There have been a few changes to workshops and dates; a new schedule
has been posted in the files section.

We look forward to seeing some of you at future workshops.

All good wishes

pip

Dear colleagues and friends

I hope you have been able to enjoy this delightful Indian summer
we've been experiencing in Cambridge.

A wonderful article appeared a month or so ago in the BMJ, about
dignity and the essence of medicine. The text of the article,
together with all the rapid responses, can be read here.

www.bmj.com/cgi/content/full/335/7612/184

Another interesting article, making the case for using stories to
balance the results of surveys and RCTs, appeared in the Journal of
the Royal Society of Medicine recently; I will post this in the files
section.

All good wishes

Pip

Dear friends,

Another story from the RCN Quality Improvement Programme dealing with
issues around continence care and Parkinson's, 'Christmas with Mum' has
been released.

Have a good weekend!

Tony

Hi all,

I've just released to the website two new stories:

'Getting it right'

and

'Out of reach'

Enjoy

Tony

Hello all,

I've just put  two new stories from the RCN Quality Improvement
Programme up on the website. These two stories, 'Simple solutions'
and 'I wouldn't have started from here' look at experiences around
continence care and Parkinson's.

All best wishes

Tony

Dear colleague

Please find attached the first issue of the Patient Voices newsletter. We
will try and release further issues once a quarter; in the meantime, please
check the What's new? page on the website for interim developments and
newly-released stories.

Do, please, feel free to share the newsletter with friends or colleagues who
might be interested.

With very best wishes

Pip Hardy and Tony Sumner

Pilgrim Projects Limited
91 Waterbeach Road
Landbeach
Cambridge CB25 9FA
UK

Tel: 44 (0)1223 440257
Fax: 44 (0)1223 863826
Mob: 44(0)7721 751784

www.pilgrimprojects.co.uk
www.patientvoices.org.uk

Company number 3930523
VAT registration number 571418737

This week we've released another story, 'Something for free', which is
about community counselling service provision.

After feedback from users I have inverted the order of entries in the
table of stories on the 'Find a story' page, so that the newest stories
are at the top.

Tony

Dear all

I've just posted in the files section a schedule of digital
storytelling workshops for the next few months. We hope to see some of
you there.

I will update the calendar and post on this website when tbc dates are
actually confirmed - I will also post information about any special
digital storytelling events, such as additional workshops, retreats or
masterclasses.

All good wishes

Pip

----- Original Message -----

From: Raymond Watson

To: patientvoices@yahoogroups.com

Sent: Friday, July 13, 2007 9:08 AM

Subject: Re: [patientvoices] Pip's MSc thesis now on the website

Excellent news Tony. Does Celia get a mention? Does she claim it is a Hardy/O'Hagan fusion??

 

On 12/07/07, Tony Sumner <tony@pilgrimprojects.co.uk> wrote:

Having been awarded her MSc, Pip's Masters thesis, 'An investigation
into the application of the Patient Voices digital stories in
healthcare education: quality of learning, policy impact and practice-
based value', along with links to various other papers and
publications, has been added to a new 'Research' page on the website.

We have just released six new stories 'The best Dad in the world', 'See
me now', 'There's more to life…', 'From pillar to post', 'A much
stronger family' and 'If I had to go through it all again…'.
These are all around the themes of family, parenting and stroke, and
are part of 'Having a stroke: being a parent', a collaboration with
Connect, Guy's and St Thomas' Charity, and the Stroke Modernisation
Initiative.

Having been awarded her MSc, Pip's Masters thesis, 'An investigation
into the application of the Patient Voices digital stories in
healthcare education: quality of learning, policy impact and practice-
based value', along with links to various other papers and
publications, has been added to a new 'Research' page on the website.

Amy, hi

This is all really helpful and will, hopefully, give people some
ideas of how the stories can be used to great effect to raise
awareness and give people a different kind of knowing.

Thank you for posting about the evaluations you have already done -
it is inspiring!

It would be interested to devise some kind of framework or schema
for evaluating the impact of digital stories. Similar to your
experience, people here often cite the PV digital stories as the
thing that they remember most clearly from a presentation or a
workshop... so they must be touching the right bits somewhere along
the line!

