Okay, so I'm not sure it this should be posted on this site or on the site for

parents with Dwarf children.



My husband when he was an infant 30 plus years ago was diagnosed with

achondroplasia. His parents did the best that they could with what they had but

in the end both of us find many things we would like to change.



We now have a child who is dwarf but come to find out so many years ago my

husband actually has a mild case of hypocondroplasia. He is 4'10 and his feet

and hands are proportionate to his height. The only thing that is effected are

his limbs. Now our child has the same thing and has no problems other then her

limbs as well.



Now, my problem is every time we talk about our child to the grandparents some

how some way it always leads back to it's because she has acondroplasia and that

is why she needs braces, or has a speech problem, etc... It pisses me off to no

end because FIRST she has hypocondroplasia and the ONLY thing that is effected

are her limbs. She needs braces because of genetics' on both sides. I needed

extensive work done on my mouth when I was a child so does that mean I am

dwarf???? I have a VERY small mouth and over crowding of the teeth again does

that mean I am dwarf?? I needed speech therapy as a child and my sister and

brother had tubes in there ears because they have small canals in the ears. Do

you see what I am getting at??? We are all average height and she could just as

easily gotten some of the problems she has with her teeth from me. I just seems

like I am constantly defending her and trying to get that HORRIBLE label off her

and my husband. There are other factors to the reason why she needs things done

to her, I mean she DOES have my genetics as well as her fathers.



So what I am I to do??? I feel like I am starting arguments all the time and

when ever I try to talk to them about it my mother in law gets defensive and

then in turn I get defensive with her. I hate to put this wedge between us but I

hate that every time something happens it is because she has acondroplasia (even

thought it is hypocondroplasia). Does anyone have any suggestions on how to

handle this?????

Thanks

Again, this is not really an appropriate topic for this list.  However, it IS

very much a topic for the adult dwarfism list which is full of people who give

very very good advice.



Please consider joining it.



  dwarfism-subscribe@yahoogroups.com



Good luck



Fred





   ----- Original Message -----

   From: jneclay

   To: parentsoflittlepeople2@yahoogroups.com

   Sent: Tuesday, June 30, 2009 7:55 PM

   Subject: [Parents of Little People 2] grandparetns/parents











   Okay, so I'm not sure it this should be posted on this site or on the site for

parents with Dwarf children.



   My husband when he was an infant 30 plus years ago was diagnosed with

achondroplasia. His parents did the best that they could with what they had but

in the end both of us find many things we would like to change.



   We now have a child who is dwarf but come to find out so many years ago my

husband actually has a mild case of hypocondroplasia. He is 4'10 and his feet

and hands are proportionate to his height. The only thing that is effected are

his limbs. Now our child has the same thing and has no problems other then her

limbs as well.



   Now, my problem is every time we talk about our child to the grandparents some

how some way it always leads back to it's because she has acondroplasia and that

is why she needs braces, or has a speech problem, etc... It pisses me off to no

end because FIRST she has hypocondroplasia and the ONLY thing that is effected

are her limbs. She needs braces because of genetics' on both sides. I needed

extensive work done on my mouth when I was a child so does that mean I am

dwarf???? I have a VERY small mouth and over crowding of the teeth again does

that mean I am dwarf?? I needed speech therapy as a child and my sister and

brother had tubes in there ears because they have small canals in the ears. Do

you see what I am getting at??? We are all average height and she could just as

easily gotten some of the problems she has with her teeth from me. I just seems

like I am constantly defending her and trying to get that HORRIBLE label off her

and my husband. There are other factors to the reason why she needs things done

to her, I mean she DOES have my genetics as well as her fathers.



   So what I am I to do??? I feel like I am starting arguments all the time and

when ever I try to talk to them about it my mother in law gets defensive and

then in turn I get defensive with her. I hate to put this wedge between us but I

hate that every time something happens it is because she has acondroplasia (even

thought it is hypocondroplasia). Does anyone have any suggestions on how to

handle this?????

   Thanks











[Non-text portions of this message have been removed]

Can u  email  me  at  mmriley07@...  and  i  can  answer  your  questions.

i  have  hypo



----------

Sent from AT&T's Wireless network using Mobile Email



------Original Message------

From: jneclay <jneclay@...>

To: <parentsoflittlepeople2@yahoogroups.com>

Date: Tue, Jun 30, 2009 06:55 PM

Subject: [Parents of Little People  2] grandparetns/parents



Okay, so I'm not sure it this should be posted on this site or on the site for

parents with Dwarf children.



My husband when he was an infant 30 plus years ago was diagnosed with

achondroplasia. His parents did the best that they could with what they had but

in the end both of us find many things we would like to change.



We now have a child who is dwarf but come to find out so many years ago my

husband actually has a mild case of hypocondroplasia. He is 4'10 and his feet

and hands are proportionate to his height. The only thing that is effected are

his limbs. Now our child has the same thing and has no problems other then her

limbs as well.



Now, my problem is every time we talk about our child to the grandparents some

how some way it always leads back to it's because she has acondroplasia and that

is why she needs braces, or has a speech problem, etc... It pisses me off to no

end because FIRST she has hypocondroplasia and the ONLY thing that is effected

are her limbs. She needs braces because of genetics' on both sides. I needed

extensive work done on my mouth when I was a child so does that mean I am

dwarf???? I have a VERY small mouth and over crowding of the teeth again does

that mean I am dwarf?? I needed speech therapy as a child and my sister and

brother had tubes in there ears because they have small canals in the ears. Do

you see what I am getting at??? We are all average height and she could just as

easily gotten some of the problems she has with her teeth from me. I just seems

like I am constantly defending her and trying to get that HORRIBLE label off her

and my husband. There are other factors to the reason why she needs things done

to her, I mean she DOES have my genetics as well as her fathers.



So what I am I to do??? I feel like I am starting arguments all the time and

when ever I try to talk to them about it my mother in law gets defensive and

then in turn I get defensive with her. I hate to put this wedge between us but I

hate that every time something happens it is because she has acondroplasia (even

thought it is hypocondroplasia). Does anyone have any suggestions on how to

handle this?????

Thanks

Maybe i have interpreted you wrong but i dont think achondroplasia is a HORRIBLE

LABEL. i am pround my daughter has achon and it certainly doesnt define her

sharon

Oh, it's horrible alright - to those who have never come across it before and

have to try to spell it:-)



A hell of a long name for such a small person:-)



There again not the worst of dwarf types.  Try saying and spelling "Spondio

Epiphiseal Dysplasia "!!!!!  Thank goodness we usually abreviate that and say

"SED" for 'short'.  Excuse the pun!



Chow



Fred, the short Short Achon!



   ----- Original Message -----

   From: sharon.sneddon

   To: parentsoflittlepeople2@yahoogroups.com

   Sent: Wednesday, July 01, 2009 11:36 PM

   Subject: Re: [Parents of Little People 2] grandparetns/parents











   Maybe i have interpreted you wrong but i dont think achondroplasia is a

HORRIBLE LABEL. i am pround my daughter has achon and it certainly doesnt define

her

   sharon











[Non-text portions of this message have been removed]

Fred, you really are crazy, in a good way. I do not know what started this

thread but as usual my two cents... worth nothing in this economy.......Try to

figure out what to call me.

To you, I am average height. To "average height" people I am really #&$^% 

SHORT!  To me I am 5', old and crabby!!!! P.S. Spell some of the terms?  I can

not even pronounce them.

Barbara, proud mother of two little people, whatever you want to call them. (but

be careful what you call them because I am old and crabby)

--- On Thu, 7/2/09, Fred Short <mail@...> wrote:





From: Fred Short <mail@...>

Subject: Re: [Parents of Little People 2] grandparetns/parents

To: parentsoflittlepeople2@yahoogroups.com

Date: Thursday, July 2, 2009, 10:04 AM

















Oh, it's horrible alright - to those who have never come across it before and

have to try to spell it:-)



A hell of a long name for such a small person:-)



There again not the worst of dwarf types. Try saying and spelling "Spondio

Epiphiseal Dysplasia "!!!!! Thank goodness we usually abreviate that and say

"SED" for 'short'. Excuse the pun!



Chow



Fred, the short Short Achon!



