Hi Marji, That was really helpful thanks. The inet is where we have got the most info, can be a scary place too. Most of the info we have gotten has been...
A new link was added to the "Links" page under the title "NEMOURS." The Nemours website provides several excellent comprehensive articles about several types...
Fred....that was awesome that you took the time and energy to compile that list!!!! Was very interesting reading all of the variety of jobs that LP's have....
HELLO EVERYONE, I HAVE A QUESTION. YESTURDAY TYLER STARTING RUNNING A HIGH A FEVER. I WAS ALTERNATING TYLENOL AND MOTRIN EVERY 4 HRS AS THE DOCTOR HAD TOLD ME...
Hi everybody, My name is Kay dimitrov. The first time I posted on this site was when my son,Vince, was about 9 months. He is turning five yr old in july. I...
Unfortunately, health insurance (other than group) CAN deny and exclude pre-existing conditions. The 165 that you are paying a month may seem high, but it may...
Hi Daisy, It's possible that Tyler will keep getting ear infections as they are very common in children with Achon. My daughter is 8 1/2 now and has achon as...
Our family lives in Idaho. In Idaho we have what is called the Katie Beckett Medicaid. The only way we could be qualified is based on our child's disability...
Hi, I just found out about this group from TLC from a discussion with Matt Roloff. I have a 21 month old SED-c little girl. All in all she is doing well. We...
Welcome, Tammy! You'll soon find out that this place is WONDERFUL!!!! There is a wealth of information here, along with support, encouragement, etc. I have a...
... FEVER. I WAS ALTERNATING TYLENOL AND MOTRIN EVERY 4 HRS AS THE DOCTOR HAD TOLD ME TO DO. HIS FEVER WOULD BREAK FOR ABOUT 30 MINS AND THEN COME BACK. HE...
Daisy, In achondroplasia, drainage of fluid from the middle ear space isn't as efficient and effective, so fluid tends to accumulate. This provides a good...
For anyone that has group coverage health insurance (i.e. your child was born while you were on insurance), please make sure you never have a lapse in...
Hi All - I am having one heck of a time finding infant care for my son Alexander. He is undiagnosed but doing well. He has two issues that have our lcoal...
Are you in the Early Intervention program? This is a national program for children with disability. You can usually get a reocmmendation by calling the...
Kim, good advice. Also, if you are on COBRA, and then go on medicare, medicaid, you may be eligible for a supplemental insurance policy without pre-existing...
hi everyone, we ended up taking tyler back to er last night. we took him to different hospital this time. has anyone ever heard of oral ulcers? i have never...
Hi Daisy, I am sorry to hear tyler is sick and now your daughter. About your extended family kissing Tyler on the mouth you will have to be firm and even get a...
Hi, I wish I knew someone to help you out. I think that a home day care as long as you knew them and trusted them would be better then a day care center full...
HELLO , I know it is very hard now days to put a child at a day care place it is alot of sick children's there to. And when you have a child is lilttle people...
Daisy, My oldest son has that. It is similar to the herpes virus. He used to get
them whenever he was getting a cold or his immune system was a little run...
Hi: My daughter, Kelsey (achon), just turned 9 years old. Since January, she has been experiencing some numbness/tingling and weakness in her legs after...
Sharon, We saw both Dr. Ain and Dr. MacKenzie for the same thing with Logan (9achon)
Dr. Ain was ready to do surgery while Dr. MacKenzie said let's let Logan...
Thanks Terry. I was thinking about getting another opinion. I believe we heard Dr. MacKenzie give a presentation at a regional about a year ago that was very...
Hi Everyone, Thanks for your posts on Alexander and daycare. I will share with you what I learn. This group is amazing and I feel so lucky to be part of it....
Hello everyone my name is Suzanne. I do not have a child that is a dwarf, but I do have a child that is small in stature, due to kidney failure. Benny is 5...
Hello everyone my name is Suzanne. I do not have a child that is a dwarf, but I do have a child that is small in stature, due to kidney failure. Benny is 5...
Hi Sharon. My son Ricky (achon) is 10. In Feb. of 2005, when he was also 9, had to have decompression with fusion from T4-S1. He started out with the ...
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