This is so common unfortunately.:o( Taking care of someone with a trach and
vent is really not that difficult but it is something that really frightens
some...
Welcome to the group Nora, Many people whose children who have the same situations and difficulties as
yours have found this group very helpful. Hopefully...
Amen to what Dannette said. On my last hospital stay, after my surgery, I was put IN the ENT ward. You'd think they would know basic trach maintenance. I...
Hello all, This is Crystal, mom to Drake (5 mos. achon.) I'll try to make this as painless as possible. Just to recap, Drake was admitted into the ER from...
Hey Crystal, I've mentioned before that Paige has respiratory issues. Part of it is her lung disease from being premature, but she also looks as though she is...
My son Dontae has been on Pulmicort 0.5mg since he was 4 months old. For him this has helped a lot and kept his respiratory stuff under control. THe thing...
I am grandma to a 28 month old achon who does not talk yet - he says hi, bye and da. We had him to speech therapy but are changing to another therapist...
Thank you...this sounds a lot like Jeremy. He does say hi (kind of) and ba for his drink. That is about it. So I need to check if he has had his hearing...
Andrea has never had to be on steroids.Well not since she was in the hospital at birth.She was a preemie, Although she does have a retracting chest.I was told...
Andrea too has weak muscles in her mouth and lips for speech.There are some at home exercises that you can do to help strengthen them.One of them is bubble...
When Clarissah was little we had this issue all the time. She was in the hospital monthly from it and yes she was on Pulmocort. She had no side effects from...
Hello Crystal! My son Cole, also 5 month Achon, was just diagnosed today with Bronchiolitis but tested negative for RSV. He is on a breathing treatment every...
Hi Crystal, My daughter (now 4 with SED) has a long history of respiratory problems. She was ventillator dependent and had a trach for several years. Because...
I agree with Holly's Mom!!! I have always looked at it the same way God thought that we were special enough to take care of these most beautiful children!!!!...
Hi are there any of you that have children with learning difficulties, my daughter is 4 1/2 and her language was assessed as delayed at 2 1/2 , at the time we...
Hi Mel, My son is 3 and a half(achon) and has a significant speech delay and is behind in many other areas. He started an Early Childhood program for children...
Hi everyone! My almost-10 year old son with SED/Kniest is looking for an email friend, preferably in a country other than the U.S. He would love to correspond...
Hi Brooke: Please tell Haley happy birthday for us!? My son, Ray, turned 6 today too.? Hope to see you at the Chesapeake meeting. Sharon ... From: brooke page...
... Hi there..my daughter will be 1 next month and she has pt and ot coming in because she is delayed also..she has achondroplasia as well she is just learning...
Olivia (14 months, DD) had a nasty case of bronchiolitis about 2 months ago. Took her a couple of weeks to shake it. It scared me because she had been...
I JUST WANTED TO TAKE A MOMENT AND SAY THANK YOU TO EVERYONE WHO PRAYED FOR HOLLY. AS YOU REMEMBER A COUPLE OF MONTHS AGO I SENT YOU AND EMAIL SAYING THAT SHE...
Hello My son is 2 years old and is also having developemental delays. He sees a speech theropist once a week, and he goes to a toddler group twice a week to...
That is wonderful news!!! I am so happy for you all. Yes the power of prayer is amazing! Tricia ... From: Click Annie To: ajnrs@... ; alagalli6@... ;...
I just wanted to share some of our most recent photos of Cole! He just turned 5 months old on January 1. How quickly time flies! Here is our precious boy! Cole...
Cole is very cute -- he looks big for only 5 months old, so perhaps you have a future LP "bruiser". :o) Vita ... From: "kajohnson24" <bkjohnson24@...> ...
I live in NC and it was pretty quick getting a diagnosis (genetic blood test a couple days after birth). I'm trying to keep a balance on looking up info....
Hello all...my son, Paul, has some form of dwarfism....or so we thought. They are now saying that he may have some kind of gigantism. I am at a loss. How can...
Hi Morgan. I see you're from NC. What big city are you near? I'm about 45 minutes east of Raleigh. We belong to the Colonial Chapter. Angie Patrick (m.e.d) ...
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