Jeannie, there was a space in the link you were clicking on. An easy way to find it is to google Jake Grys and click on the link that comes up there. Thanks...
I would love to sign the petition but it will not let me to go the site please let me know if there is another way to do it . thank you Jeannie please email...
Jodi, I'm a not a "newish" parent (my kid is long gone and has kids of her own) but I live about an hour east of Portland in the Gorge, and yes, I will be ...
Hi there, I really wish I hadn't committed to the MAGIC (RSS-SGA related group) convention this year. LPA is a lot more positive and upbeat. I cannot wait to...
Hi Jodi, My daughter and I (and possible some of my sons) will be attending. We've only known for about five-six months that Eliana is an LP, so I consider...
Rachel I would personally try to take her to Dupont. I have been taking my daughter there for a few years, and I would not go anywhere else. I believe she...
Any new(ish) parents planning on attending the conference? I would love to meet up with anyone (especially anyone from the portland, or area, where I am from)...
Thank you everyone who signed the petition. I absolutely love reading the comments about your children. Sometimes it just helps to know that there are others...
Thank you so much, we try to help Jake live his life to the fullest and experience all he can. It has cost us all of our savings, but he is a very well...
No problem! I will be sending this out to everyone I can contact. Jake seems to be one cool guy, and your family is obviously very supportive. I loved...
I'm so bummed! My daughter, Caitlyn and I were just visiting San Diego this past weekend. We live near Sacramento, but my brother and his fiance live in SD....
Jake was nominated by Easter Seals for Extreme Makeover Home Edition. We were contacted by a casting director asking for an updated application and photos and...
I think Dr McKenzie always checks my 4 1/2 year old's hips because bow leggedness can sometimes cause problems in the hip as well. If they have the hip problem...
Great! We live in Temecula. On a side note, we attending one LPA event last year in SD. My oldest child (he has autism) decided to strip naked and jump in...
April Please get a second opinion I will keep AJ in my prayers as well please email me privately if you have any questions I have had some experiences in...
On May 5th, the McCrory family will be hosting a basketball game at 11:00am at Carolina Friends School in Durham, NC. We will lunch at a local restaurant and...
Kids and adults with dwarfism and their families, enjoy an afternoon at the park filled with fun, food, friends, and helpful information. Free. May 6, 12:30pm ...
I recently bought a kit from Home Depot for a play structure. I had also purchased additional lumber to build a ramp for Nora (3 yrs. achon). BUT...the first...
Thanks Bill...!! ... tell you ... stability and ... help, as it ... steering ... there. I'm ... well your ... pillows, etc., ... Go out to ... is ... since...
My best advice is to get your child behind the wheel and let him tell you what he needs. The most important thing (besides pedals) is stability and field of...
This would be a great question for the Dwarfism Yahoo group since you'll get more input there. Besides pedal extensions, a panoramic rearview mirror and small...
The neurologist isn't convinced Knoah is having seizures. We have never had films of his neck done because he has always woken up out of sedation with the MRI....
My son Danny 4 1/2 (Achon) has been complaining of hip pain. Waking up in the middle of the night crying. We have never had any problems with him before, 1...
Hi, My son is now 10 (achon). We also purchased a sturdy wooden swing set with a club house top that has a slide. In place of stairs we have a ramp (like a...
Hi- I'm sorry I don't have any suggestions to offer around clothes, but I thought I would give you a link to a support group for people with Kniest and similar...
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