First off, I suggest that you check out the "Files" section here at
POLP2. We have a file there containing ideas for bathrooms.

Meanwhile, it often it takes two stepstools in a bathroom when an LP
child is younger and smaller.  Rubbermaid stepstools often work well
for LP children, and they come in several sizes and heights.  For the
toilet, a stepstool with a wide platform-type top step (like the
Rubbermaid) works well and is the most safe, in my opinion, since the
child can deal with his/her clothing while on the platform (instead
of on the floor).

Target is a good place to search -- look in both the home stuff and
in the children's department (Target has some neat kids' furniture).
Toys R Us is another good place to find stepstools.  A house with an
LP can never havetoo many stepstools, so if one that you've purchased
doesn't work for a particular task, chances are that it  will work
well at some other time for some other task.

Vita



--- In parentsoflittlepeople2@yahoogroups.com, "Jessica Griswold"
<jessica_vantrice@...> wrote:
>
> I'm looking for a good step stool to put in our bathroom.  Can
anyone
> suggest a good web-site to use? Also, is there a special stool just
for
> helping to get on the toilet? A stool tall enough for the sink
would be
> too tall for the toilet I'm thinking..... i don't know. Help please!
>

sorry, retrying the link for you:  it has a nice photo of the stool

http://www.apartmenttherapy.com/chicago/seating-benches-stools/bekvam-
step-stool-051201



--- In parentsoflittlepeople2@yahoogroups.com, "Jessica Griswold"
<jessica_vantrice@...> wrote:
>
> I'm looking for a good step stool to put in our bathroom.  Can anyone
> suggest a good web-site to use? Also, is there a special stool just
for
> helping to get on the toilet? A stool tall enough for the sink would
be
> too tall for the toilet I'm thinking..... i don't know. Help please!
>

we recently purchased an IKEA Bekvam stepstool:  it has two levels and
is taller than all of the stools on the market for AH kids.  our
daughter (SEDc) uses the lower level to access the toilet, and the
taller level for the sink (she is only 31" tall);

one note:  it is wood, and heavy - it works for us because the toilet
and sink are close enough that our daughter needn't move it around, but
but we did think that you could attach felt sliders underneath if your
child needs to push it around your space.

link for photo:
http://www.apartmenttherapy.com/chicago/seating-benches-stools/bekvam-
step-stool-051201

hope this helps!

alicia
mother to Daisy - 3yr old SEDc!
--- In parentsoflittlepeople2@yahoogroups.com, "Jessica Griswold"
<jessica_vantrice@...> wrote:
>
> I'm looking for a good step stool to put in our bathroom.  Can anyone
> suggest a good web-site to use? Also, is there a special stool just
for
> helping to get on the toilet? A stool tall enough for the sink would
be
> too tall for the toilet I'm thinking..... i don't know. Help please!
>

I'm looking for a good step stool to put in our bathroom.  Can anyone
suggest a good web-site to use? Also, is there a special stool just for
helping to get on the toilet? A stool tall enough for the sink would be
too tall for the toilet I'm thinking..... i don't know. Help please!

I am not sure how everyone got this message. I asked for them to check
my address book for my family and some close friends. But, an
automatic e-mail went out to the group. I am sorry that was not
suppose to happen.

Mandy, Andrea's mom




--- In parentsoflittlepeople2@yahoogroups.com, Mandy Still
<mandy_ms2000@...> wrote:
>
>
> I set up a Facebook profile where I can post my pictures, videos and
events and I want to add you as a friend so you can see it. First, you
need to join Facebook! Once you join, you can also create your own
profile.
>
> Thanks,
> Mandy
>
> Here's the link:
> http://www.facebook.com/p.php?i=586797860&k=ZWFTZZ5YSVWM5BEHSK32QV&r&v=2
>
> ___________________
> This e-mail may contain promotional materials. If you do not wish to
receive future commercial mailings from Facebook, please click on the
link below. Facebook's offices are located at 156 University Ave.,
Palo Alto, CA 94301.
> http://www.facebook.com/o.php?u=1018293702&k=45ae76
>
>
>
> [Non-text portions of this message have been removed]
>

Thank you..i thought something was wrong..she has a trach and ever
since then little things have been coming out now.I just wanted to
make sure that there was nothing wrong with the trach.




--- In parentsoflittlepeople2@yahoogroups.com, "toodie_rose1"
<toodie_rose1@...> wrote:
>
> That is pretty much what it is, Congestion and the short stature of
> your child. How it was explain to me when my daughter went through it
> was the air traveling threw her body could not successfully go around
> because of the flat nose bones. She always had perfect sounding
> lungs,but she was always congested. I was always sucking out the
> drainage in my daughter's nose, to the point my daughter can not
> stand when she see that nasel sucker thing. I kept going back and
> forth to the doctor eventually seeing an Ear, Nose, Throat doctor and
> putting her on Nasonex medication to help loosen the phelm. She is
> now 2 going on 3 and this diagnose was in the beginning @ 6 months to
> she was 15 months old. She is much better now. I don't use the
> Nasonex anymore, I just really watch when she gets a cold.
>
> --- In parentsoflittlepeople2@yahoogroups.com, lbrooks36@ wrote:
> >
> > My daughter's eyes are swollen sometimes when she gets up in the
> morning and after naps too.? I think it is her sinuses.? She
> constantly has sinus drainage.? I did not think one person could have
> that much gunk!? She definitely has allergies.? Does your daughter
> have a lot of congestion?
> >
> >
> > -----Original Message-----
> > From: amanda <kyleighsmom33@>
> > To: parentsoflittlepeople2@yahoogroups.com
> > Sent: Wed, 25 Jun 2008 3:59 pm
> > Subject: [Parents of Little People 2] swallen face
> >
> >
> >
> >
> >
> >
> > My daughter is 16 months old and has achon..She is waking up with
> her
> > eyes swallen shut every morning and after every nap.When she gets up
> > for a while the swelling goes away..Can anyone tell me what it could
> > be.The doctors here keep saying circulation problem.
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>

Going back slightly to my earlier comments about how amazing the
conference experience was, that again was one of my observations!  As I
watched the hordes of teens roaming the premises, all I could think of
was now I had a perfect idea of how my daughter might turn out!  Even
though Achondroplasia is by far the most common dwarfing condition, it's
still incredibly rare in the general population so there aren't a lot of
places I can look (other than other LPA events, and those are on a much
smaller scale typically!) to get a good idea of what my daughter's
development will be like!  At the national, there were LPs of every age,
from nearly every social and economic background, and from different
racial backgrounds and occasionally different countries, even!  Such an
incredible cross-section of life could be found there, and there was
something for everybody to relate to...

