A number of years ago there was a pediatric geneticist at Children's in Birmingham who trained here at Hopkins. I know she has seen skeletal dysplasia...
As for our grandbaby, a furrier was recommended to alter a coat since they have experience in altering fur coats. I spoke with a local person and he said it...
Hi there! A little over 4 weeks ago, my husband & I were told that our unborn baby girl will likely be born with achondroplasia. We have done our internet...
My two cents... The medical people interested in setting up this skeletal dysplasia clinic really should talk to the Greenberg Center folks at Hopkins and...
I am. I live in Tallassee and we go to Children's for the majority of Ian's appts. Dr Rutledge is still there but isn't taking any new achon patients; she has...
I use UAB Children's for craniofacial issues. I am excited to add the Levi is going to see Dr. MacKenzie in March at Dupont. This is the first I've heard of...
I think one of the best routes to go is to give them the contact info for the LPA's medical advisory board - those are probably the folks who can best advise...
Those who did not attend - check out the pictures from this years camp- www.spacecampforlittlepeople.com Geoff and Ashton [Non-text portions of this message...
Hi, I'm in a similar situation. I'm 32 weeks pregnant with my 5th child and we suspect that our baby could have some type of dwarfism as well. I haven't had...
Hi, Congratulations on having a sweet baby girl! Our daughter, Megan, is almost 2.5 years and has achondroplasia. These are just my opinions from our...
Congrats on the new baby. I have a 7 month old girl with achopndroplasia. I recommend getting an infant car bed for the first few months. Allows baby to lie...
Re: the tub - we used the mesh sling until we outgrew it and then one of those giant sponge/pads in the regular tub. Both kept her flat and supported....
Rachel, Welcome and Congratulations. You will find a lot of information on here and great advice from a good group of people. Yes, you will need to be aware...
Janice Phillips
stevenzachsmom@...
Nov 20, 2009 2:53 pm
26420
Welcome to both of you! My biggest suggestion is that you find your local chapter of the Little People of America and try to get connected with some local...
Whenever you want, shoot me an email - rbeth78@.... I will share with you what I know so far & will be willing to help you find an answer for both of...
Thank you! I am going to try and get my husband to join here as well as I see several other dads on here. I think he could benefit from finding support from...
There is a little tub at Target that has the mesh sling in it. I had been considering purchasing it, but wasn't sure if it would be ok. Sounds like it is, so...
Welcome! I don't really have any advice as you have already heard all the great advice but I would recommend looking in the files section on the group and go...
Hi RB! Welcome to the group and congratulations on your soon-to-be newest angel! My daughter Brea has achondroplasia and she will be one December 1. I did not...
Chuck the Rainforest jumperoo -- it's not really stationary and it's right up there with the hanging jumpers. The rule of thumb is that any toy that has...
Hi Everyone, I'm new to this group (in London, UK) although I've been looking at posts for a while and have finally plucked up the courage to write something....
Hiya Allison, I dont post often either but I do live in Gloucester and we have a little boy who is undiagnosed but definently has a skeletal dysplasia. We knew...
Hi Michelle.. Really nice to hear from you..even though it's a bit late. I'm a sucker for Children in Need! Will be nodding off soon though.zzz The guy that we...
Allison, Your son is really cute!!!! I'm not sure what your son may or may not have. My daughter has achondroplasia and he doesn't seem to fit the features...
Thanks Crystal! Really appreciate your message! I do feel that it doesn't matter whatever happens. He's such a little character. Always wants to keep people...
Congratulations Rachel! Our little Hope (achon) was born on Dec 26th. We did not find out her diagnosis until she arrived. Hope really enjoyed the stationary...
As I understand it, those with hypochondroplasia can (but not always) have lordosis in the lumbar spine like achons, but not kyphosis in the mid-thoracic...
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