sorkin yermiayiev I couldn't see a picture of Avital. Her album is empty. I would love to see a picture of her. You know I went through the entire photo...
sorkin yermiayiev I couldn't see a picture of Avital. Her album is empty. I would love to see a picture of her. You know I went through the entire photo...
Hi All, Just posted some new pictures of Brison. In one of them I got the thing sideways and don`t know how to fix it. Oh well. One set of pictures Brison is...
Hello everyone, I have posted some pictures of my beautiful little girl, Emma. She is 4 1/2 years old & she is achon. Thank yo God for giving me such a...
Sarah, My name is Jamie, I just joined earlier in the week. My daughter Rebecca is 10mo old, and is just a joy. Please, I do not want to upset you but please...
Well I was looking at the link just to see if there was more information about ACHRON and seen information about girls going into puberty. My 10 year old...
hello all, it took me a while to post, just cause i am not so good with writing stuff down but i figured i would tell our story! i joined this group a few...
Jamie, I wanted to write and say that your story is an inspiration and your daughter is a blessing from God. You were prepared for sorrow and you were sent...
My daughter has x-linked dominant chondrodysplasia punctata. Has anybody here ever heard of it? It was tricky to get this diagnosis but we finally got...
Hello To All. I am writing concerning my 10 and 1/2 yr. old son, Ricky. He had his first V.P. Shunt placed in Feb. 97 on the right side, and a second shunt...
Hi my name is Jamie, I just joined the group earlier this week. I have a 10month old daughter Rebecca who has Achondroplasia. She is great, has had no...
Welcome Cassie and Avery! Avery is so cute, and she looks very lively to boot! Thanks for sharing her photos with us. Yes, I've heard of chondrodysplasia...
Figured since everyone else had their photos up I'd go ahead and add the only decent (and recent) one I had of my girls. The photo was taken in Nov '05, have...
Hi Jamie, my son David has Achon and is 6 1/2 months old. He is getting tubes on the 17th. We have been really lucky too as far as health. He is doing great...
I really liked the sit and stroll, which is a car seat that converts to a
stroller and provides good back support. That was 8 years ago but I see
them around...
Jamie, While Rebecca is still unable to raise herself up to a sitting position on her own, the best stroller type is one that not only provides good back...
Here's the link again: http://www.plasmacar.com/ The website has a short video showing children and adults using it. It's a nifty thing, and for older...
This is the same car seat that I was trying to tell her about. You have it right on the nose. ... manufacturers ... recall ... recommended ... I ... old ... ...
Hi Jamie, I am the foster mom of a 10m achon. I still uses her infant car seat but I use it to feed her in, although she grabs the spoon puts it in her mouth...
Phyllis, Fluid in the middle ear and ear infections are separate events. A child can have intermittent or chronic fluid in the middle ear and not have an...
Phyllis- A person can have fluid in the ear without having an infection. Our bodies a full of fluid and in the case of someone with tiny or irregularly shaped...
Hello everyone, I' m looking for ideas or advise on a comfortable way for my 9 yr. old Lp to ride. He is 43lbs. and 35 inches tall. He has outgrown most car...
This reclining positionable carseat will fit up to 105 pounds: http://www.snugseat.com/tp.htm Also, though it is more expensive, here's another option: ...
Dana, In addition to the usual car seats and booster seats, Britax makes car seats for youths and special needs. The Regent holds children 22-80 lbs. The...
My son has the same type of car but it is called the "Twistcar" by Wincell, looks exactly like the Plasma car but it is way cheaper. Ours came from Amazon.com...
Donna- You said that youir son does not walk, but I'm not sure how good his trunk control is. There are several companies that make car seats or boosters for...
I wanted to let you all know that longtime member Jimmy Ingalls passed away last night. Victor and Lisa Ingalls are hosting an open house memorial for anyone...
I know a friend who is friends with beebeop on Barney - he has achondroplasia. Amy ... __________________________________________________ Do You Yahoo!? Tired...
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