Anyway, sorry that got me started again (lol) but thanks again, Fred,
for such a great insight!

Mike, dad to Evan (5, ah) and Caitlin (almost 1!, achon)

Fred Short wrote:
>
> Oh, I'm gettin old and me memory is playin tricks, but I reckon it was
> about ten, eleven years ago when I first came across a mum with a
> three (?) year old Achon daughter. The daughter was gorgious (hmm, so
> was her mum as I remember) but her mum was worried sick about this
> frail, fragile (as her mum thought), little girl.
>
> How was she going to cope? What was going to happen? Millions and
> millions of questions and worries.
>
> Over the years I've kept in touch with the mum, and noticed, as time
> went on, not only did the worries seem to evaporate into thin air, but
> the mum got happier and happier, prouder and prouder (if that was
> possible) of her daughter and her achievements.
>
> Hell, we even discussed the wisdom of letting her daughter go riding.
> I, "ME", was the one worried here! But, the daughter was extremely
> keen and the mum, rightly, again, proud of her. She has gone on from
> strength to strength, success to success in her riding.
>
> Now, I happened to contact them the day it was the daughters
> FOURTEENTH birthday!!!!!! As we say over here, "I was gob-smacked!"
> For starters, where had the time gone?
>
> Sooooo, I rang them! I got this female, sultry voice on the phone! I
> asked if I could speak to the birthday girl. Agh!!!!! The reply was
> "This is she!"
>
> The old fart was talking to a sultry voiced, GORGIOUS looking,
> fourteen year old Achon girl! The very same one who is in the first
> photo I got of her, stripped but for her diapers, all those years
> ago!!!!!!!
>
> I've now got an updated photo of her and truly, she really is THE most
> gorgious young lady I have ever clapped my eyes on.
>
> Sooooooooo, what am I really saying? Well, just as I am 64 years ahead
> of some of your children, so this mum and this extremely attractive
> young lady are but 14 years down the line. The thing is, as much as I
> represent the distant future for your children, this young lady,
> truly, truly, TRULY, is testiment to how much more wonderful (if that
> is possible) your child will grow up to be!!!!!!
>
> Look at any of the older children with a similar condition to your own
> child, and remember, THEY reflect YOUR child in a few years time!!!!!!!
>
> Bless you all
>
> Fred, the old romantic fart!
>
> [Non-text portions of this message have been removed]
>
>

--

Mike Mallinson



*M Factor Lighting*

/Live Event Design & Production/

Santa Clarita, CA

661.472.2657 cell







[Non-text portions of this message have been removed]

yes even with her trach her nose is constantly running and her secretions are
terrible..they just gave her atrovent to see if it will dry some of the
congestion up.They said her congestion was because she is so compact in the
airways.





[Non-text portions of this message have been removed]

Once Stefan (now 32) could stand, we marked his growth on the same wall
where we did our average-sized Jenny's growth.   LPs _do_ grow, albeit not
at the same rate as their average-sized peers.  Stefan never saw the wall
chart as a comparison between him and Jenny, but instead just enjoyed the
fact that he got both older and taller over time.

Vita



----- Original Message -----
From: "Catherine Wright" <cmerciez@...>
To: <parentsoflittlepeople2@yahoogroups.com>
Sent: Monday, June 30, 2008 12:06 PM
Subject: [Parents of Little People 2] Growth Charts?


> As I was cleaning Owen's room, I found a kid's growth chart that I was
> given as a baby shower gift.  This sparked a discussion between my
> husband and I.  My automatic response was to assume we wouldn't track
> Owen's growth on a chart for fun (or wall as my mother had done) so as
> not to put an emphasis on height.  My husband though, disagrees and
> sees no reason to treat Owen any differently than we would an AH
> child.
> There's really no right or wrong answer, it just got me thinking....Any
> thoughts on tracking growth progress (outside of a drs. office)?  Would
> love LP opions too!
> Thanks!
> Cat
> mom to Owen, 16.5 months, achondroplasia
>

I know that Taylor (our AH daughter) doesn't get near the attention out and
about that Trace does - and she lets us know - I guess daycare has really taught
her to express herself well, because she will come up and say "Mommy, I am
feeling a little left out" in this sad little voice - it is heart breaking.  I
always try to add a little Taylor plug in - she's smart, funny, beautiful, takes
computer classes and riding lessons, is a great big sister, etc. 
I try not to let people dwell on his dwarfism, I don't want it to define him. 
Yes, Trace is "different" and cute as can be - and he knows it, but when you get
down to it, he is just a kid.  Trace is ornery, has a great imagination, very
determined (that's my good way of saying stubborn), creative, strong, funny,
loving, independent, obsessed with anything with wheels and a motor, oh - and he
just happens to have achondroplasia, so he's short and has an adorable butt and
muscleman arms :).
~Destini

----- Original Message ----
From: Christine pickett <proudmommao2@...>
To: parentsoflittlepeople2@yahoogroups.com
Sent: Monday, June 30, 2008 2:37:41 PM
Subject: Re: [Parents of Little People 2] Re: Growth Charts?


We keep a running growth chart on our kitchen door frame. Both our daughters
enjoy watching their progress. I LOVe seeing the progress of my LP daughter..
and even though she's only 3.. she enjoys seeing it also. It breaks my heart
sometimes when she says something like, "I'm growing up big and tall mommy!" But
I"m not going to burst her bubble yet. :)
 
I have to share something my AH daughter said the other day. My LP daughter has
lots of doctors appointments and get's lots of attention from strangers.. and
one day my oldest daughter (AH) had enough of it. A stranger was talking to me
about Emily (LP) in a store and Jessica was dying to be part of the
conversation. She finally piped in and said, "My sister has dwarfism and I have
normalism!"  I know this is hard on her also.. and I have to remember to give
her special attention also.
 
Christine

--- On Mon, 6/30/08, Barbara Spiegel <bspiegel@maine. rr.com> wrote:

From: Barbara Spiegel <bspiegel@maine. rr.com>
Subject: Re: [Parents of Little People 2] Re: Growth Charts?
To: parentsoflittlepeop le2@yahoogroups. com
Date: Monday, June 30, 2008, 1:50 PM

I think private/family tracking of growth progress is a great thing. I have
issues of it when it's done publicly in a classroom, b/c then it becomes a
competition. especially since success in today's society is often geared by
size. Does this make sense?