All the best

Pip

--- In patientvoices@yahoogroups.com, Amy Hill <amylenita@...> wrote:
>
> Hi Pip/all --
>
> Yes Iım sure we are all very busy :  )
>
> We have carried out a qualitative evaluation of Silence Speaks, in
terms of
> the impact of participants, but you are correct ‹ we have not had
the
> resources to evaluate specific uses of stories.
>
> For othersı knowledge Iım copying/pasting part of the overview of
some of
> those uses. Iıd love to work on evaluating the impact the stories
have had
> on viewers. We are always making connections with academics who
can help us
> with this piece, so I will keep everyone posted! I am hoping part
of this
> can be achieved at least qualitatively, via the StoriesforChange
portal
> weıre working on with our colleagues on the east cost (see
information
> below)
>
> Thanks and all the best to everyone,
>
> Amy H.
>
>
> --
>
> Amy L. Hill
> Community Projects Director
> Center for Digital Storytelling
> 1803 Martin Luther King Jr. Way
> Berkeley, CA 94709
> www.storycenter.org
> 510.548-2065 W
> 510-682-8311 C
>
> "Listen Deeply. Tell Stories."
>
>
> As far as use of stories, almost all of our community projects at
the Center
> for Digital Storytelling have very explicit screening objectives.
Education
> using stories from some of these efforts is indeed being done in
many
> systematic ways.
>
> Probably the best example is that of the Y.O.U.T.H. Training
Project, which
> is a youth development initiative we collaborate with. They
recruit, hire,
> and train current and former foster youth to develop and deliver
trainings
> to child welfare workers about the needs of youth in the foster
care system.
> We do 2-3 workshops per year with them, and then they centralize
the stories
> in the trainings they do. Because they are an intervention, and
because
> funding is hard to come by, they have not done rigorous evaluation
beyond
> short surveys with training attendees. However I do know that
anecdotally
> they have found people always cite the digital stories as the
piece of the
> trainings that made the biggest difference.
>
> An offshoot of this is the workshop we did with parents whose kids
were
> taken into the foster care system (and subsequently reunited with
them).
> They are being shown nationally in a project which trains parents
like this
> to serve as peer advocates to other parents who are working to get
their
> kids back. The response has apparently been tremendous.
>
> With silence speaks, the project focused on survivors and
witnesses of
> violence, I partner with all kinds of groups. Some have clear
agendas for
> how they will use the stories; some are more open and kind of wait
to see
> what permissions they will get, from the storytellers. On the
former, the
> best example is the workshops I did with MINCAVA, the Minnesota
Centers
> Against Violence and Abuse. The Director, Jeff Edelson, is a very
well-know
> speaker/trainer within the social services/criminal justice
sectors, on
> domestic violence. We helped them create stories which he is using
> nationally, in his trainings for court personnel (ie, judges and
the like)
> on how to address child custody issues when domestic violence is
involved.
>
> Another good example is the work I have done with generation five
(see
> www.generationfive.org). We have done 4 workshops thus far -- one
pilot; one
> with women focused on sexual abuse and class privilege; and two
with men
> focused on male supremacy and men's role in addressing sexual
violence. They
> use the stories in their trainings for community organizers on
integrating
> attention to child sexual abuse into broader social justice
initiatives, and
> screen them publicly at fundraisers/other events, to mobilize
people to get
> involved in their work.
>
> Then of course there is the work we did down in South Africa with
the Men As
> Partners Network (see
http://www.engenderhealth.org/ia/wwm/wwmds.html). They
> are using these stories in a variety of contexts to educate
providers, raise
> awareness of the general public, and promote policy advocacy. They
even
> showed them in South African parliament, only 2 weeks after they
were
> produced.
>
> Beyond these specific examples I get requests literally all the
time for
> stories -- mostly from agencies doing gender violence work who
want to
> obtain silence speaks stories to use as training tools. I have put
together
> a beautiful compilation DVD of silence speaks pieces, for use as
an outreach
> tool with potential partners/participants, and I'm going to put
together a
> shorter version of stories I have full permission to use and make
it
> available for purchase (fairly low cost just to cover
duplication/postage
> etc. but maybe it'll help raise a bit of money for the project).
>
>

Hi Amy

Thanks for joining. I'm afraid things have been a little slow,
partly due to my absence, but largely because people are all so busy.

Anyway, it's very good to know that there are others doing similar
work and to consider ways in which we might work together to share
experiences and deepen our work with story.

Am I right in thinking that you haven't carried out any formal
evaluation of the stories you've done? It would be interesting to
think of a schema that might could be used more widely to ascertain
the effectiveness of the digital stories, particularly with respect
to their use in different contexts.

I am also increasingly interested in different ways of using story
work to surface conflicts (real or perceived), articulate visions
and, of course, to offer a voice to the untold millions of patients
and carers who have never been heard.

