Nicky Ehle sent this article link and message to you from the ArcaMax Publishing website: Gallery Picture - 24695 http://www.arcamax.com/parents/galpic-24695 ...
Thank you so much to everyone who took the time to send my family and i information. Ayden was discharged from Childrens on tuesday and then wednesday...
Angie, I would have her evaluated by a dwarfism specialist-orthopedist. I don't know where you are located. They would be the best to give you proper advice...
My son is 6 years old. The doctors are watching his legs and knees very closely. Because of the severity of the bowing, when he walks, his knees go outwards...
Amy, You and your little guy are in our hearts and prayers. Hang in there Ruth <BR><BR><BR>**************************************<BR> AOL now offers free email...
I just wanted to let you know what is going on with our little "pickle" (that is his nickname that we gave him at 4 weeks old.) We got home Tuesday around...
I had my upper neck/spine fused when I was in 4th grade. I'm now 22 years old and other then not being able to turn my head anymore I do just fine. The ...
Anna, Are you achondroplastic? I'm glad that you feel strong and functional and complete after having been through some really difficult stuff as a child....
Amy, I am praying! What a long road you guys are on... God is able and I KNOW He will continue to give you strength and wisdom. You are such a great mom to...
I can answer this one, Anna... Halo pins sometimes become loose and have to be tightened by the doctor -- plus the various joints on the halo structure also...
During Knoah's pregnancy, my family and I had to recieve the Rabies Vaccine for post exposure. I recieved a total of 4 shots prior to finding out about the...
As you have said there is no link nor reason to report it. Don't waste your time. Jill(Nick 30 months , achon) ... my 2 cents.... ... pregnancy, my family and...
Just one of those interesting coincidences in life, but not worth mentioning to CDC or even your geneticist since Knoah's achondroplasia was determined at his...
My son, Mason at 3 mos achon was to go to children hosptial for his 1 st MRI Test this coming Friday, now it is cancel because they didnt know he was a infant....
Teresa, Please print out the achon growth charts (weight, height and head circumference) in the Files section of the POLP2 group. This is so important. They...
Hi Teresa First let me say that I live close to Birmingham....we, too, are using a neurologist at Children's Hospital. What doctors are you using? We've...
I hear your scream, Teresa, and raise you one AARGH!! :o) I think that any parent who deals with the medical community has frustrations that crop up. Just...
Angie, We had a wonderful presentation at our last Regional about bowed legs. Make sure the Ortho looks at all of the joints, hips, knees, and ankles. Dr...
To all other parents, My 5 month old, Jacob is having a MRI done on March 22. My concern is about the anesthesia. Do we need to ask the anesthesiaologist if...
Denise, My daughter had her 2nd MRI at 6 months old and before her neurosurgeon scheduled the procedure I asked about the anesiologists that would be working...
My son is 16 months old and has only had one MRI. I don't understand why your daughter has had to have three before she's even a year old. How often do your...
The February 2007 LPA youth event attracted 12 youths/young people, including 7 LP's. The group had a good time playing basketball, followed by unstructured...
Mary had one at birth to check for foramen magnum stenosis which revealed significant stenosis. She was having a few symptoms that her stenosis was getting...
Hannah, I'm answering your question at all of the groups because many members don't get POLP PhotoPage messages via email. Plus, it's a very good question! :o)...
Marla, I guess the owner of that group decided either to disband it or move it to another venue (msn maybe?). Thanks for the alert, though -- I deleted the ...
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