My name is Linda and I am also new to this site. I am hoping some of you can answer some questions we have. As background, we don't know what kind of...
Hi Linda, I think you have brought some very important questions that all of us LP parents have faced. I wish I had all the answers but I don't - mostly I just...
Welcome, Linda! My son Stefan is 28 years old and diastrophic, one of the other 200+ types of dwarfism. It must have been a real shock to find out that Kevin...
Linda, I thought I might address some of your questions/concerns about attending the National LPA Convention. I took my daughter to Atlanta when she was 15...
Thanks Cori -- I appreciated the responses I received, and reading what others post on the site. We still haven't decided on the conference yet, but I look...
-- Hi, I myself am an adult LP, and a mom. I have hypochondroplasia. My 13 year old daughter is A.H. and my son has undiagnosed SED. My husband is A.H....
Hi, my name is Jeannie Byrd from Ky. I have a four year old with drawfisim. They first said it was a rare type of skletal dysplasia called des bu' qua...
Welcome, Jeannie! It's very difficult to find info about Desbuquois Syndrome, but there is some info. Spelling it correctly is also difficult! ... Database....
Jeannie, My Grandson Brenden (15 months) has been given a preliminary diagnosis of Desbuquois Syndrome. You are right in that it is one of the rarer types of...
Hi everyone, We found out a couple of months ago that our son, Justin, has achondroplasia. He is now 6 1/2 months old and we have had a pretty definite...
Wow! YOur post is so on target with so many of my thoughts and questions. My son is 4 with an undiagnosed sckeltal dysplasia, but in the metaphyseal...
Hi everybody, We would like to introduce ourselves. We are the proud parents of Arthur, who is now almost 8 months and is diagnosed with achondroplasia. Arthur...
I forgot to mention in my earlier post that Eli has a six year old sister. We told her that her brother was a little person when she was five, mainly b/c we...
Hello Jeannie, I live in Ky too. My son is five and is 35 inches tall. I am with you. We went through a dozen of "almost diagnosis" to now a for sure...
Hello, We're from the Netherlands, and our daughter Myrthe, of almost 8 months, is diagnosed with achondroplasia. For now i just want to say hi.......i'm going...
Hi~ I am new to this particular list, many of you may know me already. My name is Patty Bowers, and my daughter is Amy. She will be celebrating her 16th...
Pardon the self-promotion. I want to let everyone know that Child Magazine's interview with me about my book, "Little People: Learning to See the World Through...
I feel like I've been gone forever. Just wanted to post and let you know the site that I'm working on for Tristan. I'm not done by any means, but if you'd like...
Tanya, like everyone else, I just love your website for Tristan. What you have written is beautiful, and really rings some chords. I have no idea how to go...
Hi, I'm kinda new to this list but Tanya I loved your site about your son Tristan (wiping tears from my eyes). It sure took me back to dealing with things 8...
Linda, All these fears that your husband might have now will be resolved in time. Telling a child that he/she is an LP just _has_ to be done eventually....
I just love everyone's honesty in this group! It's so hard to admit that you go through a phase of denial when your child is diagnosed. You almost feel like if...
I went through the same scenario(s) you did. It's nice to see someone else put them in print. And my-ex husband did the same thing too. It is harder for the...
From: higette I just love everyone's honesty in this group! It's so hard to admit that you go through a phase of denial when your child is diagnosed. You...
Hey Old Fart (er, those were your words Fred, he he), I just wanted to point out dwarfism differences - SEDs and some others really are more delicate in some...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
