photos and to see you
up there! love Steph

Dear Humanisers

I've put some photos from our retreat into the files section so you can relive
our time together!!

all good wishes

pip

'True colours', the first story in a series facilitated for the University of
Nottingham which allows newly-qualified mental health nurses to reflect upon and
share their experiences, is released, and is available from
www.patientvoices.org.uk/un.htm

Tony

Hi all , thank you for all your good wishes.
Like Jo I have decided to invest in the group on the grounds that facebook is
even further down the slippery slope. By thwe way Jo I loved reading your story.
I coach trainee consultant midwives and how pertinenet this would be for them so
thank you for sharing it with our select band
Steph

Hello Steph, Jo and Brian - and welcome again! Thanks for joining. We're hoping
that a few more people will make it all a bit more interesting.

The files section is the best place for the stories - it's a private group (i.e.
people can't join without us approving their membership) so should be safe
enough.

Does that seem ok?

All the best

pip

>
> Another welcome from me, Steph (and everyone)
> I've got anticipatory indigestion from thinking about eating my hat and going
to facebook, so I'm trying to invest in making THIS work.
> Do we have stories pouring in?
> Can we make a separate space for them other than the Files section?
> Jo
>
> --- In patientvoices@yahoogroups.com, "stephstanwick" <stephstanwick@> wrote:
> >
> > This is a new one for me so here goes Steph
> >
>

Another welcome from me, Steph (and everyone)
I've got anticipatory indigestion from thinking about eating my hat and going to
facebook, so I'm trying to invest in making THIS work.
Do we have stories pouring in?
Can we make a separate space for them other than the Files section?
Jo

--- In patientvoices@yahoogroups.com, "stephstanwick" <stephstanwick@...> wrote:
>
> This is a new one for me so here goes Steph
>

--- In patientvoices@yahoogroups.com, "stephstanwick" <stephstanwick@...> wrote:
>
> This is a new one for me so here goes Steph
>
welcome to the club Steph. Brian

This is a new one for me so here goes Steph

But worth it eh? The view from the top here is fine!

Well done and thanks for persevering.

pip x


>
> Hi Everybody
>      God what a pallava feels like i have just climbed Everest
> would have said Kilamanjaro but could not spell it.
>     Last week was fantastic made an old man very happy.
>
>                       From Brian
>

Hi Everybody
      God what a pallava feels like i have just climbed Everest
would have said Kilamanjaro but could not spell it.
     Last week was fantastic made an old man very happy.

                       From Brian

The pages under the 'Resources' tab have been expanded to include a page
containing links to workbooks and educational materials developed around some of
the Patient Voices digital stories.

Tony

Two new stories "Demons and despair" and "She's fine, don't worry" are released.

Tony

The pages under the 'Resources' tab have been reorganised and expanded
to include presentations, papers and articles related to the Patient
Voices programme.

All best wishes

Tony

Another new story "The complex pathway to motherhood" from the
University of Huddersfield is released.

The termination of an ectopic pregnancy is just the beginning of a
gruelling, discouraging, frustrating, heartbreaking, roller coaster
journey to become pregnant by IVF. But Christine is determined…

As always, any feedback on use of the stories happily received.

Tony

I have just released to the website another story from Pilgrim
Projects, 'A patient meditation', which tells a personal experience of
pain.

All best wishes

Tony

December and January have not been quite the restful holiday we hoped
for – but they've been very rewarding.
As a result, Issue 4 of the Patient Voice newsletter is available,
containing updated workshop dates, amongst other things, together with
several new stories.
These are: the first in a series of stories from the University of
Hudderfield 'See you later', another story from members of the Society
of the Holy Child Jesus 'In the humble and hidden life', the fourth in
the series of stories from Newham PCT's 'Communities of health'
programme 'My mum's smile' and three stories from Pilgrim projects 'The
boy whose best friend was a Hoover', 'A week in the life of...'
and 'The forgotten memories'.

Hope you all had a great festive season

Tony

'Shpresa: the medicine that saved my life', 'In sickness and in health'
and 'An inspiration to heaven and earth', the first three more stories
in the series 'Communities of health' from Newham PCT, are released.

A rich mix of people, heritage and communities within communities,
containing wisdom and knowledge from many cultures are what make
Newham. We can all learn from these communities and how they get along
together, through these stories which explore the meaning of life,
death and health - and being part of a community.

These stories were created for Communities of Health – a program to
give confidence to local people and enable them to take health forward
in their communities, in their own way.

Tony

'Crossing the road', 'Standing on my own two feet' and 'Inside out',
three more stories in a series of stories around issues of faith,
calling and vocation, told by members of the Society of the Holy Child
Jesus, have just been released.