I agree, nice pics. He looks very collegial. Bill ... -- "Strength does not come from physical capacity. It comes from an indomitable will." - Gandhi "A wise...
Riley came 2 weeks ealiey via C-sec. He had a very large head, was breech and had a leg stuck up by his head. My OB said C-sec was the only way to go. He was...
I wanted to say that I think all of the expecting parents who have joined who already know there child's diagnosis before birth should be grateful that they...
Hello, I agree with Kim that it is excellent so many expecting parents have found the group. It is helpful to get your arms around the diagnosis as much as...
Wow, I am surprised to hear about all the C-section deliveries and how it's highly recommended. My situation is totally different. My first son (AH) weighed...
Further to what I worte before..... Jeremy was born after 1 hour of labour (made it to the Hospital in time haha) but the doctor didn't make it, and I only had...
Hello I am the mother of a 2 month baby girl with achon. I am also a wife of an achon. I have a concern about my daughter's head shape. Her head is lopsided...
I have a couple questions regarding development and tone in achondroplastic babies. Jake is now 7 months (Achon). At 6 months he started rolling from his back...
In my opinion, I would try either osteopath or some cranial sacral therapy. Some massage therapist have cranial sacral training that they have taken in...
Jake also had a flattned head on one side. He always kept his head to the right and we tried everything to keep his head in the middle and to the left. He is...
Yes my daughter does prefer one side to the other. We are always trying to get her to look the other way but she keeps moving it back. ... to ... I ... also ...
Amanda, I had the same thing happen with my son, Luke (achon, now 21 months). I tried all sorts of different things but found the best thing for him was to...
Amanda, If you haven't yet tried, you can use either rolled up towels or commercial positioning cushions/pillows for infants. At two months old, diligent...
What about Talbots kids? I think they have a website. Cara ... From: Debbie <ladyred49525@...> Subject: [Parents of Little People 2] Re:...
i had lilah at 38 weeks, a week after my baby shower and two weeks before her due date. i was in labor for over 12 or 13 hours and pushed for an hour, then...
I realized that I didn't give Knoah's birth story, if your interested... After 12 hours of labor and an emergency c-section, they took him. When he came out,...
Jane, The degree of hypotonia varies from child to child and overcoming it varies as well and is affected by the child's medical history. Assuming your...
Hello All, I am approximately 11 weeks pregnant with my first child and questions are popping up left and right. I was wondering if you all might be able to...
Amanda, The tip that Cathy gave you about rolling a towel and putting it under your daughters neck is really a great tip. This is what we did with my son (now...
Hello, The ultrasound that I had at amnio around 16 weeks was as follows. They were all on target. Her humerus was actually a little long. Nothing was...
Jane, It's my understanding that foramen magnum stenosis can cause pressure on the brain stem, resulting in respiratory issues (central apnea) and neurologic ...
they can identify the gene that causes achondroplasia and I think hypochondroplasia with an amnio..not sure about other forms of dwarfism. ... questions are...
It's Paul's mom again...so since only one person replied to my last post about his head size, am I the only one that has had this issue with their child's head...
Hi Jenny, We all have been through this at one point or another. In our case, Knoah's head size jumped in size, but stay on coarse with his chart. This last...
hi my son and I are hypoconderplasia. the head is big in size. I right now my son is 9 months old and cannot hold up his head yet or sit up on his own. we are...
A good question for the folks at the Greenberg Center at Hopkins: http://www.hopkinsmedicine.org/geneticmedicine/CR/SKD/About_Us.html#Experts Vita ... From:...
I was offered an amnio when I was 20wks pregnant when they noticed my daughter was not measuring correctly- but I refused it. I was high risk anyway- I was...
What are some of the head measurements of your son over the past few months? My son is achon and his head is still growing. We will have another MRI in July...
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