Hello all. My name is Lauren and I am 30 years old. I have a 9 week old daughter that was diagnosed with Skeletal Dysplasia and they are pretty sure that she...
Absolutely worth checking out. It could be a sign of a headache (my AH daughter with hydrocephalus gently thumps her head on her headboard & the kitchen table...
Hi everyone! My name is Jenny and I have a 9 month old boy with an unidentified type of dwarfism. I really need to be in touch with others about this. It...
Hi Lauren, I just wanted to welcome you to the group. I have a 3 1/2 month old baby girl, Kaela, with a rare skeletal dysplasia (Metatropic) and almost 2 year...
Hi Jenny, Welcome to the group! ... Sarah Laurin Financial Aid Officer University of Michigan Law School Financial Aid 734-764-5289 [Non-text portions of this...
My boy's name is Paul and he looks just like an acon but testing was negative. Does anyone know if these genetic tests can be wrong or if there is another...
Hello Jenny and Welcome to the Group! I think you will find alot of good support and information here! Wendy, Walker's Mom (age 6 - Achon) Below is a poem that...
Welcome Lauren! Hope you find as much comfort here, as many of us do. I have a son, Walker who is 6years old with Achondroplasia...I am not familiar with CHH,...
Hello, I would like to welcome the new members,and let you know I know understand what your feeling. It's been almost a year since we found out Cruz had a...
Sorry to hear about your flusteration today! I have been there many times myself, especially when they were trying to diagnose Walker; they pretty much could...
My Wife and I have two sons. We both are achons. Our oldest son(16 yrs. soon to be 17) is average height at 5'8". Our youngest son (10yrs. old)is also an...
It tears my heart out to hear there are so many frustrated parents on these lists:-) This old fart of a 63 year old Achon worries about you all ! I know that...
Hey there~ This is Nichole, and I have a little girl that is 14 months old and has been told she has dwarfism. We don't have an official diagnosis yet. They...
Hi Jenny, Welcome to our Little Family. I am Carol, mother to Zoe 14 months Achondroplasia. Where do you live? Did you get in contact with the Local...
Hi All, I was looking through all the new pictures that have been posted lately. I love to see all of "our babies", each one so precious and all rare...
Hello, My almost six month old daughter (achon) used to sleep through the night until a few weeks ago when she got sick with croup/cold. She was diagnosed...
Ken, My sister and I are both average height, but I was the older one....now I don't know if it really has anything to do with your younger one being achon or...
I hope you got this message. I think it is weird that we live in the same town. I think we should chat more. You can email me whenever. I don't have a...
I replied to you privately. I would love to chat more and even meet up and let the kiddos play. Nichole malachitemomof2 <malachitemomof2@...> wrote:...
Jennifer, I'm obviously not an expert, but I would agree with your assessment that she has just gotten used to this, and that it's worth the "crying out". My...
Fred,ya old fart,ha ha,I'm sorry,please don't let my emotions annoy you :-) I guess some days everything just gets to me. I know I am blessed and that things...
Fred, I loved your message. I love the last part and I believe it. Our baby girl, who happens to be one of the more rare ones, is such a joy to have! My...
Our son Cayden sees Dr. Pauli and he is very thorough and feel very blessed to have him as a specialist. Cayden has achondroplasia and we live in Portage Wi. ...
My daughter who is 3 also has an unidentified type of dwarfisim.If you would like to chat or if there are questions I can answer please e-mail me privately. ...
Hi, I got an appointment at Dupont on the 19th and was wondering if anyone has seen drs Mckenzie and Bober. And how it went. And any info you can give me as...
What Levi has done for me. I have reconnected with friends from my past. I have met many wonderful new friends. I have learned to slow down. I cherish...
Hi, My son's name is Brison and he is almost 3. There are pics of him in the files and we are right outside of Springfield Illinois if anyone would like to...
Hi Sara, We are in central Illinois. sara tredinnick <saratredinnick@...> wrote: What district are you in? Cayden is 5 and about the same size. He is 24...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
