Again, this is not really an appropriate topic for this list. However, it IS
very much a topic for the adult dwarfism list which is full of people who give
very very good advice.

Please consider joining it.

dwarfism-subscribe@yahoogroups.com

Good luck

Fred


----- Original Message -----
From: jneclay
To: parentsoflittlepeople2@yahoogroups.com
Sent: Tuesday, June 30, 2009 7:55 PM
Subject: [Parents of Little People 2] grandparetns/parents





Okay, so I'm not sure it this should be posted on this site or on the site for
parents with Dwarf children.

My husband when he was an infant 30 plus years ago was diagnosed with
achondroplasia. His parents did the best that they could with what they had but
in the end both of us find many things we would like to change.

We now have a child who is dwarf but come to find out so many years ago my
husband actually has a mild case of hypocondroplasia. He is 4'10 and his feet
and hands are proportionate to his height. The only thing that is effected are
his limbs. Now our child has the same thing and has no problems other then her
limbs as well.

Now, my problem is every time we talk about our child to the grandparents some
how some way it always leads back to it's because she has acondroplasia and that
is why she needs braces, or has a speech problem, etc... It pisses me off to no
end because FIRST she has hypocondroplasia and the ONLY thing that is effected
are her limbs. She needs braces because of genetics' on both sides. I needed
extensive work done on my mouth when I was a child so does that mean I am
dwarf???? I have a VERY small mouth and over crowding of the teeth again does
that mean I am dwarf?? I needed speech therapy as a child and my sister and
brother had tubes in there ears because they have small canals in the ears. Do
you see what I am getting at??? We are all average height and she could just as
easily gotten some of the problems she has with her teeth from me. I just seems
like I am constantly defending her and trying to get that HORRIBLE label off her
and my husband. There are other factors to the reason why she needs things done
to her, I mean she DOES have my genetics as well as her fathers.

So what I am I to do??? I feel like I am starting arguments all the time and
when ever I try to talk to them about it my mother in law gets defensive and
then in turn I get defensive with her. I hate to put this wedge between us but I
hate that every time something happens it is because she has acondroplasia (even
thought it is hypocondroplasia). Does anyone have any suggestions on how to
handle this?????
Thanks





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