Okay, so I'm not sure it this should be posted on this site or on the site for
parents with Dwarf children.
My husband when he was an infant 30 plus years ago was diagnosed with
achondroplasia. His parents did the best that they could with what they had but
in the end both of us find many things we would like to change.
We now have a child who is dwarf but come to find out so many years ago my
husband actually has a mild case of hypocondroplasia. He is 4'10 and his feet
and hands are proportionate to his height. The only thing that is effected are
his limbs. Now our child has the same thing and has no problems other then her
limbs as well.
Now, my problem is every time we talk about our child to the grandparents some
how some way it always leads back to it's because she has acondroplasia and that
is why she needs braces, or has a speech problem, etc... It pisses me off to no
end because FIRST she has hypocondroplasia and the ONLY thing that is effected
are her limbs. She needs braces because of genetics' on both sides. I needed
extensive work done on my mouth when I was a child so does that mean I am
dwarf???? I have a VERY small mouth and over crowding of the teeth again does
that mean I am dwarf?? I needed speech therapy as a child and my sister and
brother had tubes in there ears because they have small canals in the ears. Do
you see what I am getting at??? We are all average height and she could just as
easily gotten some of the problems she has with her teeth from me. I just seems
like I am constantly defending her and trying to get that HORRIBLE label off her
and my husband. There are other factors to the reason why she needs things done
to her, I mean she DOES have my genetics as well as her fathers.
So what I am I to do??? I feel like I am starting arguments all the time and
when ever I try to talk to them about it my mother in law gets defensive and
then in turn I get defensive with her. I hate to put this wedge between us but I
hate that every time something happens it is because she has acondroplasia (even
thought it is hypocondroplasia). Does anyone have any suggestions on how to
handle this?????
Thanks
Okay, so I'm not sure it this should be posted on this site or on the site for parents with Dwarf children. My husband when he was an infant 30 plus years ago...
Again, this is not really an appropriate topic for this list. However, it IS very much a topic for the adult dwarfism list which is full of people who give...
Maybe i have interpreted you wrong but i dont think achondroplasia is a HORRIBLE LABEL. i am pround my daughter has achon and it certainly doesnt define her ...
Oh, it's horrible alright - to those who have never come across it before and have to try to spell it:-) A hell of a long name for such a small person:-) There...
Fred, you really are crazy, in a good way. I do not know what started this thread but as usual my two cents... worth nothing in this economy.......Try to...
LOL! Barbara I love your posts. You always make me think, or smile. I still say you are petite! Take care, jody! ... this thread but as usual my two cents......
P.S. I have been called many, many things in my life but you have managed a first. No one has ever called me a giant... I will treasure that one! :) ... From:...
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As you have found, relatives can be THE most negative of all people. When an aunt heard I was going into teaching, the first thing she said was "How's he going...
Fred, that is just too bad you were unable to get to that specialist in time...we too were told similar stuff just 2 years ago. Guess they(drs/specialists)...
Dear and sweet Fred, ( okay I won't tell anyone that you are not really an "old meanie"), First, they make a really neat chalk holder stick that reaches...
Sorry Barbara, yer wrong. The ONLY thing I held in my hand was the chalk. As for so called 'experts', I always encourage folk to go with their gut feeling. ...
Smarty pants:-) Roller blackboard! Really ancient, BUT, I commandeered it and as I moved classrooms (on a yearly basis) I took it with me. The thing is, it...
Again, Fred, I agree with everything both you and Barbara are saying...if we don't want Michael to do it, we have to make sure he does not see us do it. He got...