----- Original Message -----

From: sharon.sneddon

To: parentsoflittlepeop le2@yahoogroups. com

Sent: Wednesday, July 01, 2009 11:36 PM

Subject: Re: [Parents of Little People 2] grandparetns/ parents



Maybe i have interpreted you wrong but i dont think achondroplasia is a HORRIBLE

LABEL. i am pround my daughter has achon and it certainly doesnt define her

sharon



[Non-text portions of this message have been removed]

































[Non-text portions of this message have been removed]

--- In parentsoflittlepeople2@yahoogroups.com, aguirre barbara <blbaird2000@...>

wrote:

>

> Fred, you really are crazy, in a good way. I do not know what started this

thread but as usual my two cents... worth nothing in this economy.......Try to

figure out what to call me.

> To you, I am average height. To "average height" people I am really #&$^% 

SHORT!  To me I am 5', old and crabby!!!! P.S. Spell some of the terms?  I can

not even pronounce them.

> Barbara, proud mother of two little people, whatever you want to call them.

(but be careful what you call them because I am old and crabby)

> --- On Thu, 7/2/09, Fred Short <mail@...> wrote:

>

>

> From: Fred Short <mail@...>

> Subject: Re: [Parents of Little People 2] grandparetns/parents

> To: parentsoflittlepeople2@yahoogroups.com

> Date: Thursday, July 2, 2009, 10:04 AM

>

>

>

>

>

>

>

>

> Oh, it's horrible alright - to those who have never come across it before and

have to try to spell it:-)

>

> A hell of a long name for such a small person:-)

>

> There again not the worst of dwarf types. Try saying and spelling "Spondio

Epiphiseal Dysplasia "!!!!! Thank goodness we usually abreviate that and say

"SED" for 'short'. Excuse the pun!

>

> Chow

>

> Fred, the short Short Achon!

>

> ----- Original Message -----

> From: sharon.sneddon

> To: parentsoflittlepeop le2@yahoogroups. com

> Sent: Wednesday, July 01, 2009 11:36 PM

> Subject: Re: [Parents of Little People 2] grandparetns/ parents

>

> Maybe i have interpreted you wrong but i dont think achondroplasia is a

HORRIBLE LABEL. i am pround my daughter has achon and it certainly doesnt define

her

> sharon

>

> [Non-text portions of this message have been removed]

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> [Non-text portions of this message have been removed]

>

LOL! Barbara I love your posts. You always make me think, or smile. I

still say you are petite! Take care, jody!

--- In parentsoflittlepeople2@yahoogroups.com, aguirre barbara

<blbaird2000@...> wrote:

>

> Fred, you really are crazy, in a good way. I do not know what started

this thread but as usual my two cents... worth nothing in this

economy.......Try to figure out what to call me.

> To you, I am average height. To "average height" people I am really

#&$^%  SHORT!  To me I am 5', old and crabby!!!! P.S. Spell some of the

terms?  I can not even pronounce them.

> Barbara, proud mother of two little people, whatever you want to call

them. (but be careful what you call them because I am old and crabby)

> --- On Thu, 7/2/09, Fred Short mail@... wrote:

>

>

> From: Fred Short mail@...

> Subject: Re: [Parents of Little People 2] grandparetns/parents

> To: parentsoflittlepeople2@yahoogroups.com

> Date: Thursday, July 2, 2009, 10:04 AM

>

>

>

>

>

>

>

>

> Oh, it's horrible alright - to those who have never come across it

before and have to try to spell it:-)

>

> A hell of a long name for such a small person:-)

>

> There again not the worst of dwarf types. Try saying and spelling

"Spondio Epiphiseal Dysplasia "!!!!! Thank goodness we usually abreviate

that and say "SED" for 'short'. Excuse the pun!

>

> Chow

>

> Fred, the short Short Achon!

>

> ----- Original Message -----

> From: sharon.sneddon

> To: parentsoflittlepeop le2@yahoogroups. com

> Sent: Wednesday, July 01, 2009 11:36 PM

> Subject: Re: [Parents of Little People 2] grandparetns/ parents

>

> Maybe i have interpreted you wrong but i dont think achondroplasia is

a HORRIBLE LABEL. i am pround my daughter has achon and it certainly

doesnt define her

> sharon

>

> [Non-text portions of this message have been removed]

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> [Non-text portions of this message have been removed]

>

Ey, now hang on here one cotton pickin minute LITTLE Barbara!!!!!!  Quit

pickin on us little folks by telling us we is crazy:-)))))



Second, size is relative!!!!!!  As any woman will tell you!



It depends on whom I am having speaks with as to how tall or short I am!



If, like you, I'm in a crabby mood, then I am NOT small!!!!!  I am an

AVERAGE SIZED Achondroplasic!!!!



If I'm in a good mood, then I'm the short Short who's family tree is a

Bonsai!!!!!



As for you, Hmmmmmm, to me yer a bloody giant at a whole 25% taller than

me!!!!!



Fred, neither one thing nor the other:-)



----- Original Message -----

From: aguirre barbara

To: parentsoflittlepeople2@yahoogroups.com

Sent: Thursday, July 02, 2009 4:06 PM

Subject: Re: [Parents of Little People 2] grandparetns/parents



Fred, you really are crazy, in a good way. I do not know what started this

thread but as usual my two cents... worth nothing in this economy.......Try

to figure out what to call me.

To you, I am average height. To "average height" people I am really #&$^%

SHORT!  To me I am 5', old and crabby!!!! P.S. Spell some of the terms?  I

can not even pronounce them.

Barbara, proud mother of two little people, whatever you want to call them.

(but be careful what you call them because I am old and crabby)







[Non-text portions of this message have been removed]

ARR matey, make her walk the plank!  and you is crazy but I is crazier..... it

is the only way I stay sane in this world.



--- On Thu, 7/2/09, Fred Short <mail@...> wrote:





From: Fred Short <mail@...>

Subject: Re: [Parents of Little People 2] grandparetns/parents

To: parentsoflittlepeople2@yahoogroups.com

Date: Thursday, July 2, 2009, 11:54 AM

















Ey, now hang on here one cotton pickin minute LITTLE Barbara!!!!! ! Quit

pickin on us little folks by telling us we is crazy:-)))))



Second, size is relative!!!! !! As any woman will tell you!



It depends on whom I am having speaks with as to how tall or short I am!



If, like you, I'm in a crabby mood, then I am NOT small!!!!! I am an

AVERAGE SIZED Achondroplasic! !!!



If I'm in a good mood, then I'm the short Short who's family tree is a

Bonsai!!!!!



As for you, Hmmmmmm, to me yer a bloody giant at a whole 25% taller than

me!!!!!



Fred, neither one thing nor the other:-)



----- Original Message -----

From: aguirre barbara

To: parentsoflittlepeop le2@yahoogroups. com

Sent: Thursday, July 02, 2009 4:06 PM

Subject: Re: [Parents of Little People 2] grandparetns/ parents



Fred, you really are crazy, in a good way. I do not know what started this

thread but as usual my two cents... worth nothing in this economy..... ..Try

to figure out what to call me.

To you, I am average height. To "average height" people I am really #&$^%

SHORT! To me I am 5', old and crabby!!!! P.S. Spell some of the terms? I

can not even pronounce them.

Barbara, proud mother of two little people, whatever you want to call them.

(but be careful what you call them because I am old and crabby)



[Non-text portions of this message have been removed]

































[Non-text portions of this message have been removed]

P.S. I have been called many, many things in my life but you have managed a

first. No one has ever called me a giant... I will treasure that one! :)



--- On Thu, 7/2/09, Fred Short <mail@...> wrote:





From: Fred Short <mail@...>

Subject: Re: [Parents of Little People 2] grandparetns/parents

To: parentsoflittlepeople2@yahoogroups.com

Date: Thursday, July 2, 2009, 11:54 AM

















Ey, now hang on here one cotton pickin minute LITTLE Barbara!!!!! ! Quit

pickin on us little folks by telling us we is crazy:-)))))



Second, size is relative!!!! !! As any woman will tell you!



It depends on whom I am having speaks with as to how tall or short I am!



If, like you, I'm in a crabby mood, then I am NOT small!!!!! I am an

AVERAGE SIZED Achondroplasic! !!!



If I'm in a good mood, then I'm the short Short who's family tree is a

Bonsai!!!!!



