Hi all, I have made an album with a few photos of Sebastian, one when he was only six weeks old to just his overall proportions - he would still lie flat on a...
thanks for this post. i am sorry this happened to you--this sounds awful, very scary. in what circumstances might drs do a myelogram, so i can watch they don't...
Karen, If I had to venture a guess I would say hypochondroplasia since achon has been ruled out. His body looks identical to my Preston's but you said achon...
Karen, If achondroplasia has been ruled out, then hypochondroplasia would be my next guess, although pseudoachondroplasia _could be_ a possibility too. An ...
Thank you to all who have replied! I really appreciate the input, and look forward to hearing more! ... From: parentsoflittlepeople2@yahoogroups.com ...
Wow, that's amazing considering that DuPont in Delaware is one of THE places to go. While I don't doubt that they told you that, perhaps whomever you spoke...
Hi jodi, My name is Mandy mom of Andrea who is 3.She is undiagnosed.We get ssi for her.I think you should apply.It does help out with monthly expenses. SSI...
I'm no doctor either, and since achondroplasia has been ruled out, my next guess would also be hypochondroplasia. He does look very mildly achondroplastic, so...
I also agree that he looks Achon but I'm not familar with all the different forms of dwarfism. Maybe I missed the post about Achon being ruled out but how did...
Thanks everyone for your answers. I am just so confused by it all. Achon has been ruled via blood test. Blood test for hypo currently being done, but I know it...
Hi Danielle- My curiosity got the better of me and I did a search on the Nemours website. The Nemours Childrens Clinic in Orlando has a "Division of Genetics...
Hi Karen, I'm Lynn, mom to Eliana (el-lee-AH-nuh) 18 mos old (Hypochondroplasia which was diagnosed via x-rays at 13 mos). Her doctors told me that it is...
Hy Lynn thanks for your answer, and for the compliments :-)! Seb is now nine and a half months old. It's interesting what you say about the diagnosis! All the...
Hello to all. I have a 5 1/2 month old son who has achondroplasia. Since birth, he has had a terrible time gaining weight, which is a bit strange since he ...
Hi, I saw that they have the genetics dept, but what the girl on the phone told me was that they don't have an orthopedic dept, and i'm pretty sure that is one...
All I can say is that my son gained weight slowly and even lost some when he started to be more active. He is 19 1/2 months and only weighs about 20lbs. I...
Um, I would call again. Here is THEIR website showing an orthopedics department: http://www.nemours.org/internet?url=no/ncc/svcs/div524.html It's NOT you!!...
I echo Becky. Achons gain a little slower. Have you printed out the achon charts in the Files section? He should not be plotted on average height growth...
That is Jacksonville, not Orlando. Although Jax is still closer. Danielle ... From: Barraza Family <eeladnil@...> Date: Monday, April 2, 2007 7:28 pm ...
The Pediatrician I go to has 3 kids with achon, so I don't doubt his opinion. my concern is that my son doesnt eat much at all. His doc has the achon growth ...
I must have missed the original question and couldn't find it on the main message website all I found were the replies; did this post have a different title...
My son had a problem with eating solids, his gag reflex was so sensitive that if it wasn't liquid...it wasn't going down! I didn't think he was ever going to...
Hi Mara, This topic kind of stemmed from me saying in my introduction post that I am planning on taking my baby to shriners, but was also looking into...
Sorry, read the post quickly. Sounds like Orlando might be a satellite of Jax, which is a satellite of Wilmington, DE. IMHO, it's still a good place to...
When my son was born (achon) he had a very hard time feeding (nursing). He was losing weight, everyone was very concerned and we worked very hard for 8 eight...
Please feel free to e-mail me privately. My son has achonodroplasia, is 18 months old and weighs almost 13 pounds. He weighed 6 lbs. 11 ozs. at birth and had...
My Son Connor had issues with latching from the start. He was born weighing 8 lbs and dropped 10%. He even had difficulties taking a bottle because his tongue...
This discussion is very interesting to me...my achon daughter (21/2months) also had trouble latching on when she was first born. It was a shock to me because I...
Danielle, We go to Nemours in Orlando and see a geneticist by name of John McReynolds. There is also another geneticist that we have not seen. I believe it is...
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