This past Friday night I was working and a couple came in with their baby. He was a 2 month premee and 6 weeks old. He weighed more than David and was almost...
hi becky- how i knooow that feeling !!!!! my daughter, avital is 6 months and there are newborns that are her size and weight ! it drives me nuts and makes me...
David is doing well also, he has rolled over already and holds his bottles(still needs help) He doesn't do so well holding his head up but he is slowly getting...
becky- avital, can barley roll over. though she's trying desperately to sit, and eat more solids (by grabbing things from our hands ... lol) she sleeps on her...
I am the grandmother of David in Ohio 4 1/2 months old Acon. His mother is a member of this and suggusted I join also. We are interested in everything we can...
Hi and welcome to the group. Although my child is now older (9) this is a
great resources for information and support. I think it's great that you
have...
Welcome David's Grandma! To get started with your education about David's dwarfism, you might want to check out the "Links" section here at POLP2. The first...
Does anyone happen to have handy any information on what children with achondroplasia will need for kindergarten?? We meet with a private school today and I...
Hi, I don't know if it's possible but could you take MacKayla up to Fairbanks (Ft. Wainwight) or maybe go to Achoridge or even Seattle? When I was in Fairbanks...
Shelley, My son, Andrew, has 3 step stools in the classroom, receives help in the bathroom with his clothing as needed, uses wet wipes and Purell to wash...
Thank you Lori - I will keep all of this in mind. He has been in a mothers -day -out program since he was about 9 mo. old - I think he will be fine but I am...
Hi Shelley, I am the father of a 6 year old achon girl who is now in grade one. My wife and I had the same concerns when we sent our daughter to kindergarten...
Shelley, You might want to look at the LP School Issues document in the "Files" section. Lots of helpful tips in there. While I was the one who wrote this...
Thank you for all of your help - this is exactly what I was looking for. I wasn't expecting this meeting to happen so fast and I just was notified yesterday...
Hi Shelly, Logan is now 9 and in the 3rd grade. Doing great!!! Some things we did to
help him be more independent........made sure doors to bathrooms were...
Hey LPA - After observing a little person going to a local movie theater alone, John Dickerson, features writer for the family of Valley publications, (The...
On Monday January 9th, there will a Premiere showing of a new documentary film about our family on the Discovery Health Channel. The show is titled "Dwarf...
hi jacquelyne, what about ft. lewis ? i know this has nothing to do with our children, however, is elmendorf AFB as large as ft. lewis? daniella proud mommy of...
Hi everyone, Does anyone know what a seizure looks like? Not the Grand Mal Type. I have seen those before. My 15 mo. old son fell off the bed about 3 weeks ago...
My friend has a daughter with a seizure disorder and that sounds very
similar to her seizures. In fact they had a hard time diagnosing them
because they were...
I use to work in a group home with children with disabilities.None of them where kids with bone dysplasias,but what you are desribing sounds like small...
Hi Penny My now 14yo daughter was run over by a car at 16 months of age. She had a compound depressed fracture of the skull, and a small amount of damaged...
I have a 16 month old achon son with a host of minor problems that he should grow out of eventually. My wife and I both have dwarfism, I am the achon, and she...
Penny- This really does sound like a petit mal or temporal lobe siezure. I, too would give his doc a call. I'm sure they'll want to run some tests - EEG,...
I seen something like what you are describing on TV. The little girl had swelling in a certain part of her brain from a fall that cause the sezures. They...
It started about a week ago. My son was starting to teeth with 4 new teeth and getting diahrea which is normal for him and a fever which is also normal for...
My 12 month daughter (hypo) has had seizures since she was 3 months. The neurologist calles it absent/focal seizures. She goes into this blank stare, then...
Craig- I do not hava an achon child, but I am a nurse. Lethargy is NOT normal in a child, nor is having an absent "red reflex in one eye." I don't want to...
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