Barbara
(achon and mom to Alexandra almost 4 yrs old, achon)
----- Original Message -----
From: Rhonda
To: parentsoflittlepeop le2@yahoogroups. com
Sent: Monday, June 30, 2008 1:22 PM
Subject: [Parents of Little People 2] Re: Growth Charts?

We mark all of our children's heights on the back of our basement
door. Shawn is no exception. It is my opinion that failing to mark
his growth progress on our door would be setting him apart based on
his height (or lack there of).
Rhonda

--- In parentsoflittlepeop le2@yahoogroups. com, "jannob980006"
<jannob980006@ ...> wrote:
>
> Cat,
>
> We have always tracked our two oldest's height and when Knoah came
> along, we marked the wall for him too!
>
> I think it's a misconception to say not place "emphasis on height"
> because "Owen is who he is. Celebrate that!
>
> I am amazed to see how much Knoah has actually grown from his first
> mark at 04/07/07 to today! He has grown 6.5 inches!! I wish I would
> have marked the wall sooner, but we didn't want him to put pressure
> on his feet.
>
> I thought the same way at first, but then realized, he is going to
> get taller. It is not the same type of tallness as an AH person,
but
> taller no less! Track his height with pride! I see the only
> difference between an AH child and our kids is, we already know
> before hand their height cut-off.
>
> So, get out that tape measure and start marking the wall, it's fun,
> it's educational, he's your first born, watch him grow with
> happiness!
>
> Tonya
>
>
>
> --- In parentsoflittlepeop le2@yahoogroups. com, "Catherine Wright"
> <cmerciez@> wrote:
> >
> > As I was cleaning Owen's room, I found a kid's growth chart that
I
> was
> > given as a baby shower gift. This sparked a discussion between
my
> > husband and I. My automatic response was to assume we wouldn't
> track
> > Owen's growth on a chart for fun (or wall as my mother had done)
so
> as
> > not to put an emphasis on height. My husband though, disagrees
and
> > sees no reason to treat Owen any differently than we would an AH
> > child.
> > There's really no right or wrong answer, it just got me
> thinking.... Any
> > thoughts on tracking growth progress (outside of a drs. office)?
> Would
> > love LP opions too!
> > Thanks!
> > Cat
> > mom to Owen, 16.5 months, achondroplasia
> >
>

------------ --------- --------- --------- --------- --------- -

No virus found in this incoming message.
Checked by AVG.
Version: 7.5.524 / Virus Database: 270.4.1/1519 - Release Date: 6/25/2008 4:13
PM

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

We keep a running growth chart on our kitchen door frame. Both our daughters
enjoy watching their progress. I LOVe seeing the progress of my LP daughter..
and even though she's only 3.. she enjoys seeing it also. It breaks my heart
sometimes when she says something like, "I'm growing up big and tall mommy!" But
I"m not going to burst her bubble yet. :)
 
I have to share something my AH daughter said the other day. My LP daughter has
lots of doctors appointments and get's lots of attention from strangers.. and
one day my oldest daughter (AH) had enough of it. A stranger was talking to me
about Emily (LP) in a store and Jessica was dying to be part of the
conversation. She finally piped in and said, "My sister has dwarfism and I have
normalism!"  I know this is hard on her also.. and I have to remember to give
her special attention also.
 
Christine

--- On Mon, 6/30/08, Barbara Spiegel <bspiegel@...> wrote:

From: Barbara Spiegel <bspiegel@...>
Subject: Re: [Parents of Little People 2] Re: Growth Charts?
To: parentsoflittlepeople2@yahoogroups.com
Date: Monday, June 30, 2008, 1:50 PM






I think private/family tracking of growth progress is a great thing. I have
issues of it when it's done publicly in a classroom, b/c then it becomes a
competition. especially since success in today's society is often geared by
size. Does this make sense?

Barbara
(achon and mom to Alexandra almost 4 yrs old, achon)
----- Original Message -----
From: Rhonda
To: parentsoflittlepeop le2@yahoogroups. com
Sent: Monday, June 30, 2008 1:22 PM
Subject: [Parents of Little People 2] Re: Growth Charts?

We mark all of our children's heights on the back of our basement
door. Shawn is no exception. It is my opinion that failing to mark
his growth progress on our door would be setting him apart based on
his height (or lack there of).
Rhonda

--- In parentsoflittlepeop le2@yahoogroups. com, "jannob980006"
<jannob980006@ ...> wrote:
>
> Cat,
>
> We have always tracked our two oldest's height and when Knoah came
> along, we marked the wall for him too!
>
> I think it's a misconception to say not place "emphasis on height"
> because "Owen is who he is. Celebrate that!
>
> I am amazed to see how much Knoah has actually grown from his first
> mark at 04/07/07 to today! He has grown 6.5 inches!! I wish I would
> have marked the wall sooner, but we didn't want him to put pressure
> on his feet.
>
> I thought the same way at first, but then realized, he is going to
> get taller. It is not the same type of tallness as an AH person,
but
> taller no less! Track his height with pride! I see the only
> difference between an AH child and our kids is, we already know
> before hand their height cut-off.
>
> So, get out that tape measure and start marking the wall, it's fun,
> it's educational, he's your first born, watch him grow with
> happiness!
>
> Tonya
>
>
>
> --- In parentsoflittlepeop le2@yahoogroups. com, "Catherine Wright"
> <cmerciez@> wrote:
> >
> > As I was cleaning Owen's room, I found a kid's growth chart that
I
> was
> > given as a baby shower gift. This sparked a discussion between
my
> > husband and I. My automatic response was to assume we wouldn't
> track
> > Owen's growth on a chart for fun (or wall as my mother had done)
so
> as
> > not to put an emphasis on height. My husband though, disagrees
and
> > sees no reason to treat Owen any differently than we would an AH
> > child.
> > There's really no right or wrong answer, it just got me
> thinking.... Any
> > thoughts on tracking growth progress (outside of a drs. office)?
> Would
> > love LP opions too!
> > Thanks!
> > Cat
> > mom to Owen, 16.5 months, achondroplasia
> >
>

------------ --------- --------- --------- --------- --------- -

No virus found in this incoming message.
Checked by AVG.
Version: 7.5.524 / Virus Database: 270.4.1/1519 - Release Date: 6/25/2008 4:13
PM

[Non-text portions of this message have been removed]


















[Non-text portions of this message have been removed]

I think private/family tracking of growth progress is a great thing. I have
issues of it when it's done publicly in a classroom, b/c then it becomes a
competition. especially since success in today's society is often geared by
size. Does this make sense?

