Welcome to the group, Tiffaney! This is the best resource I have yet to find since my son was diagnosed with achondroplasia. He just turned 3. And good for you...
In the November issue, there is an article on a 12 year old boy with achondroplasia. His name is Willem Winkelman, but it doesn't say where he's from. It's a...
My son is 20mos and we just got MRI results back that he may need Decompression surgery. I have appts set up but I was told the best is Dr. Ben Carson at...
I tried to sent this to you the first time and it was too large of an attachment. Therefore, just go to the site listed on the page and you can view and read...
The direct link for the article which Lisa is referring to: http://www.nlhealthandwellness.com/whenchildrenteasechildren.htm Since one never knows how long...
Lisa, I couldn't find the "Mother's story" article, but have posted the link and text for the article about teasing -- which I'm assuming is also about ...
My son had decompression surgery last year (8 years old at the time). It was his second surgery. The first was done when he was 3 months old and our surgeon at...
Hey --- the article is on page 21 of the paper. I didn't go to the site itself, because I read it from the attachment that wouldn't go through. I can copy...
After a review of the web site, it appears that the article I was referring to is not on the website yet. It is only available through the link I gave you. If...
Check with A I DuPont on Delaware. I do not know of a specific neurosurgeon there, but they do see a lot of LP kids. You might check with Linda Nicholson, who...
Amy, Pennsylvania falls under District 2 of Little People of America. It is one of the most active districts of LPA. Whether you are a member or not, I...
I know Willem. He lives in Northern California; he and his parents are very active in LPA. In fact, at a parents' meeting last year, he and another 11 year...
Amelia is giving good advice here, Amy! Additionally, when you do find an experienced neurosurgeon, that doctor can consult with Ben Carson. You might also...
While I usually don't write emails like this, this alert is important enough to send to our POLP groups... If you receive an email that appears to be from your...
Hello, I am a mother of 7,5 months old achon boy Paul. I am living in Estonia (Europe, near Finland). In Estonia is only 1,4 million inhabitants, so I know...
hello sigrid, i am the mother of brittany who is 8 years old achon. we live in british columbia canada so quite aways away from you but never the less i check...
Hi Sigrid I am the mother of a 6 year old boy with achondroplasia. We live in New Zealand - also a long way from you, and a long way from USA! I visit this...
Welcome, Sigrid! While most of the members of this group are from the U.S., we have other countries represented here too -- U.K., Australia, Ireland, Canada,...
Sigrid, Welcome to POLP2! I have a 3 year old son, Samuel, with achondroplasia. We are located in the US, but as you've seen, this group has members from many...
Hi all, I have a question about custom bikes. Has anyone ordered a custom bike from Boyd Atherton? My son is three and has achondroplasia. Larry and I are...
Welcome, Sigrid! I am Carmen, mother of identical twins with achondroplasia, 2.5 years old, and I am from Slovenia. That's not so far from you. I am glad you...
Hello Everyone, I wanted to tell you how much I enjoy hearing from people across the world. and learning about people of different cultures. My daughter is...
Thank you all who answered me! I`m really very happy that I found supportive group, people who are in the same situation. That`s wonderful that we have...
My son has achondroplasia and is 3 also. He is able to use a small two wheel bike with training wheels and blocks on the pedals. He was able to use this...
Hello I´m Monica, mother of 8years old pseudoachon boy Eduardo, I am living in México so quite aways away from you but never the less i check postings all of...
Hi - we met briefly at Hopkins on Friday on the elevator up to the 5th floor. You were on your way to Dr. Ain and us to Dr. Carson. We hoped to maybe see you...
I think I got your email by mistake - but I think we saw you there in the hallway walking with Carson while you were on the phone? My son was walking with my...
Hello! Paul (next week 8 months) has got his first middle ear infection :( I know that achons have risk to get ear infections very easily, but nevertheless I...
Because of the short, straight ear canals in LP children (all LP children, not just achons), it can be difficult to avoid intermittent fluid build-up in the...
Hello, Something to be on the look out for is fluid in the ears. Ella NEVER had an ear infection, but continuously had fluid in her ears, which is why she got...
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