My grandson is a seckle syndrome dwarf, 2 1/2 months old. He was taken to the hospital a week ago friday, turns out he has some unexplained fractures, and the...
hi parrish, i was very saddened to read your post. in just doing preliminary searches on the web i found that seckle syndrome has a dislocationin the forearm....
I just sent a message to your daughter Jessica at another parent group, but I will repeat that message here. I suggested that Jessica contact Dr. Charles...
Do you have legal counsel? That is important. If your financial circumstances are tight, you should be able to find help through a legal aid society. You...
Thank you so much i will call them today. I appreciate you information. Im doing anything and everything I can, including the possibility that I may go to...
They are in Newark, north of Fort Worth. I had a grand daughter as well, Alleigha, she died in Feb. at 2 1/2 of a sudden stroke, but before she died she was...
Hi Layaly I read your earlier posts but never replied. Even many doctors in US thought my daughter was achon when they saw her. When we said this to the top...
Hi lalaye I looked closely at the weight and height you typed, did you type right? If you did it seems your daughter was quite big at birth but did not grow...
Greetings everyone, As some of you have heard, we are putting together a small informative booklet (~16 pages) on dwarfism for elementary school kids as part...
... good morning sweety thx for ur reply yessss sister my baby at birth was 47 c.m and 3 kelo and 350 gm yes now she 64 c.m and 6 kelo until now ALL DOCTORS...
... HI really i cant find the nice way to thx all the mothers in this web really i stop feel sad about my baby. yes ,,my daughter very nice,,,she start...
Hi everyone!! I am a new member and very happy to have found this site. I am 29 weeks pregnant and expecting a baby with some form of skeletal dysplasia, but...
Kelli, Welcome to the group. You have found a great place for support. I am sure you will get a lot of questions, help, advice, and support. Where are you ...
Hello Kelli and welcome, I am the mother of Emily Claire (6 year old achon). Emily didn't have any complications at birth. I had a C-section because I knew...
Kelli, I'm the mom of a 28 year old adult son with diastrophic dysplasia, one of the 200+ types of dwarfism. Stefan's dwarfism was diagnosed immediately ...
Hi Kelli, I thought i would reply to your e.mail, as a mother of a 6 month old daughter Elle who has been diagnosed with a form of skeletal dysplasia called ...
Hi: this is ramon and I live in mexico,but i came from valencia spain. i have a son who was diagn. with a seckel syndrome (primordial dwafirm) and he was head...
Hi Kelli, My name is Cristina. My daughter Kiki, 6, was born with Kniest syndrome, which is a rare dysplasia. Characteristically, it is different from ...
Kelli, Welcome to POLP2! I'm glad you found this group. It has been a great source of support and encouragement for me and my family. I have a three year-old...
Hola Ramón Mi nombre es Monica y soy madre de Eduardo, el es pseudoacondroplasico y tiene 7 años, nosotros tambien vivimos en México, en Tijuana, que bueno...
Hi Layaly, I'm glad your daughter is walking. Can you buy American shoes or shoes on the internet? I know that kids with achondroplaysia usually have small...
I just wanted to thank everyone for their replies. You have really lifted my spirits. To tell the truth, I think I slept better last night after finding all of...
Kelli & Matt, It sounds like you have a very nice family, congratulations. I am sure that some of the other members will have some suggestions for you ...
Kelli, If your baby does end up with a type of dwarfism, you won't be relying on a pediatrician for anything but regular pediatric care. Not because the ...
Kelli, Virtually all the parents, grandparents and guardians here have found, over time, that _they_ are the experts in their child's dwarfism compared to the...
Hello Kelli I'm a mom to a 15yr old LP she has diastrophic dysplasia, we found out about Bekah when I was 20 weeks during a ultrasound they ordered due to the...
... hi shall i can byu this shoes by internert? terll me pls how? In parentsoflittlepeople2@yahoogroups.com, "susan larkin" ... shoes on ... small and ... ...
Killi hi sweety i hope ur baby be ok...dont feel sad or worry about him ,am also amother to 2 years acho girl..in the begining i feel sad about her and cry...
... hello cristian u are strong mother ,,that u care about daughter like this i hope learn from u ,,to stop feel sadly about my daughter DANIA she is 2 years...
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