Barbara
(achon and mom to Alexandra almost 4 yrs old, achon)
   ----- Original Message -----
   From: Rhonda
   To: parentsoflittlepeople2@yahoogroups.com
   Sent: Monday, June 30, 2008 1:22 PM
   Subject: [Parents of Little People 2] Re: Growth Charts?


   We mark all of our children's heights on the back of our basement
   door. Shawn is no exception. It is my opinion that failing to mark
   his growth progress on our door would be setting him apart based on
   his height (or lack there of).
   Rhonda

   --- In parentsoflittlepeople2@yahoogroups.com, "jannob980006"
   <jannob980006@...> wrote:
   >
   > Cat,
   >
   > We have always tracked our two oldest's height and when Knoah came
   > along, we marked the wall for him too!
   >
   > I think it's a misconception to say not place "emphasis on height"
   > because "Owen is who he is. Celebrate that!
   >
   > I am amazed to see how much Knoah has actually grown from his first
   > mark at 04/07/07 to today! He has grown 6.5 inches!! I wish I would
   > have marked the wall sooner, but we didn't want him to put pressure
   > on his feet.
   >
   > I thought the same way at first, but then realized, he is going to
   > get taller. It is not the same type of tallness as an AH person,
   but
   > taller no less! Track his height with pride! I see the only
   > difference between an AH child and our kids is, we already know
   > before hand their height cut-off.
   >
   > So, get out that tape measure and start marking the wall, it's fun,
   > it's educational, he's your first born, watch him grow with
   > happiness!
   >
   > Tonya
   >
   >
   >
   > --- In parentsoflittlepeople2@yahoogroups.com, "Catherine Wright"
   > <cmerciez@> wrote:
   > >
   > > As I was cleaning Owen's room, I found a kid's growth chart that
   I
   > was
   > > given as a baby shower gift. This sparked a discussion between
   my
   > > husband and I. My automatic response was to assume we wouldn't
   > track
   > > Owen's growth on a chart for fun (or wall as my mother had done)
   so
   > as
   > > not to put an emphasis on height. My husband though, disagrees
   and
   > > sees no reason to treat Owen any differently than we would an AH
   > > child.
   > > There's really no right or wrong answer, it just got me
   > thinking....Any
   > > thoughts on tracking growth progress (outside of a drs. office)?
   > Would
   > > love LP opions too!
   > > Thanks!
   > > Cat
   > > mom to Owen, 16.5 months, achondroplasia
   > >
   >






------------------------------------------------------------------------------


   No virus found in this incoming message.
   Checked by AVG.
   Version: 7.5.524 / Virus Database: 270.4.1/1519 - Release Date: 6/25/2008 4:13
PM


[Non-text portions of this message have been removed]

We mark all of our children's heights on the back of our basement
door.  Shawn is no exception.  It is my opinion that failing to mark
his growth progress on our door would be setting him apart based on
his height (or lack there of).
Rhonda

--- In parentsoflittlepeople2@yahoogroups.com, "jannob980006"
<jannob980006@...> wrote:
>
> Cat,
>
> We have always tracked our two oldest's height and when Knoah came
> along, we marked the wall for him too!
>
> I think it's a misconception to say not place "emphasis on height"
> because "Owen is who he is. Celebrate that!
>
> I am amazed to see how much Knoah has actually grown from his first
> mark at 04/07/07 to today! He has grown 6.5 inches!! I wish I would
> have marked the wall sooner, but we didn't want him to put pressure
> on his feet.
>
> I thought the same way at first, but then realized, he is going to
> get taller. It is not the same type of tallness as an AH person,
but
> taller no less! Track his height with pride! I see the only
> difference between an AH child and our kids is, we already know
> before hand their height cut-off.
>
> So, get out that tape measure and start marking the wall, it's fun,
> it's educational, he's your first born, watch him grow with
> happiness!
>
> Tonya
>
>
>
> --- In parentsoflittlepeople2@yahoogroups.com, "Catherine Wright"
> <cmerciez@> wrote:
> >
> > As I was cleaning Owen's room, I found a kid's growth chart that
I
> was
> > given as a baby shower gift.  This sparked a discussion between
my
> > husband and I.  My automatic response was to assume we wouldn't
> track
> > Owen's growth on a chart for fun (or wall as my mother had done)
so
> as
> > not to put an emphasis on height.  My husband though, disagrees
and
> > sees no reason to treat Owen any differently than we would an AH
> > child.
> > There's really no right or wrong answer, it just got me
> thinking....Any
> > thoughts on tracking growth progress (outside of a drs. office)?
> Would
> > love LP opions too!
> > Thanks!
> > Cat
> > mom to Owen, 16.5 months, achondroplasia
> >
>

Cat,

We have always tracked our two oldest's height and when Knoah came
along, we marked the wall for him too!

I think it's a misconception to say not place "emphasis on height"
because "Owen is who he is. Celebrate that!

I am amazed to see how much Knoah has actually grown from his first
mark at 04/07/07 to today! He has grown 6.5 inches!! I wish I would
have marked the wall sooner, but we didn't want him to put pressure
on his feet.

I thought the same way at first, but then realized, he is going to
get taller. It is not the same type of tallness as an AH person, but
taller no less! Track his height with pride! I see the only
difference between an AH child and our kids is, we already know
before hand their height cut-off.

So, get out that tape measure and start marking the wall, it's fun,
it's educational, he's your first born, watch him grow with
happiness!

