Amy, An orthopedist who sees patients with achondroplasia on a regular basis would be in the best position to advise you on whether it's alright for you to use...
Hi. I have an adopted girl, now 16 yrs. from Romania. I'll like to know if anyone have adopted children from that country. She came to my life when she was...
My son (achon.) is now 3 months and 1 week old and he is not sleeping for more than an hour at a time in the night. He also sleeps with his head very tipped...
Thank you for the information. My son actually was in the hospital for the firlst 9 1/2 weeks of life. He does have central apnea and is on meds to help that....
He might be starting to teeth~ my AH daughter started that at 4 months, and a little of baby Tylenol did the trick. I don't know about the head tipping back...
My son, who is now almost six months, slept with his neck extended and to the side ( he has a flat spot now). The doctors informed me that babies with low...
Do you have a pulse-ox machine at home? If he has apnea it is a good thing
for your Dr. to write a prescription for so that you can be assured that his
oxygen...
Before we used the carseat to help keep David positioned we were told to try to put a small rolled up towel under his neck to help control how far it would tip...
Definitely agree to the sleep ox monitor. That would be wise. Have you had an MRI of the foramen magnum yet? For some reason this rang a bell for me. I...
Amy, Amelia I believe answered this for me when I had this question. Preston at about 3 1/2 months began sleeping with his head tilted back, and I took him to...
Amy, Please set an appointment with a neurologist (preferrably one who sees LPs often) as soon as possible. In achondroplasia, the hole at the base of the...
Hey Shelly, The Foramen Magnum is the opening of the skull and the spine and sometimes in achon. babies it is shaped different and can pinch rub or otherwise...
Laurin, I am sorry it took me so long to respond. I have been away. Emma's car seat is a Graco Safe Seat. It reclines to 2 different positions and it sits...
... They wanted to wait???????I am very surprised that they want to wait until he is six months. My son had his as soon as possible after he was born at 5...
Hi Amy, I agree with the others as far as having a sleep study done, a pulse ox and apena monitor. My son Marquis (achon), who is 4 now, had a trach put in...
Amy, Given your descriptions of Ayden's behavior, I share Marla's astonishment at your geneticist's recommendation to wait until he is six months old for an...
Nicole, I have had this come up recently with my daughter, Emma. She is 5 years old & has achondroplasia. She is also in preschool & the kids all love her. So...
Amy- My LP son is not achon. That being said...I have taken care of patients with many different problems. Several reasons that kids sleep with heads in...
hey becky, my name is teresa and i would love to have the link to your chatroom.i am the proud parent of a little 4 year old little girl with achondroplasia...
Nick, Thanks for getting back to me. I found a few car seats and they are really expensive. However, I want to get the safest one for Mary Elizabeth. I am...
Laurin, There is a fairly comprehensive list on safety and ease-of-use ratings for car seats, including photos and advice about how to ensure the car seat is...
I have a Peg Perego Prima Viaggio with the base I used for Preston. He outgrew it though, but it goes to 26 inches and 20 pounds. It is red (to match his...
Laurin, I meant to give you the main link to NHTSA: http://www.nhtsa.dot.gov/ . There is a section called "How To Keep Your Child Passengers Safe" which...
Amelia, Thanks for the website! I will check that out. Laurin ... From: amelia_schuler@... To: parentsoflittlepeople2@yahoogroups.com Sent: Tue, 3 Oct...
Congrats Amy I also have a 17 month adoptive daughter that is achondroplasia. She started walking in September. If you need anything, just email me. I will...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
