hi  My Ami is now leading a normal life , studying in a normal public school 3rd std; as per his teacher comment - an average boy, but some days he feel sad...
We are going to be at the Spokane regional and I am wondering if there is anyone going who would be interested in some size 12 up to 18 month hemmed shorts and...
Hi, I am Jan and live in the US. My son Steven is 10 and has achondroplasia. I am sorry that Ami is having some sad days. I bet he is a good student. All...
Hi Ismail Thanks for writing and sharing. Kids at school can be very cruel. But I see it in a different way. I think everyone one goes through issues at...
I think it's wonderful that we have the internet - so that parents like us can "meet" other parents like ourselves from so many places around the world! It...
I hope all works out for you.My daughter Gabrielle(16 months old)has yet to experience anything like that.So far,everyone seems to be fascinated by her.We live...
Dear all  in futre we will arrange a confrence in india by linking all LP/s and other countries . my dream or ambition .  I feel that more than childs...
Katie - I was told not to turn my son around at one. I just turned him around at 18 mo old, and that was after the ortho and neuo docs both said OK. When Riley...
my daughter is 17 months old with achondroplasia..they said she has kyphosis in her lower back,but when i look it up on the internet it's to low in her back...
Hi Amanda, My daughter doesn't have achondroplasia, (a different form of dwarfism) but she does have kyphoscoliosis. The kyphosis can affect the lungs if it is...
Amanda, If the curve in the lower back is outward then it's kyphosis. Kyphosis is almost to be expected with achon children, some just have it worse than...
Hi I am new to the group and have just been lurking. My 2 year daughter has acondroplasia. I just wanted to post my understanding. I am a physiotherapist and...
My name is sharon. I am mum to 2 year old Fern who has acondroplasia and 6 year Leo (AH). We live in the UK. Fern was not confirmed with the diagnosis of Acon...
Just wondering if anyone was near Chicago Ridge, IL to set a playdate or something? I have a soon-to-be 5yr old and would love to meet others close to us. ...
i don't know what the degree is.I made an appointment with her doctor but he keeps telling me that he won't do anything for her until she loses movement in her...
Amanda, You definitely need a new doctor!! Meanwhile, it would be worth it to get a second opinion from an orthopedic dwarfism specialist. One of them would...
Welcome to the club. My yougest daughter Nikki is also 2 years old (not achon, but a different form of dwarfism), and she's also climbing everything! I keep...
Amanda that does not sound like a good situation. I agree with Vita, you need a new doctor. I'm not a doctor but it seems very strange to say you won't do...
Rosa, We live in Logansport, IN. About 2 1/2 hours or 130 miles from you. My daughter, Emma is almost 7 & achon. We would love to meet you sometime. Let us...
Hi Sharon-I think if people are staring-I know the answer-it's because Fern is too precious for words. What a face. Those last two close ups are model...
Hi Sharon- I have to agree with Kim, your daughter is such a cutie!! I am not too good with the computer, but will try to scan some pictures of my girl rock...
Hello Amanda, My daughter is 16 months old and has acondroplasia. She has kyphosis and slight scoliosis. She's seen her orthopedic surgeon a few times now....
Dear all Hey guys why not arrange a get together in Dubai. Dubai is an excellent tourist place and very modern. I will arrange hotel accommodation and the...
Don't worry about the climbing guys . I have ten years of experience with my son. I thought I would get use to the stares when we go in public but till now...
Howdy, Shaista! I doubt I'd find it in the budget to make it to Dubai anytime soon, although I'd love to, but next year's LPA conference will be in New York...
Hi. My name is Lorraine, my husband Chris and we have three children Kirstie 16 AH, Lauren 14 AH and Jack who is 6 next month and has Pseudoachondroplasia. We...
The 2009 Conference is in New York City At the Brooklyn Bridge Marriott It runs from July 4th to July 11th You should be able to start booking your Hotel stay...
the web site which is changing daily is www.lpanyc2009.org Michael ... From: Mike Mallinson To: parentsoflittlepeople2@yahoogroups.com Sent: Tuesday, August...
Dear All  It is pleasure to hear form Dr.Shashitha about new location about LP meet , coz it will be more convinient for the some other LPs and their family...
Rosa, We live in Evanston, IL, just north of Chicago (about an hour from you, without traffic!). Our oldest son, Kieran, is almost 3.5 years old and has...
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