Being open to the public we are open to any and all perverts who want to come in here and look at our kids...This is why I do not have any pictures of Alli on...
My son Sebastian who is now almost 15 month old was born with numorous birthdefects last year.One by one each one of them was blamed on his failure to grow.We...
A brilliant site for EvC is one built by an extremely learned mother of an absolutely adorable EvC boy. The site is packed with info, pictures AND little...
Amazon have just recommended it to me. On the face of it, it seems an ideal book for parents of, and teen small statured people. It's not often our children...
Hi Fred, Stephanie is a CBS News reporter here in Denver who has made Little People
her "special cause" for lack of a better word. She has done several...
Hi there, My little boy ((2 years old) has Ellis-van Creveld syndrome (EvC). He was born with 6 fingers (extra finger is on the pinky side of his hand - always...
... Thanks for the responses and the info it is very helpful at this point.As to you questions Kate.Yes Sebastian has had his heart defects fixed.He went into...
Thanks for the responses and the info it is very helpful at this point.As to you questions Kate.Yes Sebastian has had his heart defects fixed.He went into...
Hello everyone, My name is Michele, and my daughter Mackenzie (age 9) has SEMD. I haven't
been active on the list for quite some time because we bought a...
Hi Michele! It is very nice to meet you. I am new here. It broke my heart to hear about MacKensie's experience at Disney World. It should have been filled with...
Sometimes there isn't anything you can do to help ease the pain. One day she will learn that not all people are as cruel as the ones you recently encountered....
Dear Michele, My heart go out to you as a mother and Mackenzie, I know it's not easy . I know how you feel and I too can relate. I'm a very big and tall...
Michele- I have no words for you, other than to say that I am sorry that your experience was so bad. We have been to DW several times, and have never had that...
Hi Michele, I also don't have any advice for you, I don't know really how to deal with rude people either. While at Church camp last week Alli and I had a...
Hi: My 7 year old son Philip has Kniest Syndrome and would like to meet some new LP friends his age in our area (we live in CT). Please email me privately at...
Please allow a 61 year old fart of an Achon to make a few observations here. First off, it is a fact of life that members of the public ARE going to make...
Yes, I forgot to mention that when I do "stare back", it is in a very nonchalant way, and I DO NOT say anything, or make a big deal of it to my son. Most of...
I'm sorry to hear that Mackenzie felt badly about this experience. And because you hurt _for_ her, it's going to be kind of tricky to give her comfort, while...
My sister is of average height and is about 6 months pregnant with child 4. Through a recent ultrasound she was told that the baby may be born little. The...
Gabriela, Did the doctor say anything about the baby's head size? My youngest daughter, Emma is an achondroplasia dwarf. She is almost 5 years old. When I was...
Gabriela- This scenario is the exact same one that my wife and I went through about 14 months ago. Our doctor rescheduled us for a Level 2 (I think that's...
Mike is right, the internet info may not pertain to you or it could be something out dated. Never give up hope ither my daughter has osteogenesis Imperfecta...
I was brought to tears when I checked the list this morning... you are all so great to respond so quickly when a new member suddenly appears. My sister is...
I was brought to tears when I checked the list this morning... you are all so great to respond so quickly when a new member suddenly appears. My sister is...
I would like to add my story if you like. My name is Rachel Clutter. My husband Aaron and I were pregnant with out fourth. I went for and ultrasound - that I...
Hi, My name is Kim and my son Preston also has achon. Honestly, I may be biased but he is the cutest thing in the world. I think he gets cuter by the day....
Hi, my 10 month old achon baby is almost ready to sit up. I was thinking of getting her one of those saucers to sit in that has activities attached to it. Is...
Claire, I put Emma in a saucer from about 10 months until she just got too big for it & it didn't harm her at all. I don't know if everyone would agree with...
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