Tonya



--- In parentsoflittlepeople2@yahoogroups.com, "Catherine Wright"
<cmerciez@...> wrote:
>
> As I was cleaning Owen's room, I found a kid's growth chart that I
was
> given as a baby shower gift.  This sparked a discussion between my
> husband and I.  My automatic response was to assume we wouldn't
track
> Owen's growth on a chart for fun (or wall as my mother had done) so
as
> not to put an emphasis on height.  My husband though, disagrees and
> sees no reason to treat Owen any differently than we would an AH
> child.
> There's really no right or wrong answer, it just got me
thinking....Any
> thoughts on tracking growth progress (outside of a drs. office)?
Would
> love LP opions too!
> Thanks!
> Cat
> mom to Owen, 16.5 months, achondroplasia
>

As I was cleaning Owen's room, I found a kid's growth chart that I was
given as a baby shower gift.  This sparked a discussion between my
husband and I.  My automatic response was to assume we wouldn't track
Owen's growth on a chart for fun (or wall as my mother had done) so as
not to put an emphasis on height.  My husband though, disagrees and
sees no reason to treat Owen any differently than we would an AH
child.
There's really no right or wrong answer, it just got me thinking....Any
thoughts on tracking growth progress (outside of a drs. office)?  Would
love LP opions too!
Thanks!
Cat
mom to Owen, 16.5 months, achondroplasia

What a wonderful and uplifting story!  I thank you as a parent of an achon child
for such positive words.  I cried when I first found out about my son but as
time as gone on....well, he's just amazing.  Little as he might be, he is a ball
of strength and determination.  I was told he would be a year before he could
sit up....two days later he was doing it (at 7 months old) and he would probably
be around 18 to 24 months before he could walk unsupported...he's walking at 14
months...brace and all.  I continue to be dumbfounded by his persistance and
easy going nature, and he's cute as a bug's ear to boot.  The only draw back is
people keep asking me "how old is she?"  He has a twin sister who is AH and
people often ask me what the age difference is and I have no qualms explaining
to them why he's smalller...and to my relief, noone seems to be freaked out by
it...I largely credit that to "Little People, Big World."  Even though I was
heart
  broken at first (only because I was afraid of how society would treat him, I
love him no matter what) I am now PROUD to be the parent of a little
person.   And I know I'm not alone in that feeling...we are all so proud of our
babies, AH, little, or whatever the case might be.  Through him, I have been
introduced to a world I would never have known otherwise and I feel privelidged
to be the mother of such a special child.  Not many parents get to raise a
little person so I feel blessed that God picked me to be one of them.  Thank you
again and God bless!


With Love
The Newmans
Erica, Darin, Colby, Morgan, Sydney and Sutton
 

--- On Mon, 6/30/08, Fred Short <mail@...> wrote:

From: Fred Short <mail@...>
Subject: [Parents of Little People 2] The old Fart wants to tell yer a
story.........
To: parentsoflittlepeople2@yahoogroups.com,
parentsoflittlepeople@yahoogroups.com
Date: Monday, June 30, 2008, 7:10 AM






Oh, I'm gettin old and me memory is playin tricks, but I reckon it was about
ten, eleven years ago when I first came across a mum with a three (?) year old
Achon daughter. The daughter was gorgious (hmm, so was her mum as I remember)
but her mum was worried sick about this frail, fragile (as her mum thought),
little girl.

How was she going to cope? What was going to happen? Millions and millions of
questions and worries.

Over the years I've kept in touch with the mum, and noticed, as time went on,
not only did the worries seem to evaporate into thin air, but the mum got
happier and happier, prouder and prouder (if that was possible) of her daughter
and her achievements.

Hell, we even discussed the wisdom of letting her daughter go riding. I, "ME",
was the one worried here! But, the daughter was extremely keen and the mum,
rightly, again, proud of her. She has gone on from strength to strength, success
to success in her riding.

Now, I happened to contact them the day it was the daughters FOURTEENTH
birthday!!!! !! As we say over here, "I was gob-smacked! " For starters, where
had the time gone?

Sooooo, I rang them! I got this female, sultry voice on the phone! I asked if I
could speak to the birthday girl. Agh!!!!! The reply was "This is she!"

The old fart was talking to a sultry voiced, GORGIOUS looking, fourteen year old
Achon girl! The very same one who is in the first photo I got of her, stripped
but for her diapers, all those years ago!!!!!!!

I've now got an updated photo of her and truly, she really is THE most gorgious
young lady I have ever clapped my eyes on.

Sooooooooo, what am I really saying? Well, just as I am 64 years ahead of some
of your children, so this mum and this extremely attractive young lady are but
14 years down the line. The thing is, as much as I represent the distant future
for your children, this young lady, truly, truly, TRULY, is testiment to how
much more wonderful (if that is possible) your child will grow up to be!!!!!!

Look at any of the older children with a similar condition to your own child,
and remember, THEY reflect YOUR child in a few years time!!!!!!!

Bless you all

Fred, the old romantic fart!

[Non-text portions of this message have been removed]


















[Non-text portions of this message have been removed]

Oh, I'm gettin old and me memory is playin tricks, but I reckon it was about
ten, eleven years ago when I first came across a mum with a three (?) year old
Achon daughter.  The daughter was gorgious (hmm, so was her mum as I remember)
but her mum was worried sick about this frail, fragile (as her mum thought),
little girl.

How was she going to cope? What was going to happen?  Millions and millions of
questions and worries.

Over the years I've kept in touch with the mum, and noticed, as time went on,
not only did the worries seem to evaporate into thin air, but the mum got
happier and happier, prouder and prouder (if that was possible) of her daughter
and her achievements.

Hell, we even discussed the wisdom of letting her daughter go riding.  I, "ME",
was the one worried here!  But, the daughter was extremely keen and the mum,
rightly, again, proud of her.  She has gone on from strength to strength,
success to success in her riding.

  Now, I happened to contact them the day it was the daughters FOURTEENTH
birthday!!!!!!  As we say over here, "I was gob-smacked!"  For starters, where
had the time gone?

Sooooo, I rang them!  I got this female, sultry voice on the phone!  I asked if
I could speak to the birthday girl.  Agh!!!!!  The reply was "This is she!"

The old fart was talking to a sultry voiced, GORGIOUS looking, fourteen year old
Achon girl!  The very same one who is in the first photo I got of her, stripped
but for her diapers, all those years ago!!!!!!!

I've now got an updated photo of her and truly, she really is THE most gorgious
young lady I have ever clapped my eyes on.

Sooooooooo, what am I really saying?  Well, just as I am 64 years ahead of some
of your children, so this mum and this extremely attractive young lady are but
14 years down the line.  The thing is, as much as I represent the distant future
for your children, this young lady, truly, truly, TRULY, is testiment to how
much more wonderful (if that is possible) your child will grow up to be!!!!!!

Look at any of the older children with a similar condition to your own child,
and remember, THEY reflect YOUR child in a few years time!!!!!!!

Bless you all

Fred, the old romantic fart!

