I wonder if the Eight-plate procedure or something similar is what was done on one of the Iraqi children with Morquio on "Little People Big World" a couple...
Beth, You totally hit the nail on the head. I am speaking only for myself, but I feel it is hard to know where to fit in. We have the achon issues but also...
I noticed a "tooth eruption chart" in the files section. Is this for LP or AH? Jacob ( 16 months, achon) is going to his very first dentist appointment...
Hi! My daughter, Chrissy, is 5 years old and has achondroplasia. I have a question regarding a bottom wiper. It has been recommended by DuPont Children's...
There is no difference between LP and average-sized tooth eruption. Some babies do it early, while some babies do it later. No need to bring the chart to the...
I suggest that you check out the activeforever.com link below to get more choices _and_ a MUCH better price. That site sells both the folding version of the...
Crystal, Landon had one done about a month ago at the Children's in St.. Louis and I was too a nervous wreck...cried. However, they were very good with...
How's Landon doing? We never got a chance to connect. I hope you are doing well though. Maybe we can try again in the Spring or this summer to meet up?...
hi all hope all is well with everyone i just posted pic of destin he is doing great he thinks he can do everything his three year old sister can lol he pull...
Brigita & Filipe, Thank you very much for the very detailed information. I have gotten very consistent responses about the benefits of the procedure, the ...
My 7 year old achon daughter has had a shunt since she was 9 weeks old. We have never had a revision or any trouble with it until last week. Emma was sick all...
I just want to post our experience with the eight plates. My son is nine with an undiagnosed form of dwarfism. At 2 he had tibial osteotomies using the...
where are you guys getting these charts? I want a Achon head circ. chart for my house? Thank You ... From: janesjungle18 <jhdrake@...> Subject: [Parents...
Thank you Cary - it's good to hear about all the possible outcomes. We are not ready to do anything at this particular point, just gathering information for...
Aren't dizziness and migranes symptoms? Has hydrocephalus been ruled out as the cause of those? I really hope that the doctors are correct, but I wouldn't...
You can find a number of charts in the files section of the Yahoo group, including growth and motor skills milestone charts! Mike, dad to Evan (5, ah) and...
Ok Fred, You know - if nobody responds you need to explain. This is news to us ah folks. Thank god I have a few years before trying to toilet train my...
O.K., Gina here we go...... ..... I call it the "Twist" method in memory of Chubby Checker and his song "The Twist". Dam all to do with music really, but then,...
Sorry Fred...I think pics are in order...for those of us who are visual learners ;-) Tonya A friend once told me to pray for Natural Opportunity. Natural...
You mean, you are having problems getting to the bottom of this??????? ... From: Tonya Sweat To: parentsoflittlepeople2@yahoogroups.com Sent: Tuesday, March...
Fred, Thank you so much for the funny, yet visual information on this. While it was quite funny, it was very informative to an average height mom who just...
We hear on here of things our children CAN'T do. Well, to put things right, here are a few things your child WILL be able to do, which YOU can't do! 1,...
Jeremy has never used a wiper (in fact refused to use one) and uses this method. You can also get the child to have one foot on a low stool (like the base of...
Thanks so much for this post and the thorough explanation on "how to" We have been struggling with our 4yo for the longest and biggest problem she has is...
this list is sooo fern with teh addition of doing the splits. watching her do it makes me think 'ouch'!!!! i wondered how long she would be able to do all this...
Thank you Fred Fern is not yet potty trained but on that rare occasion she has use a potty that is excatly what she does to try and wipe (worked it out for...
Hi I am Kelly, Danielle's mom(achon 6 months). My family doc is sending me to a pediatrician so he can have a look at her.My family doc doesnt really know...
Need to add 2 comments to all this "potty talk:" 1. those little wet wipes (toddler wipes) improve the chances of any cleaning happening and some are...