As for you, Hmmmmmm, to me yer a bloody giant at a whole 25% taller than

me!!!!!



Fred, neither one thing nor the other:-)



----- Original Message -----

From: aguirre barbara

To: parentsoflittlepeop le2@yahoogroups. com

Sent: Thursday, July 02, 2009 4:06 PM

Subject: Re: [Parents of Little People 2] grandparetns/ parents



Fred, you really are crazy, in a good way. I do not know what started this

thread but as usual my two cents... worth nothing in this economy..... ..Try

to figure out what to call me.

To you, I am average height. To "average height" people I am really #&$^%

SHORT! To me I am 5', old and crabby!!!! P.S. Spell some of the terms? I

can not even pronounce them.

Barbara, proud mother of two little people, whatever you want to call them.

(but be careful what you call them because I am old and crabby)



[Non-text portions of this message have been removed]

































[Non-text portions of this message have been removed]

I can relate to overbearing in laws. I have one that shakes her head anytime

something comes up. Unfortunately, I will never be able to change her mind about

certain things when it comes to either of my kids. So, I do my best to let

things role off my back these days. In the past we have had many ill words but I

have realized it doesn't help or change anything. You are right though to point

out that dwarfs have many issues that average height kids do as well that are

not really soley attributed to their stature even if their risk is heightened.

Good luck. As moms I think we need to grow thick skin, take the advice we

solicit and leave the rest behind.

 

Gina (mom to Jackie 11 month achon and Anthony 4 yr ah)



--- On Tue, 6/30/09, jneclay <jneclay@...> wrote:





From: jneclay <jneclay@...>

Subject: [Parents of Little People 2] grandparetns/parents

To: parentsoflittlepeople2@yahoogroups.com

Date: Tuesday, June 30, 2009, 2:55 PM

















Okay, so I'm not sure it this should be posted on this site or on the site for

parents with Dwarf children.



My husband when he was an infant 30 plus years ago was diagnosed with

achondroplasia. His parents did the best that they could with what they had but

in the end both of us find many things we would like to change.



We now have a child who is dwarf but come to find out so many years ago my

husband actually has a mild case of hypocondroplasia. He is 4'10 and his feet

and hands are proportionate to his height. The only thing that is effected are

his limbs. Now our child has the same thing and has no problems other then her

limbs as well.



Now, my problem is every time we talk about our child to the grandparents some

how some way it always leads back to it's because she has acondroplasia and that

is why she needs braces, or has a speech problem, etc... It pisses me off to no

end because FIRST she has hypocondroplasia and the ONLY thing that is effected

are her limbs. She needs braces because of genetics' on both sides. I needed

extensive work done on my mouth when I was a child so does that mean I am

dwarf???? I have a VERY small mouth and over crowding of the teeth again does

that mean I am dwarf?? I needed speech therapy as a child and my sister and

brother had tubes in there ears because they have small canals in the ears. Do

you see what I am getting at??? We are all average height and she could just as

easily gotten some of the problems she has with her teeth from me. I just seems

like I am constantly defending her and trying to get that HORRIBLE label off her

and my husband. There

  are other factors to the reason why she needs things done to her, I mean she

DOES have my genetics as well as her fathers.



So what I am I to do??? I feel like I am starting arguments all the time and

when ever I try to talk to them about it my mother in law gets defensive and

then in turn I get defensive with her. I hate to put this wedge between us but I

hate that every time something happens it is because she has acondroplasia (even

thought it is hypocondroplasia) . Does anyone have any suggestions on how to

handle this?????

Thanks







































[Non-text portions of this message have been removed]

I  understand about  what  u  all  are  saying  my  son  who  is  1 /11  months 

old we both  have  hypo i  was  not  tested  until  i  was 23  my  parents 

thought i  was  just  short after i  had  he  was  tested  at  a  month  old  so

growing up  thinking  i  was  just  short i  never  knew  that  i  was  dwarfed 

mariah and  patrick



----------

Sent from AT&T's Wireless network using Mobile Email



------Original Message------

From: Tony D'Angelo <themeatballs2@...>

To: <parentsoflittlepeople2@yahoogroups.com>

Date: Fri, Jul 3, 2009 12:30 PM

Subject: Re: [Parents of Little People  2] grandparetns/parents



I can relate to overbearing in laws. I have one that shakes her head anytime

something comes up. Unfortunately, I will never be able to change her mind about

certain things when it comes to either of my kids. So, I do my best to let

things role off my back these days. In the past we have had many ill words but I

have realized it doesn't help or change anything. You are right though to point

out that dwarfs have many issues that average height kids do as well that are

not really soley attributed to their stature even if their risk is heightened.

Good luck. As moms I think we need to grow thick skin, take the advice we

solicit and leave the rest behind.

 

Gina (mom to Jackie 11 month achon and Anthony 4 yr ah)



--- On Tue, 6/30/09, jneclay <jneclay@...> wrote:





From: jneclay <jneclay@...>

Subject: [Parents of Little People 2] grandparetns/parents

To: parentsoflittlepeople2@yahoogroups.com

Date: Tuesday, June 30, 2009, 2:55 PM

















Okay, so I'm not sure it this should be posted on this site or on the site for

parents with Dwarf children.



My husband when he was an infant 30 plus years ago was diagnosed with

achondroplasia. His parents did the best that they could with what they had but

in the end both of us find many things we would like to change.



We now have a child who is dwarf but come to find out so many years ago my

husband actually has a mild case of hypocondroplasia. He is 4'10 and his feet

and hands are proportionate to his height. The only thing that is effected are

his limbs. Now our child has the same thing and has no problems other then her

limbs as well.



Now, my problem is every time we talk about our child to the grandparents some

how some way it always leads back to it's because she has acondroplasia and that

is why she needs braces, or has a speech problem, etc... It pisses me off to no

end because FIRST she has hypocondroplasia and the ONLY thing that is effected

are her limbs. She needs braces because of genetics' on both sides. I needed

extensive work done on my mouth when I was a child so does that mean I am

dwarf???? I have a VERY small mouth and over crowding of the teeth again does

that mean I am dwarf?? I needed speech therapy as a child and my sister and

brother had tubes in there ears because they have small canals in the ears. Do

you see what I am getting at??? We are all average height and she could just as

easily gotten some of the problems she has with her teeth from me. I just seems

like I am constantly defending her and trying to get that HORRIBLE label off her

and my husband. There

  are other factors to the reason why she needs things done to her, I mean she

DOES have my genetics as well as her fathers.



So what I am I to do??? I feel like I am starting arguments all the time and

when ever I try to talk to them about it my mother in law gets defensive and

then in turn I get defensive with her. I hate to put this wedge between us but I

hate that every time something happens it is because she has acondroplasia (even

thought it is hypocondroplasia) . Does anyone have any suggestions on how to

handle this?????

Thanks







































[Non-text portions of this message have been removed]

As you have found, relatives can be THE most negative of all people.



When an aunt heard I was going into teaching, the first thing she said was

"How's he going to reach the blackboard"?



As it happens, I used to write from the top to the bottom of the blackboard. 

Some 6' high!  AND, my feet never left the floor!



Work THAT one out:-)))))



Oh, and the medical profession are not imune either!  Lin and I were born six

years apart but the same so called 'specialist' told both our mothers when we

were born that we would be imbiciles!



Sadly, this so called specialist died before Lin and I could get to her and say,

in a bloody stupid voice, "Ellooooo weeee are the imbiciles "  Dam, but we never

got our revenge:-)))))



Fred



   ----- Original Message -----

   From: Tony D'Angelo

   To: parentsoflittlepeople2@yahoogroups.com

   Sent: Friday, July 03, 2009 8:30 PM

   Subject: Re: [Parents of Little People 2] grandparetns/parents











   I can relate to overbearing in laws. I have one that shakes her head anytime

something comes up. Unfortunately, I will never be able to change her mind about

certain things when it comes to either of my kids. So, I do my best to let

things role off my back these days. In the past we have had many ill words but I

have realized it doesn't help or change anything. You are right though to point

out that dwarfs have many issues that average height kids do as well that are

not really soley attributed to their stature even if their risk is heightened.

Good luck. As moms I think we need to grow thick skin, take the advice we

solicit and leave the rest behind.



