It's Paul's mom again...so since only one person replied to my last post about his head size, am I the only one that has had this issue with their child's head...
Hello, Kind of a random question.... I am SO tired of generating garbage with all of the disposable diapers!!!! I'm considering using some sort of cloth system...
Just wondering if anyone else with a child with achondroplasia has run into this situation. Ian continually fails tympanograms(sp?) during his hearing screens....
hello,,i am just wondering if anybody can tell me why they put the shunts in there head for (achon) my son is just 9 mths and his h/c is 51cm and grows 0.5cm a...
Hello All, I am approximately 11 weeks pregnant with my first child and questions are popping up left and right. I was wondering if you all might be able to...
I have a couple questions regarding development and tone in achondroplastic babies. Jake is now 7 months (Achon). At 6 months he started rolling from his back...
Hi all I was wondering if you guys still had your ultrasound measurements on hand? What were the long bones (femur/humerus) and the head measuring at during...
Hello I am the mother of a 2 month baby girl with achon. I am also a wife of an achon. I have a concern about my daughter's head shape. Her head is lopsided...
Hi, my daughter ( OI type III, wears size 5 t to 6X girls') is going to be graduating from the 6th grade this June. Does aonyone have any suggestions for...
I wanted to say that I think all of the expecting parents who have joined who already know there child's diagnosis before birth should be grateful that they...
I just added Brenden's Head Start Graduation, Cap and Gown picture to his album. He will be moving on to Kindergarten next year. Bruce, Proud Grandpa of...
So...Paul has always had a big head. He is 17 mo now. He has hydrocephalus (shunted) and chiari malformation (decompressed '08) and neuro is concerned that...
My son just turned 1; I think he might be a little person. Since his 6 month check-up the Dr's have been concerned with the large size of his head. The initial...
I posted back in December and everybody was extremely helpful. I wanted to give everybody an update as to what is going on with our beautiful daughter: Well...
Hi all. I am just getting into the group and wanted to post a bit about my family and perhaps get some idea of the experiences others have had up to this...
Hi, We are devastated. Last monday the pediatrician messured his head and it was 7mm bigger than last month...so we had to do an MRI to figure out why it grew...
my son is nine months today. I took him back to the doctors yesterday. They want to do physical therapy for him to help strengnth his neck and back. They dont...
Hi Everyone - This is Gail Blackburn (AH mom to 10-yr old achon, Britney) from the Arizona Chapter of LPA. I wanted to pass along some info about a new health...
Hi All, Today Brison was seen by the Genetasist for his yearly visit. It was quite interesting to say the least. He pulled Brison's RTS diagnosis saying that...
If we end up going to Maryland to see Dr. M. Ains, I was thinking about what things I would need. Wonder about stoller, and car seat. Because once we arrive...
I see so many young parents writing in so I'll share two quick, recent stories about my son (age 21) and daughter's (age 19)lives. I know your wonderful...
Hi Again~ Caden, 14 month achon, has Obstructive Sleep Apnea. We are supposed to be starting on bi-pap anyday (we've been waiting 6 weeks for Apria Healthcare...
Thank you to all of you who have taken the time out to respond to my question about tubes for Eli! This group is so very helpful! I'm going to give me...
hi i have only posted once before but i am excited,,travis is 9 months (achron) and has just started to do the army crawl it is so cute to watch him finally be...
Hi Seve, I wanted to let you know that alot of people from Montana use Children's
Hospital in Seattle. I don't know anything about the hospitals in Utah but...
Our son Eli is achon and 15 1/2 months. Last week we took him to a check up with the ENT at the children's hospital. Right off I was discouraged because I ...
Hey everyone I have just been a reader for the past few months, my profession revolves around sports and holistic massage.I found out at 20 weeks gestation...
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