HI Cary, Were you able to get a room yet? Were there any rooms at the flow over hotels? Let me know if you are still looking. Sarah ... Sarah Laurin Financial...
Hello all, Cruz had his 3rd Heart group appt. yesterday. His school nurse has been checking his blood pressure twice a week for over a month and it is very...
Tina, I am so sorry to hear that you are having all these issues. I don't know anything about the hypertension but since we are so close in distance if you...
Hello all, I am new to the group.My name is Alethia Barthel,and my 1 year old daughter has been diagnosed with Achondroplasia dwarfism.The first time I heard...
Hi Alethia Welcome to the group!? You have definitely found the right support group to come to for advice.? My daughter has achondroplasia as well.? She was...
I am booked at the non LPA rate at the main hotel for Sat. and Sun and at the overflow marriott courtyard for Tues night, but have nothing for Monday night....
Hello. I feel your frustration. My husband and myself are average height with two daughters 8 and 10 that are average height also and our son 4 months who has...
That was the problem I had when our son was diagnosised. My mom in particular. She started researching anything and everything but was not searching for the...
Hello, Sorry to hear about your little guy's blood pressure. I don't know his medical history or about all forms of dwarfism, but my understanding is that...
Thank you so much for your support. I don't know where to find a dwarfism specialist.where are they located? How can I find one? I have never heard of the...
I think this is VERY common - especially when an LP is born to a family of AH folk. Lots of us on this list can relay stories of family members reactions to...
Speaking from recent personal experience, (my daughter is 9 months old and has achondroplasia) sometimes the only thing you can do is wait for the features to...
Altheia, I agree with what has been written. When we told people about Julius who is now 5, we often heard people say, "oh I know my sister (brother, cousin,...
Thank you Mark My oldest sister tried to comfort me by telling me that the doctors told her the same thing about her 2nd child,and now she is fine,but I keep...
There are several places to go across the country, depending on where you are. Fortunately we're in southern California and have Kaiser coverage, and Kaiser...
Hi Alethia -- First of all, know that you are a great mom and doing the right thing...researching achondroplasia, joining this group, showing interest in LPA,...
... one aunt thought that the only reason that her and me were short was because we were not feed right as children. well after I said my piece to her we were...
Here is another angle maybe to try-A bunch of us mommies here at POLP have started blogs. We post pics ofthe kids, talk about their accomplishments and also...
I posted some updated pics of Preston at the Photo Page. Enjoy! -Kim ... Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. ...
Kim, I absolutely love the "Excited" picture.? Mary E. does that expression all the time, but I have never gotten it on camera.? I think he is the best dressed...
Hi Alethia Its actually easier now that my 9 year old son is older for people to see that he is not a typical nine-year-old-child. He wears the same size...
I'm very sorry to hear that your family is not accepting the diagnosis. There were a few stragglers in my family who didn't want to believe that our son is a...
Kim, Preston is absolutely adorable. His pictures look like they should be in a magazine. I love all his facial expressions. My Hanna has alot of them also. ...
As always, Preston is the best dressed 2 year old I know! He's adorable!! -Katie ... should be in a magazine. I love all his facial expressions. My Hanna has...
No, no, I'm not after a new wife, or an additional item for the bedroom! No, seriously, has anyone heard of anyone who actually makes dwarf shaped dolls for...
Just wanted everyone to know that I posted some new pictures of Caty in her album. She turned 3 back in March and is doing great. She's 100% potty trained,...
HI, There is a photo of a young girl w/ an achondroplastic doll on the sixth page in the older version of It's A Whole New View book. Perhaps someone knows...
Hi, My daughter Annika (15 months, achon) has outgrown some clothing that I would love to pass on. I have 3 pairs of capri pants, 1 pair of hemmed pants, 2...
Absolutely _wonderful_ photos of Caitlyn -- I got a real kick out of them, she's sooooooo cute!!! Plus, she wears pink Crocs just like me. :o) Bravo, Caty, on...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