   Gina (mom to Jackie 11 month achon and Anthony 4 yr ah)



   --- On Tue, 6/30/09, jneclay <jneclay@...> wrote:



   From: jneclay <jneclay@...>

   Subject: [Parents of Little People 2] grandparetns/parents

   To: parentsoflittlepeople2@yahoogroups.com

   Date: Tuesday, June 30, 2009, 2:55 PM



   Okay, so I'm not sure it this should be posted on this site or on the site for

parents with Dwarf children.



   My husband when he was an infant 30 plus years ago was diagnosed with

achondroplasia. His parents did the best that they could with what they had but

in the end both of us find many things we would like to change.



   We now have a child who is dwarf but come to find out so many years ago my

husband actually has a mild case of hypocondroplasia. He is 4'10 and his feet

and hands are proportionate to his height. The only thing that is effected are

his limbs. Now our child has the same thing and has no problems other then her

limbs as well.



   Now, my problem is every time we talk about our child to the grandparents some

how some way it always leads back to it's because she has acondroplasia and that

is why she needs braces, or has a speech problem, etc... It pisses me off to no

end because FIRST she has hypocondroplasia and the ONLY thing that is effected

are her limbs. She needs braces because of genetics' on both sides. I needed

extensive work done on my mouth when I was a child so does that mean I am

dwarf???? I have a VERY small mouth and over crowding of the teeth again does

that mean I am dwarf?? I needed speech therapy as a child and my sister and

brother had tubes in there ears because they have small canals in the ears. Do

you see what I am getting at??? We are all average height and she could just as

easily gotten some of the problems she has with her teeth from me. I just seems

like I am constantly defending her and trying to get that HORRIBLE label off her

and my husband. There

   are other factors to the reason why she needs things done to her, I mean she

DOES have my genetics as well as her fathers.



   So what I am I to do??? I feel like I am starting arguments all the time and

when ever I try to talk to them about it my mother in law gets defensive and

then in turn I get defensive with her. I hate to put this wedge between us but I

hate that every time something happens it is because she has acondroplasia (even

thought it is hypocondroplasia) . Does anyone have any suggestions on how to

handle this?????

   Thanks



   [Non-text portions of this message have been removed]











[Non-text portions of this message have been removed]

Fred, that is just too bad you were unable to get to that specialist in

time...we too were told similar stuff just 2 years ago. Guess

they(drs/specialists) never learn!!!!



Linda=grandmother to Chad(d)(AH), Matthew(AH) almost 5 and Michael(Achon) 30

months





--- In parentsoflittlepeople2@yahoogroups.com, "Fred Short" <mail@...> wrote:

>

> As you have found, relatives can be THE most negative of all people.

>

> When an aunt heard I was going into teaching, the first thing she said was

"How's he going to reach the blackboard"?

>

> As it happens, I used to write from the top to the bottom of the blackboard. 

Some 6' high!  AND, my feet never left the floor!

>

> Work THAT one out:-)))))

>

> Oh, and the medical profession are not imune either!  Lin and I were born six

years apart but the same so called 'specialist' told both our mothers when we

were born that we would be imbiciles!

>

> Sadly, this so called specialist died before Lin and I could get to her and

say, in a bloody stupid voice, "Ellooooo weeee are the imbiciles "  Dam, but we

never got our revenge:-)))))

>

> Fred

>

>   ----- Original Message -----

>   From: Tony D'Angelo

>   To: parentsoflittlepeople2@yahoogroups.com

>   Sent: Friday, July 03, 2009 8:30 PM

>   Subject: Re: [Parents of Little People 2] grandparetns/parents

>

>

>

>

>

>   I can relate to overbearing in laws. I have one that shakes her head anytime

something comes up. Unfortunately, I will never be able to change her mind about

certain things when it comes to either of my kids. So, I do my best to let

things role off my back these days. In the past we have had many ill words but I

have realized it doesn't help or change anything. You are right though to point

out that dwarfs have many issues that average height kids do as well that are

not really soley attributed to their stature even if their risk is heightened.

Good luck. As moms I think we need to grow thick skin, take the advice we

solicit and leave the rest behind.

>

>   Gina (mom to Jackie 11 month achon and Anthony 4 yr ah)

>

>   --- On Tue, 6/30/09, jneclay <jneclay@...> wrote:

>

>   From: jneclay <jneclay@...>

>   Subject: [Parents of Little People 2] grandparetns/parents

>   To: parentsoflittlepeople2@yahoogroups.com

>   Date: Tuesday, June 30, 2009, 2:55 PM

>

>   Okay, so I'm not sure it this should be posted on this site or on the site

for parents with Dwarf children.

>

>   My husband when he was an infant 30 plus years ago was diagnosed with

achondroplasia. His parents did the best that they could with what they had but

in the end both of us find many things we would like to change.

>

>   We now have a child who is dwarf but come to find out so many years ago my

husband actually has a mild case of hypocondroplasia. He is 4'10 and his feet

and hands are proportionate to his height. The only thing that is effected are

his limbs. Now our child has the same thing and has no problems other then her

limbs as well.

>

>   Now, my problem is every time we talk about our child to the grandparents

some how some way it always leads back to it's because she has acondroplasia and

that is why she needs braces, or has a speech problem, etc... It pisses me off

to no end because FIRST she has hypocondroplasia and the ONLY thing that is

effected are her limbs. She needs braces because of genetics' on both sides. I

needed extensive work done on my mouth when I was a child so does that mean I am

dwarf???? I have a VERY small mouth and over crowding of the teeth again does

that mean I am dwarf?? I needed speech therapy as a child and my sister and

brother had tubes in there ears because they have small canals in the ears. Do

you see what I am getting at??? We are all average height and she could just as

easily gotten some of the problems she has with her teeth from me. I just seems

like I am constantly defending her and trying to get that HORRIBLE label off her

and my husband. There

>   are other factors to the reason why she needs things done to her, I mean she

DOES have my genetics as well as her fathers.

>

>   So what I am I to do??? I feel like I am starting arguments all the time and

when ever I try to talk to them about it my mother in law gets defensive and

then in turn I get defensive with her. I hate to put this wedge between us but I

hate that every time something happens it is because she has acondroplasia (even

thought it is hypocondroplasia) . Does anyone have any suggestions on how to

handle this?????

>   Thanks

>

>   [Non-text portions of this message have been removed]

>

>

>

>

>

> [Non-text portions of this message have been removed]

>

Dear and sweet Fred, ( okay I won't tell anyone that you are not really an "old

meanie"),

 First, they make a really neat chalk holder stick that reaches high up so you

don't have to.

Second, I don't know if you have read my story but the "specialist" told me my

first, older, daughter would be born dead. I won't go into the story but she is

now 15. She will be 16 in August, she graduates High School next year, before

she turns 17. My younger daughter just turned 13. She missed almost 20% of the

school year due to illness. Her grades for year end suprised even me, her

fiercely devoted mother. She will be in honors classes next year, 8th grade and

will receive High School credit for the courses.

We may be small in body but we more than make up for it in brains and

stubborness!

Barbara





--- On Sat, 7/4/09, Fred Short <mail@...> wrote:





From: Fred Short <mail@...>

Subject: [Parents of Little People 2] grandparetns/parents

To: parentsoflittlepeople2@yahoogroups.com

Date: Saturday, July 4, 2009, 8:01 AM

















As you have found, relatives can be THE most negative of all people.



When an aunt heard I was going into teaching, the first thing she said was

"How's he going to reach the blackboard"?



As it happens, I used to write from the top to the bottom of the blackboard.

Some 6' high! AND, my feet never left the floor!



Work THAT one out:-)))))



Oh, and the medical profession are not imune either! Lin and I were born six

years apart but the same so called 'specialist' told both our mothers when we

were born that we would be imbiciles!



Sadly, this so called specialist died before Lin and I could get to her and say,

in a bloody stupid voice, "Ellooooo weeee are the imbiciles " Dam, but we never

got our revenge:-))) ))



Fred



----- Original Message -----

From: Tony D'Angelo

To: parentsoflittlepeop le2@yahoogroups. com

Sent: Friday, July 03, 2009 8:30 PM

Subject: Re: [Parents of Little People 2] grandparetns/ parents



I can relate to overbearing in laws. I have one that shakes her head anytime

something comes up. Unfortunately, I will never be able to change her mind about

certain things when it comes to either of my kids. So, I do my best to let

things role off my back these days. In the past we have had many ill words but I

have realized it doesn't help or change anything. You are right though to point

out that dwarfs have many issues that average height kids do as well that are

not really soley attributed to their stature even if their risk is heightened.

