Hey Rhonda, Just wanted to let you know, we got our HatchBacks yesterday. Good News is WE LOVE THEM!!! The way they fit over the AFO'S was awesome. The bad...
Elli has some same traits as my son David and his is Achon but I'm no expert and your geneticist should be the one to give the DX. She is too cute! Becky mom...
Thanks for the info, Terrie! At the Hatchback website (http://www.hatchbacksfootwear.com/products/index.htm), there is a sizing chart. This sizing chart goes...
Hi Everyone, I want to thank everyone for all the well wishes and all the responces to my e-mails about Brison. We got home late last night and I am sure as...
... yesterday. Good News is WE LOVE THEM!!! The way they fit over the AFO'S was awesome. The bad news, they we're the wrong size. In a "regular" shoe Trinity...
I am a foster parent to an 9 month old baby girl with achondroplasia. She has been in my care since she was 4 weeks old. My husband and I are hoping to adopt...
Terrie- Thanks for letting us know that you love them. We have not ordered them, yet. Our daughters physical medicine specialist wants her to have her AFOs...
She is adorable! She also looks quite proportionate, but I think in an earlier post you said at one year she was 23 3/4 inches? (I could be wrong). Have you...
IMHO, a child with achondroplasia is not medically fragile. Feeding tubes and trachs might place a child more towards the medically fragile range. I think a...
Hello Everyone's , This is when our daughter Wilma Jean surgery will be on July 10, early morning now . Will not know the time until Friday before surgery now....
She probably is not medically fragile, but deeming her so by a social agency may provide her to access for public services (should she need them). My son had...
Thank you!!! Of course, I would most definately agree that she is adorable, but I am slightly biased!!!!! LOL She has been test for GH deficiency, achon,...
Hey everybody! Only have a quick minute but just wanted to let you all know that Tripp has been trach free for about 7 hours now and is doing GREAT!! We still...
Jaime....I'm so glad to hear everything went well! I will continue to keep him and your family in my prayers! Take care!!!!!! Bobbi Mom to Katie (ah), Maddie...
Just wanted to say thank you all for your prayers and kind words of encouragment. It really means a lot to me to know so many people are concerned. Tripp is...
Hello , I will let you guys all know how the surgery went for Wilma Jean and Dar Morehouse now to. Wilma is straigthen her left leg out now to. That is what...
Hello everyone! My name is Melissa Smith and I was told about this group a few months ago by another mother, Nicky Ehle. I have just now got around to...
Definitely check out the "Health Supervision--Achondroplasia" article in the Files section of this discussion group. I credit my 7-mo-old achon daughter's...
All great advice, Linda!! I especially agree that a doctor familiar with achondroplasia _has_ to be in the mix for any proper evaluation to be made. Social...
Bobbi, As you most likely already know, there are some types of dwarfism that can't be diagnosed until 2-4 years old. I wish more than just her neck CTs/xrays...
Melissa, Hi, It's Nicky. I am so happy that you finally found this site. It is a great site!! I have learned a lot from all the members & will continue to...
I wanted to give an update on my 7-mo-old achon daughter's treatment for obstructive sleep apnea (OSA). About a month ago I posted a request for advice, and...
Our baby was seen by Dr. Rimoin at Cedars Sinai in Los Angeles. His clinic is wonderful. They will monitor the baby's health every 6 months. He suggested a...
Hi Greg, Logan was on oxygen until he was 2 years old and then outgrew the need for
it. He too slept with his head hyper-extended to open up the airway. He...
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