The Pediatrician I go to has 3 kids with achon, so I
don't doubt his opinion. my concern is that my son
doesnt eat much at all. His doc has the achon growth
chart, but is concerned that he isnt gaining weight.
I trust him, but it seems that he is being lumped into
"failure to thrive" which from what I read focuses on
the environment. I can tell you that I am doing
EVERYTHING to help my son grow. He is just slow to
gain. I feel a lot better knowing that others have
slow weight gainers too. Thanks a lot



--- klombardo29 jeter2 <kgibler04@...> wrote:

> I echo Becky. Achons gain a little slower. Have you
> printed out the achon charts in the Files section?
> He should not be plotted on average height growth
> charts. Has he been losing weight? That might be
> the concern. My son (almost 16 months achon) is
> about 21 pounds and was 9lbs 12ozs at birth. Once he
> became mobile his weight plateaued even though he
> shovels anything into his mouth! You should have
> him seen by at least one doctor who is experienced
> with dwarfism.
> -Kim(Mommy to Preston)
>
> becky howard <how_reb@...> wrote:
> All I can say is that my son gained weight
> slowly and even lost some when he started to be more
> active. He is 19 1/2 months and only weighs about
> 20lbs. I don't know how much expierence your Dr.'s
> have with Achondroplasia but I would look for a
> second opinion if you're not happy with the answers,
> or lack of answers you have now. Good luck.
> Becky
>
> christina mccarthy <sweetiepie_1980@...>
> wrote:
> Hello to all. I have a 5 1/2 month old son who has
> achondroplasia. Since birth, he has had a terrible
> time gaining weight, which is a bit strange since he
> was born at 9 lbs 10.3 ozs. I was curious to know if
> anyone else out there has had a little person with a
> feeding difficulty? He went back into the hospital
> at
> 4 months because he was losing weight. Of course
> ever
> test imaginable was done and nothing could be found
> to
> be wrong. Has anyone else had this kind of trouble
> with their baby? I am clueless as to what to do
> next.
> Thanks!
>
>
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