Finding appropriate theoretical frameworks within which to do this
work is a challenge.

all good wishes

Pip

--- In patientvoices@yahoogroups.com, Amy Hill <amylenita@...> wrote:
>
> Hello everyone. My apologies for the belated introduction. I am the
> Community Projects Director with the Center for Digital
Storytelling in
> Berkeley, California. I met Pip at a retreat we held this summer
and was
> very inspired by her work. We do similar projects with
health/public health
> groups. Perhaps the best examples online are the sites where one
can view
> stories from our silence speaks project with survivors and
witnesses of
> violence:
>
> http://www.silencespeaks.org
> http://www.engenderhealth.org/ia/wwm/wwmds.html
>
> We are always looking for ways to grow those efforts, connect with
other
> facilitators, further the research on how stories can be shared
and how they
> affect viewers. So I look forward to the discussion!
>
> All the best for now,
>
> Amy Hill
>
> --
>
> Amy L. Hill
> Community Projects Director
> Center for Digital Storytelling
> 1803 Martin Luther King Jr. Way
> Berkeley, CA 94709
> www.storycenter.org
> 510.548-2065 W
> 510-682-8311 C
>
> "Listen Deeply. Tell Stories."
>

Hello everyone. My apologies for the belated introduction. I am the
Community Projects Director with the Center for Digital Storytelling in
Berkeley, California. I met Pip at a retreat we held this summer and was
very inspired by her work. We do similar projects with health/public health
groups. Perhaps the best examples online are the sites where one can view
stories from our silence speaks project with survivors and witnesses of
violence:

http://www.silencespeaks.org
http://www.engenderhealth.org/ia/wwm/wwmds.html

We are always looking for ways to grow those efforts, connect with other
facilitators, further the research on how stories can be shared and how they
affect viewers. So I look forward to the discussion!

All the best for now,

Amy Hill

--

Amy L. Hill
Community Projects Director
Center for Digital Storytelling
1803 Martin Luther King Jr. Way
Berkeley, CA 94709
www.storycenter.org
510.548-2065 W
510-682-8311 C

"Listen Deeply. Tell Stories."

We are currently developing a project for chaplaincy work in the city of
Leicester. We will be working with a variety of disadvantaged groups.
Take refugees as an example - there must be a lot of potential in
getting them to tell their story and get it down to a 2 minute high
impact message. That could have considerable usefulness in bringing home
to various audiences the reality of the lives and struggles of those
people. - Dharmavidya


--- In patientvoices@yahoogroups.com, "Pip Hardy" <pip@...> wrote:
>
> Welcome Dharmavidya. It might be interesting to others in this group
> to hear a little more about ways in which you could see digital
> storytelling playing a role not only in therapy but also in
> chaplaincy work, mental health work etc.
>
> The pleasure was really mine, working with you all last week - the
> stories are always amazing.
>
> All good wishes
>
> Pip
>
> --- In patientvoices@yahoogroups.com, "Dharmavidya"
> dharmavidya@ wrote:
> >
> > Hello. My name is Dharmavidya. I am a Buddhist priest living in a
> > religious community in Narborough in Leicestershire (http://
> > amidatrust.typepad.com/tbh/). Pip came recently and generously
> shared
> > her skills with us enabling us to make a number of digital
> stories,
> > some of them very moving. There is an enormous range of possible
> > applications of these methods and related approaches to story-
> telling
> > and sharing and we are all grateful to Pip for her patience with
> us.
> >
>

Welcome Dharmavidya. It might be interesting to others in this group
to hear a little more about ways in which you could see digital
storytelling playing a role not only in therapy but also in
chaplaincy work, mental health work etc.

The pleasure was really mine, working with you all last week - the
stories are always amazing.

All good wishes

Pip

--- In patientvoices@yahoogroups.com, "Dharmavidya"
<dharmavidya@...> wrote:
>
> Hello. My name is Dharmavidya. I am a Buddhist priest living in a
> religious community in Narborough in Leicestershire (http://
> amidatrust.typepad.com/tbh/). Pip came recently and generously
shared
> her skills with us enabling us to make a number of digital
stories,
> some of them very moving. There is an enormous range of possible
> applications of these methods and related approaches to story-
telling
> and sharing and we are all grateful to Pip for her patience with
us.
>

Hello. My name is Dharmavidya. I am a Buddhist priest living in a
religious community in Narborough in Leicestershire (http://
amidatrust.typepad.com/tbh/). Pip came recently and generously shared
her skills with us enabling us to make a number of digital stories,
some of them very moving. There is an enormous range of possible
applications of these methods and related approaches to story-telling
and sharing and we are all grateful to Pip for her patience with us.

--- In patientvoices@yahoogroups.com, "Pip Hardy" <pip@...> wrote:
>
> Welcome to the Patient Voices discussion group.
>
> As the Patient Voices programme has grown, it has been our
intention
> to establish a discussion group to facilitate the growth of a
> community of practice around the use of digital storytelling in
> healthcare.
>
> Initially this group will also form part of a research project that
> is attempting to discover the impact of the Patient Voices digital
> stories in healthcare education and quality improvement. I hope
that
> this 'virtual' group will remove some of the problems posed by
> geographical distance and different time zones!
>
> We would love to hear your views of the stories - perhaps you have
> seen them on the website, or used them with colleagues or students,
> viewed them at a conference - or perhaps you have made your own
> story. Please share your thoughts, experiences and aspirations, in
> the hope that by collaborating in this way, we can work together to
> make healthcare better, safer, more compassionate and more
> appropriate to the needs of patients, carers, service users and all
> those who work in healthcare.
>
> I look forward to hearing from you.
>
> With very best wishes
>
> Pip Hardy
>

Thanks, PilgrimP - this is a test reply to see how it's going

Tony

Hello Ray and welcome - it's great to have you as a member of the
group. I am sure I could benefit from your experience of running
your course about disability and it would be good to explore ways in
which digital patient stories might be useful in your work.