Good luck. As moms I think we need to grow thick skin, take the advice we

solicit and leave the rest behind.



Gina (mom to Jackie 11 month achon and Anthony 4 yr ah)



--- On Tue, 6/30/09, jneclay <jneclay@yahoo. com> wrote:



From: jneclay <jneclay@yahoo. com>

Subject: [Parents of Little People 2] grandparetns/ parents

To: parentsoflittlepeop le2@yahoogroups. com

Date: Tuesday, June 30, 2009, 2:55 PM



Okay, so I'm not sure it this should be posted on this site or on the site for

parents with Dwarf children.



My husband when he was an infant 30 plus years ago was diagnosed with

achondroplasia. His parents did the best that they could with what they had but

in the end both of us find many things we would like to change.



We now have a child who is dwarf but come to find out so many years ago my

husband actually has a mild case of hypocondroplasia. He is 4'10 and his feet

and hands are proportionate to his height. The only thing that is effected are

his limbs. Now our child has the same thing and has no problems other then her

limbs as well.



Now, my problem is every time we talk about our child to the grandparents some

how some way it always leads back to it's because she has acondroplasia and that

is why she needs braces, or has a speech problem, etc... It pisses me off to no

end because FIRST she has hypocondroplasia and the ONLY thing that is effected

are her limbs. She needs braces because of genetics' on both sides. I needed

extensive work done on my mouth when I was a child so does that mean I am

dwarf???? I have a VERY small mouth and over crowding of the teeth again does

that mean I am dwarf?? I needed speech therapy as a child and my sister and

brother had tubes in there ears because they have small canals in the ears. Do

you see what I am getting at??? We are all average height and she could just as

easily gotten some of the problems she has with her teeth from me. I just seems

like I am constantly defending her and trying to get that HORRIBLE label off her

and my husband. There

are other factors to the reason why she needs things done to her, I mean she

DOES have my genetics as well as her fathers.



So what I am I to do??? I feel like I am starting arguments all the time and

when ever I try to talk to them about it my mother in law gets defensive and

then in turn I get defensive with her. I hate to put this wedge between us but I

hate that every time something happens it is because she has acondroplasia (even

thought it is hypocondroplasia) . Does anyone have any suggestions on how to

handle this?????

Thanks



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]

































[Non-text portions of this message have been removed]

Sorry Barbara, yer wrong.  The ONLY thing I held in my hand was the chalk.



As for so called 'experts', I always encourage folk to go with their gut

feeling.



Fred



   ----- Original Message -----

   From: aguirre barbara

   To: parentsoflittlepeople2@yahoogroups.com

   Sent: Saturday, July 04, 2009 3:16 PM

   Subject: Re: [Parents of Little People 2] grandparetns/parents











   Dear and sweet Fred, ( okay I won't tell anyone that you are not really an

"old meanie"),

    First, they make a really neat chalk holder stick that reaches high up so you

don't have to.

   Second, I don't know if you have read my story but the "specialist" told me my

first, older, daughter would be born dead. I won't go into the story but she is

now 15. She will be 16 in August, she graduates High School next year, before

she turns 17. My younger daughter just turned 13. She missed almost 20% of the

school year due to illness. Her grades for year end suprised even me, her

fiercely devoted mother. She will be in honors classes next year, 8th grade and

will receive High School credit for the courses.

   We may be small in body but we more than make up for it in brains and

stubborness!

   Barbara



   --- On Sat, 7/4/09, Fred Short <mail@...> wrote:



   From: Fred Short <mail@...>

   Subject: [Parents of Little People 2] grandparetns/parents

   To: parentsoflittlepeople2@yahoogroups.com

   Date: Saturday, July 4, 2009, 8:01 AM



   As you have found, relatives can be THE most negative of all people.



   When an aunt heard I was going into teaching, the first thing she said was

"How's he going to reach the blackboard"?



   As it happens, I used to write from the top to the bottom of the blackboard.

Some 6' high! AND, my feet never left the floor!



   Work THAT one out:-)))))



   Oh, and the medical profession are not imune either! Lin and I were born six

years apart but the same so called 'specialist' told both our mothers when we

were born that we would be imbiciles!



   Sadly, this so called specialist died before Lin and I could get to her and

say, in a bloody stupid voice, "Ellooooo weeee are the imbiciles " Dam, but we

never got our revenge:-))) ))



   Fred



   ----- Original Message -----

   From: Tony D'Angelo

   To: parentsoflittlepeop le2@yahoogroups. com

   Sent: Friday, July 03, 2009 8:30 PM

   Subject: Re: [Parents of Little People 2] grandparetns/ parents



   I can relate to overbearing in laws. I have one that shakes her head anytime

something comes up. Unfortunately, I will never be able to change her mind about

certain things when it comes to either of my kids. So, I do my best to let

things role off my back these days. In the past we have had many ill words but I

have realized it doesn't help or change anything. You are right though to point

out that dwarfs have many issues that average height kids do as well that are

not really soley attributed to their stature even if their risk is heightened.

Good luck. As moms I think we need to grow thick skin, take the advice we

solicit and leave the rest behind.



   Gina (mom to Jackie 11 month achon and Anthony 4 yr ah)



   --- On Tue, 6/30/09, jneclay <jneclay@yahoo. com> wrote:



   From: jneclay <jneclay@yahoo. com>

   Subject: [Parents of Little People 2] grandparetns/ parents

   To: parentsoflittlepeop le2@yahoogroups. com

   Date: Tuesday, June 30, 2009, 2:55 PM



   Okay, so I'm not sure it this should be posted on this site or on the site for

parents with Dwarf children.



   My husband when he was an infant 30 plus years ago was diagnosed with

achondroplasia. His parents did the best that they could with what they had but

in the end both of us find many things we would like to change.



   We now have a child who is dwarf but come to find out so many years ago my

husband actually has a mild case of hypocondroplasia. He is 4'10 and his feet

and hands are proportionate to his height. The only thing that is effected are

his limbs. Now our child has the same thing and has no problems other then her

limbs as well.



   Now, my problem is every time we talk about our child to the grandparents some

how some way it always leads back to it's because she has acondroplasia and that

is why she needs braces, or has a speech problem, etc... It pisses me off to no

end because FIRST she has hypocondroplasia and the ONLY thing that is effected

are her limbs. She needs braces because of genetics' on both sides. I needed

extensive work done on my mouth when I was a child so does that mean I am

dwarf???? I have a VERY small mouth and over crowding of the teeth again does

that mean I am dwarf?? I needed speech therapy as a child and my sister and

brother had tubes in there ears because they have small canals in the ears. Do

you see what I am getting at??? We are all average height and she could just as

easily gotten some of the problems she has with her teeth from me. I just seems

like I am constantly defending her and trying to get that HORRIBLE label off her

and my husband. There

   are other factors to the reason why she needs things done to her, I mean she

DOES have my genetics as well as her fathers.



   So what I am I to do??? I feel like I am starting arguments all the time and

when ever I try to talk to them about it my mother in law gets defensive and

then in turn I get defensive with her. I hate to put this wedge between us but I

hate that every time something happens it is because she has acondroplasia (even

thought it is hypocondroplasia) . Does anyone have any suggestions on how to

handle this?????

   Thanks



   [Non-text portions of this message have been removed]



   [Non-text portions of this message have been removed]



   [Non-text portions of this message have been removed]











[Non-text portions of this message have been removed]

really long chalk? Moveable blackboard? Go-Go-Gadget arms?



--- On Sat, 7/4/09, Fred Short <mail@...> wrote:





From: Fred Short <mail@...>

Subject: Re: [Parents of Little People 2] grandparetns/parents

To: parentsoflittlepeople2@yahoogroups.com

Date: Saturday, July 4, 2009, 10:45 AM

















Sorry Barbara, yer wrong. The ONLY thing I held in my hand was the chalk.



As for so called 'experts', I always encourage folk to go with their gut

feeling.



