Thank you very much for your opinion. We may look at seeing Dr Scott in the future. We live about two hours west of your Richmond relatives. Though I would...
Thank you very much. Seeing Dr Scott looks like something we definitely want to look into. It sounds like it would be well worth all the costs associated. I...
Thank you so much Sue. I would be worried about taking Chloe to see Dr Scott at this point, since she doesn't actually HAVE a form of dwarfism yet? Are those...
Hi Amy Diagnosis is the number one reason you should meet Dr. Scott or any other dwarfism specialist recommended by LPA. They have seen all the different...
You're in luck, Amy! The Greenberg Center at Johns Hopkins is the leading center for diagnosis of short-statured people in the U.S. -- Dr. Scott and many...
In a message dated 4/1/03 8:05:44 AM Eastern Standard Time, ajk912@... ... Amy, We have been to Johns Hopkins to see Dr. Michael Ain, an orthopedic doctor ...
Amy, The Greenberg Center at Johns Hopkins is a very good place to go. I'd like to second Vita's suggestion that you contact Dee Miller first, to help you...
Does anyone have a preference? All of Mackenzie's doctors (with the
exception being her local pediatrician) are at duPont. They include Dr.
Scott, Dr....
As an SED, Mackenzie is better off at A.I. Dupont, in my opinion. The orthopedist associated with the Greenberg Center is currently Michael Ain. Again, in my...
Hi All! Our son Aidan (19 mos old undiagnosed short stature) is scheduled for tubes and an adenoidectomy this month. We personally don't know anyone who has...
Jacob 28 months, had his 2nd set of tubes put in last Tuesday. The ENT checks the adnoids while he is sedated and he said both times that Jacob's adnoids were...
My daughter, Hayley (almost 11, achondroplasia) , had her adenoids removed when she was 2 along with her tonsils. She spent 2 nights in ICU after the surgery...
My 19 mth old achon son has always had issues sleeping at night, or more to the point I have issues with the fact that he does not sleep thru the night. I am...
I talked to Chloe's geneticist about this yesterday, and he kind of chuckled then told me that taking Chloe to Greenburg Center wouldn't gain us much since he...
Thanks Janet. I don't think we are going to John Hopkins at this time. But I will definitely see if the offer still stands for help with information should...
Chloe had her adenoids out last month with no problem. We didn't ask them to take special precautions, so they didn't that I know of, but everything went ...
Angela, We found that when the air is dry (mostly in the winter, for us), our Sam sleeps through the night with a humidifier. Without the humidifier, he would...
Hi Amy Dr. Scott IS semi-retired. However, he did tell us that he still practices and sees LP children because there are so few true dwarfism specialists...
I wish to thank everyone on the different dwarfism lists for their prayful support over the last painful six months. As many of you may have not known, my ...
Hello, We found out our daughter has achondroplasia on jan 28th of this year. We took her in for a bump on her back which is the kypohsis the Dr. told us. I...
Welcome to the group! You will find many families with children who have achondroplasia........and all age groups! How old is your daughter? The hump(gibbus...
I have only been with this group a few weeks myself but I think a great place to start looking for information is LPAonline.org. They have quite a bit of...
Hi My name is Cristina. My daughter, Kiki, 4, has Kniest Syndrome, which is a rare form of dwarfism. People are just now starting to notice that she is smaller...
Cristina, The LPA website contains some information on achondroplasia. Their FAQ page at http://lpaonline.org/resources_faq.html may have answers to some of...
OK... It's time for me to seek advice about my feelings from you all who know where I'm coming from. I tend to keep things to myself too much. I'm going...
Hi Stacey, You are not alone in how you feel. Our Mackenzie is 6 years old now and has
SEMD. She could not sit until she was almost 1 year old, and I felt...
Yes yes yes! Jacob is 2 1/2 and we have definitely felt the frustrations you are going through. I even considered looking into getting a handicapped parking...
Stacey, It could be that your periods of down times are the result of a bunch of little frustrations coming from all directions. I understand what you mean...
Hello, This is my second letter to this group.I guess that I felt the same way when I posted my first and only one few months ago.I also think it is absolutely...
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