Hello, and welcome to the group! I just wanted to add one more bit to Caela's post. The "Files" section also contains a dcoument from the American Academy of...
Hello there everyone, My name is Nicky , but you can call me Nick. I have a daughter with achondroplasia. She is 4 years old. And the light in my life. She has...
Hi Nick, My name is Mandy.I have a daughter who is 22 months old.She too is the light of my life.She also,Has two older brothers and an older sister.Andrea has...
... I am only new myself here and so far i am loving this website. My name is Melissa and i have an 11 month old son with achondroplasia. He means the world to...
hello nick , welcome i am proud mom of hailey age 7. She has osteogenesis imperfecta type-3. I also have 2 other children age 10 and 9. welcome to the group. ...
Dear Cheryl, Thanks so much for your response. Please write more and tell me about yourself & your family. And I am proud to know you. Thanks again. Nick ...
Dear Melissa, Thanks so much for your response. I am so glad to finally be able to talk to other parents of lps. Even though I have been a parent of a little...
Dear Mandy, Thanks for your response. My little Emma has achondroplasia. Are the Drs. trying to find out what kind of bone dysplasia Andrea has? I would love...
Also Dr. Brendan Lee in Houston is absolutely phenomenal and was able to help us pinpoint Braden's after having three incorrect diagnoses. ... From: Amelia...
I am so sorry you have to go through this. I have not exactly been in your place, but our doctors told us that our daughter would probably not live after...
I would ask about Chondrodysplaisia Puentata. My son was diagnosed with this when I was told he didn't fit a paticular type of dwarfism, who by the way, just...
I would ask about Chondrodysplaisia Puentata. My son was diagnosed with this when I was told he didn't fit a paticular type of dwarfism, who by the way, just...
Hi everyone. Could anyone recommend a carseat for children with achondroplasia? We have a 5 week old and can't seem to find a carseat that can hold him well...
I have a evenflo care seat its 5 point harness my genetic specialist told us to take a blanket and rip it up to little rolls and put them behind the baby's...
I didn't find this out until my son was over a year old but I was informed that they make something called a "car bed" and it would have been perfect for...
hey_elel, Infant carriers work better than car seats for the first 9-12 months, since they are designed to hold newborns. In my son's case, we rolled up small...
- Hi there, this maybe totally unhelpful to you but in New Zealand the hospital had a normal car seat (Guardian brand) modified especially to fit my daughter...
Wow Marie, That's interesting..... Jeremy just had a normal 0-6 month carseat (till he was 9 or 10 months)... I just used one of those 'head support' things......
Hello to all! This is Rita..I have a 16.10 yr old Achon son... For me the best way really is to hold your baby in your arms that way the head has the best...
... I too am very happy that i found thios site, its wonderful, i dont feel alone anymore. I am from Australia, well Sydney to be exact. When did you say you...
... I never even knew about the other car seats, i have a safe'n'sound recliner which is padded and very supported and i have just turned it so it is front...
... I am only new on here bit i wanted to say that your son will definately be in my prayers, and please keep me posted on how you go. If you ever need to talk...
... I am in the same boat, i never had a problem with my sons head. Doctors told me that he would not be able to support his head but at 3 weeks was holding it...
We found a product at Babies R Us called "support wings". They are rectangular pillows that velcro around the car seat straps and provide head support on ...
If the angle of your seats is such that the seat "tilts" too much, you can use pool noodles wedged in the fold of the seat to creat the correct angle. When we...
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