[Non-text portions of this message have been removed]

I set up a Facebook profile where I can post my pictures, videos and events and
I want to add you as a friend so you can see it. First, you need to join
Facebook! Once you join, you can also create your own profile.

Thanks,
Mandy

Here's the link:
http://www.facebook.com/p.php?i=586797860&k=ZWFTZZ5YSVWM5BEHSK32QV&r&v=2

___________________
This e-mail may contain promotional materials. If you do not wish to receive
future commercial mailings from Facebook, please click on the link below.
Facebook's offices are located at 156 University Ave., Palo Alto, CA 94301.
http://www.facebook.com/o.php?u=1018293702&k=45ae76



[Non-text portions of this message have been removed]

I found two cute things to give away while cleaning out the drawers Preston also
has at my parents' house (can you tell he is the first grandchild)...
I have a brand new (Worn once for- no joke- three hours) an 18 month windbreaker
with a hood that is navy and red with the Reebok insignia. (Not super warm so
great for spring and fall).
 
Also a pair of jeans 12 months (not hemmed) with elastic waist from Mini Wear.
 
Whomever wants them let me know.
-Kim




[Non-text portions of this message have been removed]

I had my own approach to the "dwarfism doll". I went to a fabric shop
and picked up some wonderful iron-on paper that you can run through
your printer.
I printed up a great full length photo of my daughter Zoe,and made a
doll for her cousin - her very own personalized "dwarf" dolly!
  Well, so LOVED it, and toted it around everywhere. And, it was a REAL
person with dwarfism, not just a generic figure (which is what some of
the readers seemed to be responding to)
I highly recommend that anyone with basic sewing skills make up a
couple of your child to share with close family and friends. The Zoe
doll became VERY popular. I just wish I had made one for MYSELF, now
that she is 5 and not so interested in hugs...... sniff.

kind regards,
Shelly Elverum

Destini,

I have to laugh  about your last lines.  It's true!  Michael wore size 7
(modified) for about 10 years and he had more clothes than the stores!   I had
to keep the fashions appropriate to his age, I couldn't put the things he wore
as a 10 year old on him at 18!  Besides, everyone likes new clothes!

Peggie  -mom to Michael, (Hallermann-Streiff), Peter, John, Amanda (the only),
Devon, Shaun and Matthew (the last!)
   ----- Original Message -----
   From: Destini Davis
   To: polp 2
   Sent: Saturday, June 28, 2008 9:11 PM
   Subject: [Parents of Little People 2] Clothes Clean-out - shipping on me


   All the boys that I used to hand Trace's clothes down to are now bigger than
him, so they are up for grabs - and shipping is on me!
   A few 3-6m and 6-12m pants/shorts and tons of 6-12m shirts (a girl at daycare
took most of the 3-6m pants when Trace outgrew them last winter) both summer and
winter plus some odds and ends.
   I also made a second pass through Taylor's closest and have some 2-3T girls
stuff as well.
   Instead of trying to list them in email and send out multiple lists I have
posted lists on my blog http://tayandtracersbigday.blogspot.com.  Just send me
an email with what items you would like and your shipping address.  I will
remove the items from the blog lists as they are claimed.
   I know the sheer amount of clothes that Trace has is somewhat obnoxious, but
when your little guy wears the same size for so long, you have to keep him in
fashion :)
   ~Destini

   [Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

Dr Pauli didn't say. I imagine it will be the same as what we have been watching
--Heart, ortho, endo, ent, eyes, & genetics.  Brison sees those Dr's once a
year. He did say he would look at the disk he wanted to keep with MRI and
x-rays and give us recommendations when he returns it.  Yes you are right. It
was the Foos family. I stood not 2 feet from the Mom and the Dad and youngest
boy were there too on the 64th floor waiting to see the Dr's with us. Dr Pauli
did say Brison was quite small, even for RTS and his high pitched voice
surprised him. We learned that Brison's right leg is shorter than his left and
his right foot is a little smaller than his left. He also has something called
scooped nails. He has these on his toes. Let me tell you, when that child crawls
in bed with you at night, those nails cut you up!! There is no easy way to cut
them. I had no idea they were an anomaly. No one ever mentioned it. Dr Pauli
relaxed Brison like no other
  Dr has while looking at him. He let him even look in his mouth which can be an
ordeal. I really liked him. I felt he had a better grasp on Brison than any of
his Dr's did. We are glad we went.
                       Blessings
                       Penny

--- On Sat, 6/28/08, Vita <vitagagne@...> wrote:

From: Vita <vitagagne@...>
Subject: Re: [Parents of Little People 2] Dr Pauli visit at the Convention in
Detroit
To: parentsoflittlepeople2@yahoogroups.com
Date: Saturday, June 28, 2008, 8:53 PM






Penny,

Glad to hear that you got some positive responses from Dr. Pauli. Did
he give you any idea of which things need to be regularly checked for
Brison, or weren't there any that would need such attention?

By the way, that was the Foos family that you saw at the convention.
While I don't know them personally, they seem like a great family on
tv!!

Vita


















[Non-text portions of this message have been removed]

Penny,

Glad to hear that you got some positive responses from Dr. Pauli.  Did
he give you any idea of which things need to be regularly checked for
Brison, or weren't there any that would need such attention?

By the way, that was the Foos family that you saw at the convention.
While I don't know them personally, they seem like a great family on
tv!!

Vita

Thanks all for the comments...The support was just wonderful


"There are moments in your life that make you and sets the course for who your
going to be. Sometimes they are little subtle moments. Sometimes  they are big
moments you never saw coming.  No one asks for their life to change, but it
does. It's what you do afterwards that counts. That's when you find out who you
are."
 
"Without faith, nothing is possible. With faith, nothing is impossible."
 
