Sara continues to well, although she is teething quite a bit and drooling. Because of the PRS, she does not swallow well. She is constantly saturated and it...
Hi Denise~ That's great about the dr appts.! The drooling will come to a screeching halt as soon as Sara goes through the cleft palate surgery. I was so...
I have really been wanting to show off some pics of Sara. My dilemma was that we got a new computer for Christmas and our digital camera was not compatible...
Sweet photos! I wanted to reach out and stroke Sara's cheek! Good luck getting a new digital camera. I have a Sony Cybershot DSC-P72. It's all automatic,...
For anyone out there who was as frustrated as I was to find a potty chair that would fit their child: I looked for a long time to find a potty that will fit...
Hi Karen, I have a 6 year old (Emily, achon) and I am also a teacher. From both a parent and teacher's perspective, I recommend contacting the school. As a...
Karen, In addition to Marcia's really good response to your questions, you might want to read the LP School Issues document in the "Files" section of this ...
Karen, I completely understand your fears. Is Andrew your only child? I have two older children. The oldest went to private school for nine years and I...
First I would like to thank those that helped with swimming. My next big problem is potty training my 3 year old daughter Savanna. Savanna wont use the little...
The Freedom Trainer might interest Savanna: http://www.babyproofingplus.com/item118.htm and http://pottytrainingsolutions.com/products/freedomtrainer.htm At...
First of all thank You for this wonderful forum and the very informative LPA pages! It is amazing how much info there is in one easily reachable place! We live...
Dear Elina -- Since you mention LPA Online, you probably already know this, but there is a whole section on limb-lengthening in the LPA Online Library, pro and...
Elina, My daughter Madison is in the process of limb-lengthening right now. She is doing great and she has gotten almost 2 inches of growth. She is done with...
There is a lot of controversy surrounding limb lengthening, and I personally am against it. I think it sends a bad message to the child, that even their own...
Hi Patty and Grant, We just had a boy 10 weeks old diagnosed w/ achon. and the doctors told us height does play a role on how tall of a achon they will be....
Hello, My son, Owen, with achondroplasia, turned 4 on Friday and got his first pair of glasses on Monday. He is very far sighted just like his dad. Because...
Amy, speaking as the old fart who has worn specs since he was little, (6 years old), and since I am also Achon with no bridge to my nose, the following tips...
In addition to Fred's good suggestions, I also suggest that you look for frames that have curved back pieces that actually hook over the ears. These hold the...
I've had an afterthought................ Try to find a Chinese optician! Why? Cos Chinese don't have a bridge to their nose either! Hey, it's true! You look...
Vita and Fred, Thank you so much. I just talked to the vision care place and we are going to go back and look for frames with the wrap around ear pieces. I...
--hello amy, my daughter brittany is 7(achon.) she has been wearing glasses since 11 months old and she has had no problem keeping them on i too was worried...
Hello, My name is Dana. I have an adorable 1 year old named Aidan who is hypochondroplasia. We are live in Petaluma, California. As a new parent, learning...
Hi Dana: Welcome to the group. I myself have hypochondroplasia. I am 4'5" but I am not proportionate. I have short arms and legs. I am married with two ...
Hi Dana, My daughter, Kiki, was born with Kniest syndrome. Your story is so interesting. Nothing like that has happened to me. I have, however, heard of it...
Another WOW!! It sounds like Kiki is doing GREAT!! Glad to hear she had such a successful school year. A good start is always so important -- and a real...
hi dana, what a touching story. it's interesting you bring this up because once my daughter helena was born, achondroplasia, 7 months, i started looking at...
HI, First ( Because it struck a cord ) take a look, a close look at Aidan; That's what you caused; a Beautiful child I'm sure! My wife and I have a son ( 3...
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