It took 10 years to diagnosis my daughter, she was 6lb 5oz and 18 inches at birth always proportioned and after dropping off the chart (was 5th percentile...
hi i was just curious have any of your children ever hit the 25- 3o percent tile on(ah growth chart?). Im curious as blake has hit that point at 6 n a half...
Hello, My son has Cartilage Hair Hypoplasia (CHH) and wasn't diagnosed until 21 months of age, and yes he has delayed teeth and also very sparse blonde almost...
My daughter was born at 19 inches and then at a year was in the 75th percentile on AH charts. Then by Two and a half she was off the chart completely and...
My son will be 6 this month and also has to have his adenoids (been thru this one already with Autumn)out. He also has to get ear tubes. Wondering what kind of...
I need some insight into tubes. Ian got tubes in May and last week while at the Dr for ear infection, she said that they had started to extrude. I know that...
Hello! My daughter is on her 4th set of ear tubes... Its a very quick procedure and we have never had any complications... If anything once tubes are in,...
Me being the lucky one I am... I have been getting tubes in my left ear since I was 16 and they push out about every one to two years. I even had permanent...
Doc has had 4 sets of tubes already, and needs his 5th set! Our ENT wanted to put in the longer lasting tubes but Doc's ear drums and ear canals just are not...
Doc had a T&A done in Jan. plus new tubes put in. The only issue we really had was that he didn't want to drink after the surgery(but the kept him drugged with...
Some types of dwarfisms like Pseudoachondroplasia do not show physical signs until age 2 or 3. Skeletal dysplasias are best diagnosed by genetic testing from...
When we went for Simon's 6 month check-up after getting his tubes, Dr. Tunkel said that they had fallen out and were just laying in there, so he removed them....
Hello, my daughter is 7 and half years old and had first set of grommets 2 years ago, she had her second set this April along with adenoids removed. They had a...
We have been told tubes should last in place between 6-18 months so you may be unlucky and they may be on the way out sooner than later - Angela. To:...
Our ear , nose and throat doc , as well as our geneticist, suggested ear tubes that are longer and therefore stay in for a longer period of time. The longer...
Hi, Our daughter, Megan (almost 2.5 yrs), was diagnosed with achondroplasia. She was on the AH growth chart until she was at least 1.5 - 2 years, then fell...
I think my daughter was about 25 inches long around six months of age. She's 15 months old now and she's in the 75th pecentile for achons.... which I think is...
Thanks for all of your thoughtful responses. It's easy to start feeling like you are alone in all of these decisions, because the things we are talking about...
My daughter Ivy, 9 months old with Achondroplasia, has used the same infant car seat since she was born. It is a Chicco Keyfit 30. She has a mild kyphosis....
You can add a thin peice of foam to the back to protect her skin.They mean not to modfiy it by adding your own straps and such, but extra padding will help...
ethan finally got his mri yesterday (which went really well :)). i called the dr today to see what it showed and she mentioned narrowing of the aqueduct. she...
The car seat is irritating the skin on the back where the spine is curving. My son Brayden gets the same red spot on his low back after sitting in his car...
We also put in a foam piece in the back of Lilah's carseat. We put it under the actual car seat cover, and it worked great for her, and her back was no longer...
I have the same seat for my daughter Avalyn. She is 2 and a half years old with achondroplasia and it is still working great for her (she's only 21lbs and 26...
My son Troy, has OI, brittle bone disease, so we do alot of adapting, especially to make things softer. So yes you can adapt the carseat with a foam piece...
I am looking for information on doctors around the washington area that can help me out with my dwarfism. I am in pain all the time back neck leg pain. I go to...
Mariah, As we all are in pain, one way or the other, it might help to give some background as to you symptoms, where you have the pain, where it is the least...
hello I am having lower back pain. I have spinal stenosis I have a slipped disk. I am on meds for them all. my main purpose is to see if anyone knows any...
Assuming you are in Washington state, you should contact the Skeletal Health and Genetics Clinic at Seattle Children's. They may not be able to treat you...
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