Fred



----- Original Message -----

From: aguirre barbara

To: parentsoflittlepeop le2@yahoogroups. com

Sent: Saturday, July 04, 2009 3:16 PM

Subject: Re: [Parents of Little People 2] grandparetns/ parents



Dear and sweet Fred, ( okay I won't tell anyone that you are not really an "old

meanie"),

First, they make a really neat chalk holder stick that reaches high up so you

don't have to.

Second, I don't know if you have read my story but the "specialist" told me my

first, older, daughter would be born dead. I won't go into the story but she is

now 15. She will be 16 in August, she graduates High School next year, before

she turns 17. My younger daughter just turned 13. She missed almost 20% of the

school year due to illness. Her grades for year end suprised even me, her

fiercely devoted mother. She will be in honors classes next year, 8th grade and

will receive High School credit for the courses.

We may be small in body but we more than make up for it in brains and

stubborness!

Barbara



--- On Sat, 7/4/09, Fred Short <mail@erickshort. fsnet.co. uk> wrote:



From: Fred Short <mail@erickshort. fsnet.co. uk>

Subject: [Parents of Little People 2] grandparetns/ parents

To: parentsoflittlepeop le2@yahoogroups. com

Date: Saturday, July 4, 2009, 8:01 AM



As you have found, relatives can be THE most negative of all people.



When an aunt heard I was going into teaching, the first thing she said was

"How's he going to reach the blackboard"?



As it happens, I used to write from the top to the bottom of the blackboard.

Some 6' high! AND, my feet never left the floor!



Work THAT one out:-)))))



Oh, and the medical profession are not imune either! Lin and I were born six

years apart but the same so called 'specialist' told both our mothers when we

were born that we would be imbiciles!



Sadly, this so called specialist died before Lin and I could get to her and say,

in a bloody stupid voice, "Ellooooo weeee are the imbiciles " Dam, but we never

got our revenge:-))) ))



Fred



----- Original Message -----

From: Tony D'Angelo

To: parentsoflittlepeop le2@yahoogroups. com

Sent: Friday, July 03, 2009 8:30 PM

Subject: Re: [Parents of Little People 2] grandparetns/ parents



I can relate to overbearing in laws. I have one that shakes her head anytime

something comes up. Unfortunately, I will never be able to change her mind about

certain things when it comes to either of my kids. So, I do my best to let

things role off my back these days. In the past we have had many ill words but I

have realized it doesn't help or change anything. You are right though to point

out that dwarfs have many issues that average height kids do as well that are

not really soley attributed to their stature even if their risk is heightened.

Good luck. As moms I think we need to grow thick skin, take the advice we

solicit and leave the rest behind.



Gina (mom to Jackie 11 month achon and Anthony 4 yr ah)



--- On Tue, 6/30/09, jneclay <jneclay@yahoo. com> wrote:



From: jneclay <jneclay@yahoo. com>

Subject: [Parents of Little People 2] grandparetns/ parents

To: parentsoflittlepeop le2@yahoogroups. com

Date: Tuesday, June 30, 2009, 2:55 PM



Okay, so I'm not sure it this should be posted on this site or on the site for

parents with Dwarf children.



My husband when he was an infant 30 plus years ago was diagnosed with

achondroplasia. His parents did the best that they could with what they had but

in the end both of us find many things we would like to change.



We now have a child who is dwarf but come to find out so many years ago my

husband actually has a mild case of hypocondroplasia. He is 4'10 and his feet

and hands are proportionate to his height. The only thing that is effected are

his limbs. Now our child has the same thing and has no problems other then her

limbs as well.



Now, my problem is every time we talk about our child to the grandparents some

how some way it always leads back to it's because she has acondroplasia and that

is why she needs braces, or has a speech problem, etc... It pisses me off to no

end because FIRST she has hypocondroplasia and the ONLY thing that is effected

are her limbs. She needs braces because of genetics' on both sides. I needed

extensive work done on my mouth when I was a child so does that mean I am

dwarf???? I have a VERY small mouth and over crowding of the teeth again does

that mean I am dwarf?? I needed speech therapy as a child and my sister and

brother had tubes in there ears because they have small canals in the ears. Do

you see what I am getting at??? We are all average height and she could just as

easily gotten some of the problems she has with her teeth from me. I just seems

like I am constantly defending her and trying to get that HORRIBLE label off her

and my husband. There

are other factors to the reason why she needs things done to her, I mean she

DOES have my genetics as well as her fathers.



So what I am I to do??? I feel like I am starting arguments all the time and

when ever I try to talk to them about it my mother in law gets defensive and

then in turn I get defensive with her. I hate to put this wedge between us but I

hate that every time something happens it is because she has acondroplasia (even

thought it is hypocondroplasia) . Does anyone have any suggestions on how to

handle this?????

Thanks



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]

































[Non-text portions of this message have been removed]

Smarty pants:-)  Roller blackboard!  Really ancient, BUT, I commandeered it and

as I moved classrooms (on a yearly basis) I took it with me.



The thing is, it was a hurdle, but we become VERY efficient at jumping them!



It is one area (of numerous) where parents of small statured children will never

ever cease to marvel at - how the children DO get over obstacles.



Oh, and I also did all my own wall display!  At the normal height for 'average'

size people.



And Barbara, we are gonna have to stop meeting like this - folks will talk:-)



Fred





   ----- Original Message -----

   From: aguirre barbara

   To: parentsoflittlepeople2@yahoogroups.com

   Sent: Saturday, July 04, 2009 5:37 PM

   Subject: Re: [Parents of Little People 2] grandparetns/parents











   really long chalk? Moveable blackboard? Go-Go-Gadget arms?



   --- On Sat, 7/4/09, Fred Short <mail@...> wrote:



   From: Fred Short <mail@...>

   Subject: Re: [Parents of Little People 2] grandparetns/parents

   To: parentsoflittlepeople2@yahoogroups.com

   Date: Saturday, July 4, 2009, 10:45 AM



   Sorry Barbara, yer wrong. The ONLY thing I held in my hand was the chalk.



   As for so called 'experts', I always encourage folk to go with their gut

feeling.



   Fred



   ----- Original Message -----

   From: aguirre barbara

   To: parentsoflittlepeop le2@yahoogroups. com

   Sent: Saturday, July 04, 2009 3:16 PM

   Subject: Re: [Parents of Little People 2] grandparetns/ parents



   Dear and sweet Fred, ( okay I won't tell anyone that you are not really an

"old meanie"),

   First, they make a really neat chalk holder stick that reaches high up so you

don't have to.

   Second, I don't know if you have read my story but the "specialist" told me my

first, older, daughter would be born dead. I won't go into the story but she is

now 15. She will be 16 in August, she graduates High School next year, before

she turns 17. My younger daughter just turned 13. She missed almost 20% of the

school year due to illness. Her grades for year end suprised even me, her

fiercely devoted mother. She will be in honors classes next year, 8th grade and

will receive High School credit for the courses.

   We may be small in body but we more than make up for it in brains and

stubborness!

   Barbara



   --- On Sat, 7/4/09, Fred Short <mail@erickshort. fsnet.co. uk> wrote:



   From: Fred Short <mail@erickshort. fsnet.co. uk>

   Subject: [Parents of Little People 2] grandparetns/ parents

   To: parentsoflittlepeop le2@yahoogroups. com

   Date: Saturday, July 4, 2009, 8:01 AM



   As you have found, relatives can be THE most negative of all people.



   When an aunt heard I was going into teaching, the first thing she said was

"How's he going to reach the blackboard"?



   As it happens, I used to write from the top to the bottom of the blackboard.

Some 6' high! AND, my feet never left the floor!



   Work THAT one out:-)))))



   Oh, and the medical profession are not imune either! Lin and I were born six

years apart but the same so called 'specialist' told both our mothers when we

were born that we would be imbiciles!



