My 4.5y/o adopted son was diagnosed around Jan with Growth Hormone,Thyroid and ACTH Deficiency due to his Pitutary Gland being damaged at birth. He was a...
Hi April, I am so sorry you have had to deal with so much when you should just be enjoying your new baby. I am NO EXPERT but I can tell you that my daughter...
HI there. I also have a daughter who is four and gets the same comments. She too was adopted (isn't it a great experience?). :) I think the BEST thing for...
Hi. My name is Jennifer. I am a happily married to Lowell and we have a handsome son named Scott. In Dec, 2003 I was 7months pregnant and the docs noticed that...
Hi April my name is Deborah I am a mother of son who was born as a little person and just to answer on of your questions about if babies with dwarfisum are...
I don't know about the average "diagnosis time", but I think most of the kids with short trunk type dysplasias are diagnosed well before 5-10 years. The SED...
Thanks for the support. Funny thing is that our other son,Zach, is in the 97th percentile, Asian and HUGE. Oh...only 3 months older than Ethan. They have a 22...
I can relate to the size difference. My adopted daughter is 9 months older than my adopted son. My daughter has precocious puberty - at 4 years of age she...
I have 7 adopted also! the three middle ones (including Michael, Hallerman-Streiff) are 20 months apart from oldest to youngest! The real "oldest" is 29,...
Yes, my son Trace wore 0-3 month pants until he was probably around 7 mos old. He is now 14 mos old and is wearing 3-6 mos pants and 6-9 or 6-12 months...
April, My son recently had x-rays that showed "mild achondroplasia" and we have an appointment with a geneticist in October. He'll be 2 1/2 by that time. He...
I was wondering if there are a lot children here that are proportionate yet will not be "average height"? My son looks completely normal other than a slightly...
You're not alone out here, Jen! All 3 of my girls are short-statured proportionate, as am I (I'm 4'7, or was, shrunk a bit the past year because of my Lupus so...
Jumana & Mara, Thanks so much for your kindness and information. I don't feel so alone anymore. Here is some of the backround info on us. Hubby is 5'7" and...
You may want to contact the MAGIC Foundation. They specialize in growth problems and may be able to direct you to some articles and/or doctors who could help...
This is a big issue for us too. Ethan looks like he is a skinny 2 year old. He does have damage to his Pitutary gland which causes the GHD, Thryoid and ACTH...
Hi there. I need some help for two items for Annie. Is there a stool you would recommend I get Annie to use in the bathroom and kitchen? She is about 28...
Hey Susan! It's odd that you should write this, I was just emailing with another Susan over on the MAGIC list about her son who's got similiar issues. Have you...
You may want to read this article about SGA: http://www.magicfoundation.org/www/docs/113/small_for_gestational_age.html. I didn't think having an SGA diagnosis...
Meant to add this to the last email ... they think the anemia is more of a concern than the reflux? Oy vey, they off the mark! I've been through both...
Mara, Scott was diagnosed with Reflux when he was still in NICU and we have been keep it under good control with medications. He has had an upper endoscope to...
Hi All, My 8 month old daughter who has Achon. is constantly trying to sit up when she is sat on our knee's. I try to lean her back as don't want her back to...
Michelle, If she is pulling up then she is ready. Preston started to pull to a sit between 7-71/2 months and was sitting for short periods by 8 months. When...
HI there, I was just reading about your LPA experience. I just love the LPA for ANnie because she comes away from meetings THRILLED to "be tiny" as she says....
Thanks Jumana, I agree with not giving them HGH unless it is essential to their health. His endo is erring on the side of giving him HGH and I am thinking of...
Mara, Thanks for writing. What does the "Pan" part of this mean? Ethan wasn't breathing when he was born and this caused a bleed near his Pitutary gland. When...
Hi Jen, I just went back and read this again. Scott is bigger than Annie. She is 4 and in 12 mos or some 18mn. As far as the endo, we have seen two and they...
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