We got the Gator for our children and it is huge for our achon son and I know Santa probably already purchased yours but power wheels makes a small "quad" our...
My only advice is to get a second opinion - I know the DR is - kinda- but for your own peace of mind - One time when my little one was having surgery and the ...
Marcia, I understand Emily's ortho sent her films to Dr. Ain for evaluation. If the other orthos consulted have limited or no experience with achondroplasia,...
Welcome to the group, Martin! I love your daughter's name, Madeline!!!! That was our girl name that we had picked out for our son, Tristan if he had been a...
We have the John Deere Gator and the Lil Quad. Tristan just turned 3 and is beginning to be able to drive the Gator. We haven't made any adaptations to it yet...
Susan, What a great idea to get the word out about POLP/POLP2! I don't even know how to begin to tell you how much this group has helped me. I have met very...
Hi,my achon son Paul (8,5 months)has cold and cough again and I am sure that it will finish with ear infection again. What do you do in the same situation?...
Hi, I have a 4 year old Achon son in preschool who is laying down instead of sitting up at circle time. I remember reading somewhere in a post about a type of...
Neither my son nor I (achons) can sit on the floor for very long. I think with my son it's his back that hurts. With me it can be stomach muscles because I'm...
--Good morning my sweety sister Amelia long time i didnt' send any messages for u and for other parents hope u still remember me and remember my daughter...
Hello everyone. I have been on the list a while, but I wanted to ask this question since Ruth mentioned it. My son, Brandon, has the sharpest tailbone at the...
I have felt that too and always wondered about it. I figured it was just the way Ricky was made, complex as it may be. Hopefully someone can shed some ...
My fiance has the same thing. When he was a kid it was very obvious, he almost looked like he had a tail. As he got older, it seems to not be as onbvious....
Many LPs whose dwarfism includes lordosis have their tailbones appear like Brandon's. It's not a problem and there's nothing you do for it. Stefan's tailbone...
Stefan would agree with Ruth -- sitting with the legs straight out in front is more stressful on the back, hips, and tummy muscles than using a small stepstool...
I know you meant POLP in your first sentence, not POLP2, since POLP has greater resources for all families. While everyone has the individual choice of how...
You can also set your group membership email to "special notices only" and go sraight to the website to read the messages you want and skip those you don't....
... sorts of things ... overwhelming ... Janet, One more option to choose from: Daily Digest. Rather then receiving individual posts, you receive a group of...
Yes, that is a good alternative (using digest form). I tend to check online now and again, and so far that has worked out sufficiently. And I apologize for...
Thanks to all of you for the many encouraging personal messages I received! As you can see, I am also now a member of POLP2 (and also POLP). It has been a...
I never thought I would be needing help on this subject as the mother of 4 healthy girls. But our son Nicodemus was born 3 months premature and after almost 2...
Welcome, Dianne! Without more details of just why doctors suspect that Nicodemus might have dwarfism, it is difficult to know which answers will help you the...
... <rgagne@e...> wrote:Nicodemus was born 3 months premature. The NICU he was in we later found out was not that good. They helped him live for us but didnt...
Hi - I just thought I'd take a moment to let you know if you have any questions you can email me. My son 21 mos has achondroplasia and was diagnosed at 2mos. ...
Hi Dianne, My name is Cristina. My second child, Kiki, who is now 6 years old, was diagnosed with Kniest syndrome. Kniest is a rare form of dwarfism. Kiki...
My twins are 3 1/2 months old. One has achon,I think that I have been in denial but I am working on that. Maybe some stories from parents that have been...
My twins are 3 1/2 months old. One has achon,I think that I have been in denial but I am working on that. Maybe some stories from parents that have been...
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