I just went to send this and it didn't go through, so hope this isn't a repeat. My 9 wk. old daughter with achon., Corinne is constantly congested with large...
Lisa, There's little to add to the wonderful suggestions about holding your baby that you've already received. Creativity and resourcefulness goes hand in hand...
Hi Alicia, I remember when Nicholas was an infant and we visited his dwarfism specialist he told us the congestion would last until he was 3, 4,5 yearsold. He...
Did anybody watch Deal or No Deal last night? There was an LP playing for the million dollars. She will be finishing up on the next episode. I just thought I...
It sounds as though you are doing the right things - just a thought - are you sure the baby isn't refluxing? WHen I would suction my achon baby boy's nose I...
Hydrasense baby mist works better than nasal drops. It's actually a pressurized mist that is made for infants. It is not habit forming ( meaning it cannot...
That was a friend of mine, Vicki Montezingo, from Seattle. Her sons (one AP, Peter, and one LP, Andrew) were with her, as well as her friend Marylou (also an...
Thanks Bill. I couldn't remember her last name. She was wonderful if you ask me & that one son of hers (Andrew) is gorgeous. To bad he is so much older than my...
Lisa, I noticed the same trend with regard to achon children often being the youngest in a family and I think I read somewhere that statistics also support...
I wasn't that old when I had David and I've seen many posts that the achon child is 1st born. Just my 2 cents Becky erin4henry <gill_erin@...> wrote: ...
Becky, Just as the instances of Down's Syndrome in children appear to be related to increasing age of the mother (the mutation originates from the egg), there...
If Katie has a severe hearing loss, she will be needing to be fitted with hearing aids. She has some hearing, and that hearing needs to be developed. Once she...
Becky, It is relatively well documented that achondroplasia (amongst other things) _can_ be attributed to advanced paternal age - but of course that doesn't...
By all means, hold the baby! When you're holding a baby, there are little movements all the time as you both move around and adjust. This encourages the little...
My daughter is still chronically congested and she's 8, so maybe it's an anatomical thing with the midface issue and the little nose. Anyway, a nurse...
We met with Dr. Pauli on Thursday. What a man!! I am in love! He gave us alot of inforamtion as it pertains to Knoah and Knoah is just about the picture of...
Nice to know how much you liked him! We are supposed to see Dr. Pauli in March. I'm really looking forward to it, esp. after hearing your reaction. Alicia...
I remember the first time we met Dr. Pauli....I had heard so much about him from other families and I felt so blessed to be able to take Tristan to see him. I...
It is so nice to hear this. We also go to meet him in March. David's mother has had several phone conversations with his staff (Annie) and we did meet with...
Hi everyone Hope I have posted this message to the correct place now, as you can tell I am new to this site!! I have 2 beautiful daughters, one a/h who is 4,...
I had to write in just to second what you've said. It is not just that Dr. Pauli is a dwarfism specialist that makes a visit to him so worthwhile, nor is it...
Hey Michelle, What Dr. Pauli said was that everything we discribed sounded like Knoah was having seizures. He said he is not convinced otherwise. He believes...
Tonya, I am so glad you had a wonderful visit with Knoah and his doctor. When my son was born with Achondroplasia (we did not know until after he was born; a...
Hi Michelle, Nice to meet you. I also have two daughters and my newborn daughter has achon. My older daughter is AH age 3. My newborn is 9 wks with achon....
Hi Michelle, I had to use the suction on Alli(9 yrs old, achon) also, she hated it but it wasn't hurting her at all, plus we used saline drops to help loosen...
Good Evening All, I have been away for a little while. I have a question and I am hoping that someone will be able to offer some ideas. I had to leave my job ...
Nicole, I work from home and have done so for the last year. I am a medical transcriptionist. How fast can you type? I took a few courses from a tech...
I have been working from home for over a year now. I am always looking to see what is out there however the one I have done for a year is good and legit. You...
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