   Sadly, this so called specialist died before Lin and I could get to her and

say, in a bloody stupid voice, "Ellooooo weeee are the imbiciles " Dam, but we

never got our revenge:-))) ))



   Fred



   ----- Original Message -----

   From: Tony D'Angelo

   To: parentsoflittlepeop le2@yahoogroups. com

   Sent: Friday, July 03, 2009 8:30 PM

   Subject: Re: [Parents of Little People 2] grandparetns/ parents



   I can relate to overbearing in laws. I have one that shakes her head anytime

something comes up. Unfortunately, I will never be able to change her mind about

certain things when it comes to either of my kids. So, I do my best to let

things role off my back these days. In the past we have had many ill words but I

have realized it doesn't help or change anything. You are right though to point

out that dwarfs have many issues that average height kids do as well that are

not really soley attributed to their stature even if their risk is heightened.

Good luck. As moms I think we need to grow thick skin, take the advice we

solicit and leave the rest behind.



   Gina (mom to Jackie 11 month achon and Anthony 4 yr ah)



   --- On Tue, 6/30/09, jneclay <jneclay@yahoo. com> wrote:



   From: jneclay <jneclay@yahoo. com>

   Subject: [Parents of Little People 2] grandparetns/ parents

   To: parentsoflittlepeop le2@yahoogroups. com

   Date: Tuesday, June 30, 2009, 2:55 PM



   Okay, so I'm not sure it this should be posted on this site or on the site for

parents with Dwarf children.



   My husband when he was an infant 30 plus years ago was diagnosed with

achondroplasia. His parents did the best that they could with what they had but

in the end both of us find many things we would like to change.



   We now have a child who is dwarf but come to find out so many years ago my

husband actually has a mild case of hypocondroplasia. He is 4'10 and his feet

and hands are proportionate to his height. The only thing that is effected are

his limbs. Now our child has the same thing and has no problems other then her

limbs as well.



   Now, my problem is every time we talk about our child to the grandparents some

how some way it always leads back to it's because she has acondroplasia and that

is why she needs braces, or has a speech problem, etc... It pisses me off to no

end because FIRST she has hypocondroplasia and the ONLY thing that is effected

are her limbs. She needs braces because of genetics' on both sides. I needed

extensive work done on my mouth when I was a child so does that mean I am

dwarf???? I have a VERY small mouth and over crowding of the teeth again does

that mean I am dwarf?? I needed speech therapy as a child and my sister and

brother had tubes in there ears because they have small canals in the ears. Do

you see what I am getting at??? We are all average height and she could just as

easily gotten some of the problems she has with her teeth from me. I just seems

like I am constantly defending her and trying to get that HORRIBLE label off her

and my husband. There

   are other factors to the reason why she needs things done to her, I mean she

DOES have my genetics as well as her fathers.



   So what I am I to do??? I feel like I am starting arguments all the time and

when ever I try to talk to them about it my mother in law gets defensive and

then in turn I get defensive with her. I hate to put this wedge between us but I

hate that every time something happens it is because she has acondroplasia (even

thought it is hypocondroplasia) . Does anyone have any suggestions on how to

handle this?????

   Thanks



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Again, Fred, I agree with everything both you and Barbara are saying...if we

don't want Michael to do it, we have to make sure he does not see us do it. He

got to my computer keyboard(which he cannot even see) and got to the

Wordprocessing page without the "icon" being at the desktop. Don't ask me how.

He is a pretty sharp little boy for an almost 3 year old.



Linda=grandmother to Chad(d)(AH), Matthew (AH) almost 5 years and Michael(Achon)

30 months



--- In parentsoflittlepeople2@yahoogroups.com, "Fred Short" <mail@...> wrote:

>

> Smarty pants:-)  Roller blackboard!  Really ancient, BUT, I commandeered it

and as I moved classrooms (on a yearly basis) I took it with me.

>

> The thing is, it was a hurdle, but we become VERY efficient at jumping them!

>

> It is one area (of numerous) where parents of small statured children will

never ever cease to marvel at - how the children DO get over obstacles.

>

> Oh, and I also did all my own wall display!  At the normal height for

'average' size people.

>

> And Barbara, we are gonna have to stop meeting like this - folks will talk:-)

>

> Fred

>

>

>   ----- Original Message -----

>   From: aguirre barbara

>   To: parentsoflittlepeople2@yahoogroups.com

>   Sent: Saturday, July 04, 2009 5:37 PM

>   Subject: Re: [Parents of Little People 2] grandparetns/parents

>

>

>

>

>

>   really long chalk? Moveable blackboard? Go-Go-Gadget arms?

>

>   --- On Sat, 7/4/09, Fred Short <mail@...> wrote:

>

>   From: Fred Short <mail@...>

>   Subject: Re: [Parents of Little People 2] grandparetns/parents

>   To: parentsoflittlepeople2@yahoogroups.com

>   Date: Saturday, July 4, 2009, 10:45 AM

>

>   Sorry Barbara, yer wrong. The ONLY thing I held in my hand was the chalk.

>

>   As for so called 'experts', I always encourage folk to go with their gut

feeling.

>

>   Fred

>

>   ----- Original Message -----

>   From: aguirre barbara

>   To: parentsoflittlepeop le2@yahoogroups. com

>   Sent: Saturday, July 04, 2009 3:16 PM

>   Subject: Re: [Parents of Little People 2] grandparetns/ parents

>

>   Dear and sweet Fred, ( okay I won't tell anyone that you are not really an

"old meanie"),

>   First, they make a really neat chalk holder stick that reaches high up so

you don't have to.

>   Second, I don't know if you have read my story but the "specialist" told me

my first, older, daughter would be born dead. I won't go into the story but she

is now 15. She will be 16 in August, she graduates High School next year, before

she turns 17. My younger daughter just turned 13. She missed almost 20% of the

school year due to illness. Her grades for year end suprised even me, her

fiercely devoted mother. She will be in honors classes next year, 8th grade and

will receive High School credit for the courses.

>   We may be small in body but we more than make up for it in brains and

stubborness!

>   Barbara

>

>   --- On Sat, 7/4/09, Fred Short <mail@erickshort. fsnet.co. uk> wrote:

>

>   From: Fred Short <mail@erickshort. fsnet.co. uk>

>   Subject: [Parents of Little People 2] grandparetns/ parents

>   To: parentsoflittlepeop le2@yahoogroups. com

>   Date: Saturday, July 4, 2009, 8:01 AM

>

>   As you have found, relatives can be THE most negative of all people.

>

>   When an aunt heard I was going into teaching, the first thing she said was

"How's he going to reach the blackboard"?

>

>   As it happens, I used to write from the top to the bottom of the blackboard.

Some 6' high! AND, my feet never left the floor!

>

>   Work THAT one out:-)))))

>

>   Oh, and the medical profession are not imune either! Lin and I were born six

years apart but the same so called 'specialist' told both our mothers when we

were born that we would be imbiciles!

>

>   Sadly, this so called specialist died before Lin and I could get to her and

say, in a bloody stupid voice, "Ellooooo weeee are the imbiciles " Dam, but we

never got our revenge:-))) ))

>

>   Fred

>

>   ----- Original Message -----

>   From: Tony D'Angelo

>   To: parentsoflittlepeop le2@yahoogroups. com

>   Sent: Friday, July 03, 2009 8:30 PM

>   Subject: Re: [Parents of Little People 2] grandparetns/ parents

>

>   I can relate to overbearing in laws. I have one that shakes her head anytime

something comes up. Unfortunately, I will never be able to change her mind about

certain things when it comes to either of my kids. So, I do my best to let

things role off my back these days. In the past we have had many ill words but I

have realized it doesn't help or change anything. You are right though to point

out that dwarfs have many issues that average height kids do as well that are

not really soley attributed to their stature even if their risk is heightened.

Good luck. As moms I think we need to grow thick skin, take the advice we

solicit and leave the rest behind.

>

>   Gina (mom to Jackie 11 month achon and Anthony 4 yr ah)

>

>   --- On Tue, 6/30/09, jneclay <jneclay@yahoo. com> wrote:

>

>   From: jneclay <jneclay@yahoo. com>

>   Subject: [Parents of Little People 2] grandparetns/ parents

>   To: parentsoflittlepeop le2@yahoogroups. com

>   Date: Tuesday, June 30, 2009, 2:55 PM

>

>   Okay, so I'm not sure it this should be posted on this site or on the site

for parents with Dwarf children.

>

>   My husband when he was an infant 30 plus years ago was diagnosed with

achondroplasia. His parents did the best that they could with what they had but

in the end both of us find many things we would like to change.

