Hi Jesi, and thank you for the welcome! It sounds awful, but I think I'm the only one in the family (besides Neave, who's happily oblivious) that isn't going...
hi lia, you're right. AH stands for average height. sorry for using polp shorthand on newcomer :) i'm glad you're doing well. take care, jesi ... and ... of...
Well, I'll have to learn the polp shorthand sooner or later! Thanks for letting me know. ... happily ... My ... them ... have ... the ... size ... to ... ...
I'm Lia, daughter to 16-mo old Neave - and I love our pediatrician here in North Raleigh. I am just beginning my POLP journey at UNC- Chapel Hill, and so far...
Wow that's great, thank you for the update. I'LL BE WATCHING OUT.. NEAL ... From: Amanda Biggs To: parentsoflittlepeople2@yahoogroups.com Sent: Sunday, July...
Hi Beth - I am a scatter brain and I can't remember if I wrote you the other day or not - two kids and chaos here are making me crazy! Oh well - if I did wirte...
Yes, and I am glad of that! ... time, ... achondroplasia. ... she, ... in ... that ... were ... her ... ensured ... and ... Sept ... meant ... like ... rolling...
the arizona chapter - www.AZlpa.org - has been asked by district 10 to host the 2006 spring regional... the current active portion of our chapter primarily...
I haven't been involved with the running, but have recently attended one, and I liked the First Timers wine and cheese. I was a good chance to meet others in...
hello,my son is two today and he as well has a full trunk brace and it makes him sometimes unable to walk but as they get used to it they learn how to walk...
I am looking for Aulden (4 1/2 yr. old achon.) a pair of soccer shoes size 5 1/2 to 6 wide or extra wide. Does anyone have any idea where to find such a ...
Some of you may regard my comments as completely off base but in my 46 years of being an lp these comments are based on my experience with orthopedic surgeons...
I agree with you Cyndi, I am achon (age 36) and so are my two girls ages 2 and 4. I'm also one more step with these achon "issues", we are treating the girls...
Dr. Kopits (and also Dr. Pauli) routinely prescribed back braces for _some_ young children with achondroplasia, but only those who needed it. That neither you...
Thank you Vita! for the additional information and as I stated it was my families experience with our doctors and our own experience. I do understand about...
Vita, I appreciated your post. My husband and I have decided to proceed with the trunk brace to treat our daughter's kyphosis. After weighing the wealth of...
To me, if the geneticist is Dr. Pauli, then that would be the _only_ time it's okay to accept bracing from a geneticist -- Pauli is famous for managing the...
Thank you, Cyndi, for your straight on observations. I think it's a good idea to listen to some of these people who have lived through the different bracings....
Perhaps it's the way the rods were placed on you, Patty, that makes you able to feel them and feel imbalanced. Stefan has had multiple rods in his spine for...
Hi, I’m fairly new to the group and hoping for input on Ear tubes and hearing loss. Colleen, my 5 yrs achon, is losing her second set of tubes, one is...
hi my name is michelle and i have a 2 1/2 yr old son who has achondroplasia. and figured i would join so that i could talk to other parents of lp and hopefully...
Welcome, Michelle! What is your son's name and where do you live? We have many very knowledgeable parents here whose children have achondroplasia and some...
vita~ we live out side of springfield missouri. my son's name is josh. i was looking at some of the messages that were posted and thats when i decided to go...
my daughter is not an achon, but my daughter has a similar experience. she has osteogenesis imperfecta. After several sets of tubes she developed what they...
i have had 2 children with tubes placed in their ears and both have had t have them put back in. one child is a little person the other not. Both have...
dear parents of little people, i'm just wondering if other parents feel the same as i do? when ever i take my 5 yrld daughter out adults look at her and say...
Dr. George Bassett, an orthopedic dwarfism specialist, is in St. Louis, about 3 hours from you. Is this your son's doctor? If not, getting a one-time...
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