I just use a regular Graco Snugride (and it still fits Parker at 18 months -- we really get our money's worth out of his stuff). I think most of us use...
Hello Mike- I am in Oxnard (Ventura County)- I'm still getting familiarized with how everything is broken up district wise-but I'm certain that its the LA...
LOS ANGELES CHAPTER HALLOWEEN PARTY! Little White Chapel in Burbank Saturday, October 18, the witching hour of 4 - 7 pm Come prepared to have howling...
Hi guys, Drake (14 month achon.) had his cookie swallow done yesterday. It was recommended by his O/T. Drake has been eating more table foods lately such as...
I know that doctors sometimes recommend car bead car seats for babies with apnea problems. Avoiding the chin-to-chest position helps. I've used a regular...
My son David(almost 4 achon) sees Dr. Bassett in STL about every six months. We have been very happy with the treatment and explanantion we have recieved from...
Hi Anel! My name is Bethany and I live in Ventura. I have 17 month old twin girls, one with Achondroplasia. I am trying to make it to the regional in San...
My three year old son has unclassified SMD. He is about 33 inches tall and is noticeably smaller than his peers. His legs also appear very bowed, and he will...
Hey Crystal, Paige was also a silent aspirator, but she was a preemie and grew out of it. Yes, it can absolutely cause respiratory problems, especially in ...
It depends on the type of dwarfism. In infants with Achondroplasia, the kyphosis is located in the middle lower part of the back. There are photos of what...
Durring this summer we spent alot of time at Ohio's Nation Wide Childrens Hospital, We had apointments to Genitics, GI, all kinds of bone specialests for her...
Wow, this is such a relief to hear about middle school. In my school district, 6th grade is still in the Intermediate building, so Middle School is only 7th...
Hi Misty, I'm in Ohio, have you tried to see Dr. Pauli? If you'd like we can email in private. We have been to a few hospitals for test and to see Dr.'s so if...
Thank you Lindsay, No need to send me anything, but thank you very much. I did check my local pharmacy Monday and they sell Thick It. I think it's mainly ...
Hi Becky Thanks For the resopnce, Right Now I am open to try anything. I'm at a loss and I do not know where to go from Here outher than going to Alford...
I can understand your frustration even though my daughter hasn't been through all of those tests just yet. She too seems to have hypermobile joints, though...
I appreciate all of your comments. I wonder if any of you have had experience with your childs' knowing they are different. In other words, she has always...
Middle schoolers, LP and average-sized, have a lot of angst going on about a LOT of things. While you can and should discuss your daughter's concerns with...
I used to teach Middle School and High School and in my experience as a teacher, it always seemed that the kids who were more involved (be it dance, sports,...
what political views there were none. It simply mentioned that the VP candidate's son has sparked discussion about special needs estate planning, that is not...
To me, the most important point of the article was that magic $2000 number. Over $2000 in a disabled child's name can affect whether or not they can get SSI...
Being proactive and setting up a special needs trust is by far the best way to go, even if you own nothing but a house and car. If your child receives...
I understand your concern, many parents have posted that MRIs are important. Our two month old daughter had xrays at birth. Her neurologist did a physical...
Is aspiration a risk for most achons? My Jackie seems to choke a lot when given her bottle. So, I guess I have the same questions as Crystal. ... From: Crystal...
hi im new and when my baby was 6 weeks he had an mri and no drugs they had me feed him and put him to sleep that was at dupointe ... From: Tony D'Angelo...
As for the tummy time....I'm pretty sure that it's fine to do. The laying flat is more because if the baby sits or isn't reclined enough..it puts pressure on...
Hello eveyone. I need some help and advice, please! My daughter is 3 1/2 and has SEDc, or at least this is where her geneticist is leaning for a diagnosis....
Hi Gina! Have you given your pediatrician a copy of the growth chart for achons yet? There's a copy in the files section of this group - if he's using a...
Good info about the pay-back special trust, Heather!!! Still, I wouldn't stress about it if, as a parent, one doesn't have the financial means to make a...
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