My daughter Hailey has been wearing orthotics since she was 6mths old due to her bowing in her legs and the fact that they tend to turn in, she wears afo's...
Hello does anyone know of any good portable highchairs? I need to get one for Preston, they never have proper highchairs at restaurants that have enough...
Is Preston sitting up yet? We have a Fisher Price Healthy Care Booster seat that we use for Trace, but he is already sitting up on his own. It has a high...
Yes he is sitting up on his own. I was actually looking at that highchair but I wasn't sure if there was enough support for him. Jennifer ... Booster seat that...
Apparently Knoah has his third ear infection in two months. The doctor said a bulging fontanelle's is common in achondroplastic infants. As long as I can feel...
Tonya, Glad to hear Knoah is ok (well, ok with an ear infection, allergies and asthma!). I agree about walking the line. I did the same thing with Michael....
HI everyone! I badly need your help: today I met a mom whose daughter (5 year old) was recently diagnosed with an apparently very rare "type" of dwarsfism: the...
I found one on Walmart.com and they also carry it in the store and I love it. I bought it when my daughter Rebecca (2yr achon) was about 1. It has a nice...
Jennifer, A while back I posted a link for a portable booster seat. It would only work if a child could sit up on their own. It was by Eddie Bauer and was...
Hello Everyone, I have a FisherPrice Space Saver from Target for $50 and it is great. It reclines at three diffrent levels and the tray can recline with the...
My niece is 3.5 years old. She is wearing size 18 month clothes. The same ones from last year. She has almost stopped growing. She grew 1/4 inches in the last...
Hi all, Unfortunately we couldn't come to the national conference due to my husband's class he is taking. We will be in Seattle July 8th through July 12th. I...
Kids and adults with dwarfism and their families, enjoy an afternoon filled with fun, food, friends, and helpful information at MIRAMAR LAKE . Free. Sunday,...
Hello, I wanted to poll the group a bit about where to go with my daughter. As I mentioned before, she has achon and is now eight weeks old. We have access to...
What about the dad? Is there a dad on the scene? Maybe you could talk to him. He might be just the influence needed with the mom of the child, or he may be...
My 7.5month old son was recently diagnosed with Hypo. We have some real questions about the diagnosis, and I was hoping that maybe some of you could help us...
Jennifer - We go to DUpont and the specialists there are wonderful - DR MacKenzie in orthopedics is really great and we are going to have to make a decision...
My son and I both have hypochondroplasia. I'm 31 and am 4'10" with the "typical" stature of a hypo adult. Although I'm generally proportional, a skilled eye...
Danielle, I can only imagine how frustrated you are. You are very kind to post this on behalf of your sister and neice. I have a suggestion, it may not be the...
Taryn - my son was diagnosed with hypo between 10-12 months old. Our pediatrition recommended genetic testing because Ryan looked "just different enough". The...
Taryn - my son was diagnosed with hypo between 10-12 months old. Our pediatrition recommended genetic testing because Ryan looked "just different enough". The...
We take our son, 11, SED to DuPont. I don't know much about Hopkins, except that it is also a wonderful place. The only things that I can tell you is that...
Jennifer, you know I would send you to duPont! Leslie <DIV><FONT face="comic sans ms" color=#ff7f00>Leslie Ferguson-Dietz <BR>Trustee <BR>California Pacific...
Jennifer, First of all, congratulations on the birth of your baby girl! My name is Dee Miller and I am an achon also and a member of the LPA Medical Advisory ...
Thank you, Dee, for bringing this up~ No offense to the people at Johns Hopkins or DuPont, but they really aren't the ONLY two hospitals in the world to go. It...
It is a good suggestion, and I have tried it. She will throw out whatever I give her, not even look at it. My mom has looked at it though and says she will...
Hello: This is just to introduce myself and say how happy we are to have found this list! Our daughter Hanan was born 9/22/06 & has achondroplasia. We have...
Hi Sholey, Welcome to the group. Your Hanan is exactly 20 days younger than my son, Luke, who also has achondroplasia. I am sure you will find a wealth of...
So glad to find another family using a band...my son is undiagnosed and got a band yesterday from Cranial Tech. Would love to chat personally;-) Renay<>< Mom...
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