 

--- On Wed, 6/25/08, Penny Stevens <briansangel172004@...> wrote:

From: Penny Stevens <briansangel172004@...>
Subject: [Parents of Little People 2] Dr Pauli visit at the Convention in
Detroit
To: parentsoflittlepeople2@yahoogroups.com
Date: Wednesday, June 25, 2008, 3:27 PM






Hi Everyone,
We are back from the convention in Detroit. Saw Mr
Rolloff at a distance and there is another family that has been on TV
I recognized. The mom is a school teacher and they have an autistic
daughter. I saw the Mom and Dad and their youngest son as they were
waiting to see the Dr's at the same time Brison was. I didn't say
anything though because I imagined they had probably been stopped
every 5 min. and asked questions so I didn't bother them. Any how. Dr
Pauli is just wonderful!! Even though our time was limited he checked
Brison out as thouroughly as he could. He did not have a computer to
evaluate Brison's x-rays or his MRI so he kept those to review at
another time.
He looked over Brison's history and was skeptical of Brison's
Rubinstein-Taybi diagnosis. He kept saying he would not have called
it like the other Dr's did. It was not until he did the physical exam
of really looking at Brison that he did start pointing out RTS like
traits. I thought for sure he would back track and say Brison has
RTS. But he did not. He had 3 different therioes. 1 was a mosiacism.
1 I can't remember but was really not much of a possibility either.
The last 1 and the 1 he thinks is really going on is that Brison has
a RTS- like syndrome. That someday what Brison has will be called
something different. He thinks there are others out there like Brison
that have diagnosed with mild RTS or not diagnosed at all because
they don't present enough features to be called RTS. He siad I was
not wrong in feeling Brison had the wrong diagnosis and he understood
exactly why I felt that way because he would question it also. So he
said bottom line is he feels Brison does not have RTS. He will review
the X-rays and send them back to me along with a detailed list of
what we talked about and his recommendations. So Brison does not have
a form of dwarfism but a dysmorphic syndrome that makes him very
small for his age and have some different features with low muscle
tone. I wanted to share our experience. I feel like our trip was well
worth it. Dr Pauli was just a really neat Dr. Vita, I don't have your
private e-mail addy so sorry I did not send you a seperate note. The
convention was nice even though we were there for just a really short
time.
Blessings
Penny Mom to Brison, my little unique fellow (3.75)



















[Non-text portions of this message have been removed]

All the boys that I used to hand Trace's clothes down to are now bigger than
him, so they are up for grabs - and shipping is on me!
A few 3-6m and 6-12m pants/shorts and tons of 6-12m shirts (a girl at daycare
took most of the 3-6m pants when Trace outgrew them last winter) both summer and
winter plus some odds and ends.
I also made a second pass through Taylor's closest and have some 2-3T girls
stuff as well.
Instead of trying to list them in email and send out multiple lists I have
posted lists on my blog http://tayandtracersbigday.blogspot.com.  Just send me
an email with what items you would like and your shipping address.  I will
remove the items from the blog lists as they are claimed.
I know the sheer amount of clothes that Trace has is somewhat obnoxious, but
when your little guy wears the same size for so long, you have to keep him in
fashion :)
~Destini




[Non-text portions of this message have been removed]

hi angie- my family just got home from church camp and your questions
may have been answered, but i don't see where they were and i am not
sure i have an answer either..but 2 questions back to you: 1. when you
say bowing, do you mean a lump on the lower spine or that her
buttom/tummy are begining to stick out and spine is going forward then
back out as you move up her spine? 2.  does the swollen area have
any hair on it or a small hole (dimple) in the skin? sorry, but as a
mom of a child with achon. and an aunt of a mom with spinal bifida
acculta (the skin on the back is intact), your answer to these
questions could help understanding what is going on. thanks-pam

--- On Mon, 6/23/08, lilrylee <lilrylee@...> wrote:
From: lilrylee <lilrylee@...>
Subject: [Parents of Little People  2] A couple of quick questions
To: parentsoflittlepeople2@yahoogroups.com
Date: Monday, June 23, 2008, 5:54 AM











             Hi again everyone.  I was just wondering about my daughter Rylee 10

months her achon test came back negative, So the genetic specialist

said she has a mild form of hypo. She is 24 inches long and weighs 16

pounds.  For the last few months I have noticed that her lower spine is

starting to bow out.  I brought this up to my doctor, I was extremely

concerned. She said not to worry about it, that Rylee might have

scoliosis. I didnt like the way she just brushed it off like it wasnt a

big deal. Lately after a long day visiting her grammy when we get home,

the area around the bowed part of her spine is slightly swollen. I am

not sure what to do about it. Nor do I want any test done that she

doesnt need.  There are no specialists in my area to ease my mind.  I

have a doctor who is inexperienced with little people.

Another question I have is just recently my mom gave me a phone number

to a family who lives close to me. They have achon.  I would love to

call and connect with them, but I am not sure how to go about it.  What

to say per say?  Ive picked up the phone several times and was suddenly

at loss for words.

Thanks for taking the time to help me in the past.



-angie





























[Non-text portions of this message have been removed]

Mike,
      I applaud your enthusiasm.  You and your family have jumped in with both
feet.  I think that is pretty rare for parents with such a young LP child.  Many
are still coming to terms, at this point.

      Sorry I did not get to meet you, or any of the POLP folk, in Detroit. 
Having a 10 year old, we are on his schedule.  Most of the parents I met were at
the DAAA events.  DAAA is time consuming, but great for the kids.  And after
all.....Isn't that why we are doing this?  When Steven wasn't competing, he was
holed up in the Fun Zone.

      For those who are unable to attend a National, I strongly recommend going
to a regional.  They are similar, but on a smaller scale.  Great sessions and a
chance to meet people.  Be sure to check outside of your region.  Sometimes an
adjoining group hosts an event that is closer to you than your own group.

      Don't forget.....If you can't make NY, start saving up for 2010 in
Nashville.

Regards everyone!
Jan Phillips

-------------- Original message --------------
From: Mike Mallinson <mike@...>
It's gonna be at the Brooklyn Marriott in New York! We've got a little
beer coaster that they designed to advertise next year's convention at
this one, but I can't find it so I won't guarantee the dates - but if I
remember right, it's July 4th thru the 11th. You can also check out
their website at www.LPANYC2009.org. We were talking with the co-chairs
of the New York conference committee earlier in the week, a really
friendly family with a two year old achon girl (who's totally
adorable!), and they said that the hotel is giving them a convention
rate of $179 a night for the hotel rooms. That's pretty pricey, but if
you've tried booking rooms in New York before, that's actually a really
good deal!

We'd talked with a number of parents from our side of the planet
(California, that is!) who weren't sure if it was worth attending when
their kids were so young, especially when it really can be expensive to
spend much time this far away from home. After spending a week here,
though, I've gotta say that I think this was worth every penny we spent
on it! This has been an amazing experience, starting with the banner
that was hanging in the Detroit Metro Airport welcoming the LPA to the
city when we arrived, to the final banquet tonite. As the parents of a
brand new baby girl with dwarfism, it was really cool to spend a week
where we were part of a veritable city of people like us. There was a
huge collection of people here, both LPs and AH family members. There
were people representing nearly every dwarfing condition, every state in
the US (as far as I could tell) and a number of international locations
including some from Japan, the UK, Panama and Costa Rica that I spoke to
over the course of the week.

