Shawn, there is nothing I could say that would make the pain any easier so I will not try to do that. Just remember, we are all friends and friends are there...
Shawn, My prayers are with you and your family. Cristina ... __________________________________________________ Do you Yahoo!? Yahoo! Tax Center - forms,...
CAMP LITTLE PEOPLE 2003 June 6-8,2003 CampVictory, Millville, PA (Near Danville, PA) Camp Little People is a family weekend camping experiencing for LP ...
The prayers are working!!! Yesterday the outlook was grim and the doctor said she didn't think he would make it through the weekend. She said that his blood...
THANK GOD!! What a strong family. I find comfort when I hear that you get to hold him, I can only imagine what Joshua must feel when it happens. The prayers...
We are so thankful to hear of Josha's improvement. I know how you feel being able to hold him and don't you know it is a comfort to him. We will continue to...
Info on the EMPIRE STATE GAMES FOR THE PHYSICALLY CHALLENGED in May just added to the D2 site. www.geocities.com/lpad02 or www.lpad2.org. District 2 has lots...
Shawn, We continue to pray for you and Joshua. Never under-estimate the power of prayer, it is a truely amazing thing!!! Sean, Janine, Julian, Shelby and...
My son is only 23 mo. (achon.) - but I would like information about the camp for the upcoming years. During the weekend of CLP is anyone else there other than...
We will definitely keep praying!!! I look for updates every time I get a chance... and say a prayer each time. God Bless! Shelley (mother of Aulden - 23mo....
Michelle, Hi ! Camp LP is a family camp, so we have parents and sibblings, both LP and average size. During Camp Little People, we are the only group in/at...
Shelley, The seminars/workshops given by LPA Medical Board members are done at the yearly LPA conventions. Usually there's at least one general medical ...
Shawn, May God have his way in your family's life. He does things for a purpose even though we may not understand it when we are going through our trials and...
We got word from the doctors at Cedar Siani and the diagnosis is Hypochondrogenesis/SEDc. The SEDc is supposedly the milder form of the tow types of SED. There...
Pamela, I don't know anything about Chaynasse's condition but I do want to say don't worry about the doctors feelings. Any good doctor will welcome the...
Hi Shawn You may want to try joining another group aswell http://groups.yahoo.com/group/SED-Kniest/ I am a member also and very are very helpful. Love and Hugs...
she justs tood up and walked across the room. i am so happy, we weren't sure if she would ever be able to walk without her walker because of her legs but she...
Hello Group, I don't post to the list often, but I do read my email at least twice a day. I find all of the information and support so helpful. Here is my...
Anna from just north of Toronto,Canada. I have a six yr old acon whose currently in grade one. her teacher is concerned with her printing, it's almost...
Hi, I can only relate our experience with Ethan (3yr achon). We applied for insurance through Gerber and we did report that he has achondroplasia. We were...
Laura- I'm in a very similar "boat" with Aidan regarding insurance, and I'll be following the responses to this post. If you learn of anything beyond these...
Anna, Have you seen the "Fine Motor Pic" graphic here at the club? Click on "Files" in the sidebar menu to find this graphic (achon.jpg). One of the moms...
Ashley has been sick off and on since December. Ear infections, conjestion and viruses. Today I took her to the doctor, although I felt her ear was no longer...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