All good wishes

pip



--- In patientvoices@yahoogroups.com, "rayannawatson11"
<rayannawatson@...> wrote:
>
> Hi all,
>
> My name is Raymond Watson (Ray). I am the course director of the
BA
> Applied Social Studies (Disability) at the Open Training College
in
> Dublin.
>
> Our mission is to provide training to staff in disability services
in
> Ireland that is accessible, accredited and that promotes best
practice.
>
> Part of the best practice is to ensure the service users of
disability
> services in Ireland have a voice and they are heard by the people
who
> manage the services. One way I see this happening is through the
use of
> digital stories, as proposed by Pip.
>
> I look forward to your reasons for being interested in digital
stories.
>
> Regards,
> Ray
>

Hello all, I'm Tony Sumner - one half of Pilgrim Projects. I realise
that I should have posted my intro before replying to a message, so
please forgive my delay.

Pip and I started Pilgrim some years ago - a bit about this and more
details about me can be found on www.pilgrimprojects.co.uk. My
fascination with the Patient Voices programme lies in a couple of
things - the chance to try to make a good thing (the NHS) better and,
in part due to my background, and interest in the techie side of making
the stories, putting them on the website, distributing them, etc.

TTFN

Tony

Hi all,

My name is Raymond Watson (Ray). I am the course director of the BA
Applied Social Studies (Disability) at the Open Training College in
Dublin.

Our mission is to provide training to staff in disability services in
Ireland that is accessible, accredited and that promotes best practice.

Part of the best practice is to ensure the service users of disability
services in Ireland have a voice and they are heard by the people who
manage the services. One way I see this happening is through the use of
digital stories, as proposed by Pip.

I look forward to your reasons for being interested in digital stories.

Regards,
Ray

Dear new members

It would be wonderful to know your interest in and experience of the
Patient Voices. When you join, perhaps you could say a little about
yourself by way of introduction - and how you have used or intend to
use the stories. That will help to understand the context in which you
are working and should provide a nice breadth to our discussions.

All good wishes

Pip

Welcome to any new members

By way of encouraging some discussion, I thought it might be helpful
to let you all know a little more about the research I am carrying out.

As there has been such a lot of interest in the Patient Voices digital
stories, and more than 100 people have requested - and received - free
DVDs, it seemed timely to discover how people are using the stories
and to find out whether they are really making a difference.

So, as part of a masters programme in lifelong learning, I decided to
investigate the potential of the stories as a reflective tool in
healthcare education and quality improvement.

The questions I am hoping to answer are, therefore:

* How are the stories currently being used in healthcare education or
quality improvement programmes?

* How could they be used in healthcare education/quality improvement
programmes?

* What is their potential to improve the quality and safety of
healthcare?

* What is their potential for involving patients in healthcare
education and quality improvement?

* What is their potential as a tool to aid reflection, encourage
debate and discussion and promote reflective practice?

* Does the use of the stories bring about any demonstrable chanage or
evidenced benefit for patients, carers, service users, clinicians, the
health economy or the health service?

A questionnaire has been posted under the files section here, which
will form the basis of focus groups and interviews.

In the meantime, it would be great to hear about your experiences of
using the stories, or your thoughts about their potential.

All good wishes

Pip

Hi Pip,

Thnak you for my invitation to Patientvoices. I am looking forward to
some healthy debate. Are there any examples of the videos I can watch?
Best of luck with the forum,
Ray

Welcome to the Patient Voices discussion group.

As the Patient Voices programme has grown, it has been our intention
to establish a discussion group to facilitate the growth of a
community of practice around the use of digital storytelling in
healthcare.

Initially this group will also form part of a research project that
is attempting to discover the impact of the Patient Voices digital
stories in healthcare education and quality improvement. I hope that
this 'virtual' group will remove some of the problems posed by
geographical distance and different time zones!

We would love to hear your views of the stories - perhaps you have
seen them on the website, or used them with colleagues or students,
viewed them at a conference - or perhaps you have made your own
story. Please share your thoughts, experiences and aspirations, in
the hope that by collaborating in this way, we can work together to
make healthcare better, safer, more compassionate and more
appropriate to the needs of patients, carers, service users and all
those who work in healthcare.

I look forward to hearing from you.

With very best wishes

Pip Hardy