We learned lots about what it is like to grow up with and live with
dwarfism. We learned about ways to modify your environment to make it
easier, from sewing and alterations, to home modification, to GM's
mobility initiatives (the conference hotel was also the GM world
headquarters, and they were the major sponsor of the conference). Some
of the time was spent on useful stuff, like the many medical workshops,
including the one on limb alignment and bowing problems that we
attended. Some of it was spent on vacation/sightseeing trips, like our
visit to the Detroit Science Museum/Art Institute. Much of it was just
plain social - a number of the families from this list were able to meet
up and compare notes and let the kids get to know each other, and it was
great putting a face to the names from the list!! And if we hadn't just
had the opportunity to have Caitlin examined by specialists at the
District 12 Regional in Anaheim, we would have been glad to take
advantage of the same opportunity here, with Caitlin's current
geneticist (Dr. George Tiller, also the bass player in the "Little Big
Band" made up of both LP musicians and AH doctors with a musical talent
which played the Barty Club on Tuesday night) joining Dr. Bernstein and
his team from Cedars Sinai as well as many others donating their time,
talents and training.

Before this turns into too much of a book, I think my opinion's obvious
(again, I tend to be an open book about this stuff, no?) but this was a
great experience. We've already come to the conclusion that we're going
to do everything we can to make every national conference - we think
this has been worth more than I can describe here!

I hope to see some of you guys next year!

Mike, dad to Evan (5, ah) and Caitlin (11mo, achon)

Wendy wrote:
>
> Hi everyone! This is my first posting here! Thanks for all of the
> great posts.
>
> I was wondering if anyone knew when and where next years convention
> was being held?
>
> I will post pics of our little Hope one of these days! She has not
> had any complications yet. We are taking her to Dupont in
> Delaware--they have been great so far!
>
> Thanks,
>
> Wendy & Bryan Brockwell, Virginia
>
> Chris-12 (AH), Logan-3 (AH), Hope-6mos (Achon)
>
>

--

Mike Mallinson

*M Factor Lighting*

/Live Event Design & Production/

Santa Clarita, CA

661.472.2657 cell

[Non-text portions of this message have been removed]




[Non-text portions of this message have been removed]

Hello,

I hope you and the new baby are well!

Do you have the health supervision guidelines for children with
achondroplasia?  They are on the LPA website.  If not, let me know
and I can send them to you. They will give you guidelines for what
type of specialists you will want to see and when.  That said, they
are only guidelines.  You may find your child needs more or less
visits with particular types of doctors as you go forward.

Your pediatrican or geneticist will likely make all the different
referals for you.

A sleep study is the only real way to know if your child has sleep
apnea.  The ENT or pulmonologist will/should order one for you.

There are two types of apnea....central and obstructive.

Kids with obstructive apnea can be quiet or noisy while they sleep.
It just depends on the nature of their obstruction.  My daughter has
severe obstructive apnea.  She hardly snores at all and when she does
it is very mild.  Snoring can indicate a partially obstructed airway.
Again, you really need the test to tell you.

Central sleep apnea occurs with our kids when they have problems with
a particularly narrow foramen magnum.  A sleep study is the only way
tell if this type of apnea is present.  An MRI which the neurosurgeon
or neurologist will order for you will give you a picture of this
area to see how narrow it is.  My daughter also had central apnea.
She had decompression surgery late last fall to address it.  It is
very important to have a neurosurgeon which a LOT of skeletal
dysplasia experience to read your child's MRI if it is at all
suspected that she may have a problem with foramen magnum stenosis.
These things get misread all the time.

It's lots to think about with a new baby!  It sounds like you are
doing a great job of being proactive with her health.

Between the snoring, eating, and diapers, I hope she is letting you
get some rest!!!

Take care,
Jennifer

--- In parentsoflittlepeople2@yahoogroups.com, "brayalex43"
<alexandrabray@...> wrote:
>
> Hi all
> my 3 week old achon baby snores a lot, is it a sign of sleep apnea?
We
> have her first appt with a geneticist on July 29th, I will ask
about
> seeing a neurologist.
>

Hello,

My daughter's face (14 months old achon), especially around her eyes,
are often a little puffy when she wakes up.

It goes away quickly.

Jennifer

--- In parentsoflittlepeople2@yahoogroups.com, lbrooks36@... wrote:
>
> My daughter's eyes are swollen sometimes when she gets up in the
morning and after naps too.? I think it is her sinuses.? She
constantly has sinus drainage.? I did not think one person could have
that much gunk!? She definitely has allergies.? Does your daughter
have a lot of congestion?
>
>
> -----Original Message-----
> From: amanda <kyleighsmom33@...>
> To: parentsoflittlepeople2@yahoogroups.com
> Sent: Wed, 25 Jun 2008 3:59 pm
> Subject: [Parents of Little People 2] swallen face
>
>
>
>
>
>
> My daughter is 16 months old and has achon..She is waking up with
her
> eyes swallen shut every morning and after every nap.When she gets up
> for a while the swelling goes away..Can anyone tell me what it could
> be.The doctors here keep saying circulation problem.
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

Hi Christine, You are a part of the Carolinian Chapter that is a part
of District 3. We (Colonial Chapter) are putting on a Regional
(District wide meeting) October 3-5 in Virginia Beach. We will be
having 2 doctors there as well as many fun things to do. Its a great
chance to meet other parents and other LP kids.
Information about that and other events are available on the Colonial
Chapter's web site
http://www.geocities.com/colonialchapter

The carolinian chapter's web site is
http://www.geocities.com/carolinianchapterlpa/

Although its not listed, the next chapter meeting for the Carolinian
chapter is July 19th in Charlotte. I'd be happy to share more
information if you like, feel free to e-mail me.
Cathy

--- In parentsoflittlepeople2@yahoogroups.com, Christine pickett
<proudmommao2@...> wrote:
>
>
> HI everyone-
>  
> I"m new to this support group and I hear about conventions in
Seattle, but are there any chances to get together locally?
>  
> I live in South Carolina and would like to get together with other
LP parents.
>  
> Thanks in advance,
> Chrisitne Pickett
>
>
>
>
> [Non-text portions of this message have been removed]
>