>

>   We now have a child who is dwarf but come to find out so many years ago my

husband actually has a mild case of hypocondroplasia. He is 4'10 and his feet

and hands are proportionate to his height. The only thing that is effected are

his limbs. Now our child has the same thing and has no problems other then her

limbs as well.

>

>   Now, my problem is every time we talk about our child to the grandparents

some how some way it always leads back to it's because she has acondroplasia and

that is why she needs braces, or has a speech problem, etc... It pisses me off

to no end because FIRST she has hypocondroplasia and the ONLY thing that is

effected are her limbs. She needs braces because of genetics' on both sides. I

needed extensive work done on my mouth when I was a child so does that mean I am

dwarf???? I have a VERY small mouth and over crowding of the teeth again does

that mean I am dwarf?? I needed speech therapy as a child and my sister and

brother had tubes in there ears because they have small canals in the ears. Do

you see what I am getting at??? We are all average height and she could just as

easily gotten some of the problems she has with her teeth from me. I just seems

like I am constantly defending her and trying to get that HORRIBLE label off her

and my husband. There

>   are other factors to the reason why she needs things done to her, I mean she

DOES have my genetics as well as her fathers.

>

>   So what I am I to do??? I feel like I am starting arguments all the time and

when ever I try to talk to them about it my mother in law gets defensive and

then in turn I get defensive with her. I hate to put this wedge between us but I

hate that every time something happens it is because she has acondroplasia (even

thought it is hypocondroplasia) . Does anyone have any suggestions on how to

handle this?????

>   Thanks

>

>   [Non-text portions of this message have been removed]

>

>   [Non-text portions of this message have been removed]

>

>   [Non-text portions of this message have been removed]

>

>   [Non-text portions of this message have been removed]

>

>   [Non-text portions of this message have been removed]

>

>

>

>

>

> [Non-text portions of this message have been removed]

>

You AND your wife are GREAT PEOPLE. I hope to meet you both someday!



--- On Sat, 7/4/09, Fred Short <mail@...> wrote:





From: Fred Short <mail@...>

Subject: Re: [Parents of Little People 2] grandparetns/parents

To: parentsoflittlepeople2@yahoogroups.com

Date: Saturday, July 4, 2009, 1:06 PM

















Smarty pants:-) Roller blackboard! Really ancient, BUT, I commandeered it and as

I moved classrooms (on a yearly basis) I took it with me.



The thing is, it was a hurdle, but we become VERY efficient at jumping them!



It is one area (of numerous) where parents of small statured children will never

ever cease to marvel at - how the children DO get over obstacles.



Oh, and I also did all my own wall display! At the normal height for 'average'

size people.



And Barbara, we are gonna have to stop meeting like this - folks will talk:-)



Fred



----- Original Message -----

From: aguirre barbara

To: parentsoflittlepeop le2@yahoogroups. com

Sent: Saturday, July 04, 2009 5:37 PM

Subject: Re: [Parents of Little People 2] grandparetns/ parents



really long chalk? Moveable blackboard? Go-Go-Gadget arms?



--- On Sat, 7/4/09, Fred Short <mail@erickshort. fsnet.co. uk> wrote:



From: Fred Short <mail@erickshort. fsnet.co. uk>

Subject: Re: [Parents of Little People 2] grandparetns/ parents

To: parentsoflittlepeop le2@yahoogroups. com

Date: Saturday, July 4, 2009, 10:45 AM



Sorry Barbara, yer wrong. The ONLY thing I held in my hand was the chalk.



As for so called 'experts', I always encourage folk to go with their gut

feeling.



Fred



----- Original Message -----

From: aguirre barbara

To: parentsoflittlepeop le2@yahoogroups. com

Sent: Saturday, July 04, 2009 3:16 PM

Subject: Re: [Parents of Little People 2] grandparetns/ parents



Dear and sweet Fred, ( okay I won't tell anyone that you are not really an "old

meanie"),

First, they make a really neat chalk holder stick that reaches high up so you

don't have to.

Second, I don't know if you have read my story but the "specialist" told me my

first, older, daughter would be born dead. I won't go into the story but she is

now 15. She will be 16 in August, she graduates High School next year, before

she turns 17. My younger daughter just turned 13. She missed almost 20% of the

school year due to illness. Her grades for year end suprised even me, her

fiercely devoted mother. She will be in honors classes next year, 8th grade and

will receive High School credit for the courses.

We may be small in body but we more than make up for it in brains and

stubborness!

Barbara



--- On Sat, 7/4/09, Fred Short <mail@erickshort. fsnet.co. uk> wrote:



From: Fred Short <mail@erickshort. fsnet.co. uk>

Subject: [Parents of Little People 2] grandparetns/ parents

To: parentsoflittlepeop le2@yahoogroups. com

Date: Saturday, July 4, 2009, 8:01 AM



As you have found, relatives can be THE most negative of all people.



When an aunt heard I was going into teaching, the first thing she said was

"How's he going to reach the blackboard"?



As it happens, I used to write from the top to the bottom of the blackboard.

Some 6' high! AND, my feet never left the floor!



Work THAT one out:-)))))



Oh, and the medical profession are not imune either! Lin and I were born six

years apart but the same so called 'specialist' told both our mothers when we

were born that we would be imbiciles!



Sadly, this so called specialist died before Lin and I could get to her and say,

in a bloody stupid voice, "Ellooooo weeee are the imbiciles " Dam, but we never

got our revenge:-))) ))



Fred



----- Original Message -----

From: Tony D'Angelo

To: parentsoflittlepeop le2@yahoogroups. com

Sent: Friday, July 03, 2009 8:30 PM

Subject: Re: [Parents of Little People 2] grandparetns/ parents



I can relate to overbearing in laws. I have one that shakes her head anytime

something comes up. Unfortunately, I will never be able to change her mind about

certain things when it comes to either of my kids. So, I do my best to let

things role off my back these days. In the past we have had many ill words but I

have realized it doesn't help or change anything. You are right though to point

out that dwarfs have many issues that average height kids do as well that are

not really soley attributed to their stature even if their risk is heightened.

Good luck. As moms I think we need to grow thick skin, take the advice we

solicit and leave the rest behind.



Gina (mom to Jackie 11 month achon and Anthony 4 yr ah)



--- On Tue, 6/30/09, jneclay <jneclay@yahoo. com> wrote:



From: jneclay <jneclay@yahoo. com>

Subject: [Parents of Little People 2] grandparetns/ parents

To: parentsoflittlepeop le2@yahoogroups. com

Date: Tuesday, June 30, 2009, 2:55 PM



Okay, so I'm not sure it this should be posted on this site or on the site for

parents with Dwarf children.



My husband when he was an infant 30 plus years ago was diagnosed with

achondroplasia. His parents did the best that they could with what they had but

in the end both of us find many things we would like to change.



We now have a child who is dwarf but come to find out so many years ago my

husband actually has a mild case of hypocondroplasia. He is 4'10 and his feet

and hands are proportionate to his height. The only thing that is effected are

his limbs. Now our child has the same thing and has no problems other then her

limbs as well.



Now, my problem is every time we talk about our child to the grandparents some

how some way it always leads back to it's because she has acondroplasia and that

is why she needs braces, or has a speech problem, etc... It pisses me off to no

end because FIRST she has hypocondroplasia and the ONLY thing that is effected

are her limbs. She needs braces because of genetics' on both sides. I needed

extensive work done on my mouth when I was a child so does that mean I am

dwarf???? I have a VERY small mouth and over crowding of the teeth again does

that mean I am dwarf?? I needed speech therapy as a child and my sister and

brother had tubes in there ears because they have small canals in the ears. Do

you see what I am getting at??? We are all average height and she could just as

easily gotten some of the problems she has with her teeth from me. I just seems

like I am constantly defending her and trying to get that HORRIBLE label off her

and my husband. There

are other factors to the reason why she needs things done to her, I mean she

DOES have my genetics as well as her fathers.



So what I am I to do??? I feel like I am starting arguments all the time and

when ever I try to talk to them about it my mother in law gets defensive and

then in turn I get defensive with her. I hate to put this wedge between us but I

hate that every time something happens it is because she has acondroplasia (even

thought it is hypocondroplasia) . Does anyone have any suggestions on how to

handle this?????

Thanks



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