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Dear Andy:
Thank you for your post, it seems that once the body is weakened one becomes more and mores usceptible and you have put into words very well what m,any feel who do not often write. We are very sorry for what you have come through but you have emerged a champion. Personally, since early injuries it seems my body functions far less before than before (for example in avoiding falls). Then symptoms worsen, and the whole circular thing (or spirally thing) can set in. We have to hope the strengthened mind and increasing resolve is some compensation and indeed it seems to come through; thanks again for putting into words the type of situation which affects many, which is not to say you are not an individual - clearly you are and no two life histories match up in detail. Still your description can build bridges for others and I feel sure all are most grateful. Please post whenever you wish, :) Mod.
And sending very best wishes, :) LDMF.
Individual Email.
For Reference Only:
Linda D. Misek-Falkoff, Ph.D., J.D.
President, The National Disability Party.
Member Disability Caucus to the UN Disability Treaty/
Recording Secretary, Communications Coordination Committee for the UN.
For Reference Only:
Linda D. Misek-Falkoff, Ph.D., J.D.
President, The National Disability Party.
Member Disability Caucus to the UN Disability Treaty/
Recording Secretary, Communications Coordination Committee for the UN.
----- Original Message -----
From: "Andy" <ampain247@...>
Sent: Monday, March 08, 2004 3:07 PM
Subject: [pain-in-the-law] I want to introduce myself.......
> My name is Andy, and I am newly diagnosed as being disabled. I have
> my court hearing next Tuesday, the 9th, and I am hoping that my
> lawyer is going to be able to get this over with. I originally
> applied in March of 2001, when I couldn't find a Dr. that was willing
> to treat me properly, and there was no way I was going to be able to
> work without proper care. After being turned down twice in 3 months,
> I hired this lawyer, who has turned in to a royal pain in the rear. I
> hope his attitude will be a plus, he did say in the initial meeting
> with me that he only takes cases he knows he can win since that is
> all he does. Again, I hope that next Tuesday will be the end of this.
> NOW, about me, I am a 34 year old who lives in Chicago right now, but
> will be moving to the Ft. Lauderdale area in the next year, depending
> on the outcome of the hearing. I was diagnosed in 1999 with a
> buldging disc at the L5/S1 level. I was referred to a Pain Management
> Dr at the Hospital my Primary Care Dr was at, and I started getting
> injections. They did not help. After a year, October 2000, I had a
> Lamenectomy(sp?) and that too, did not work. I was still in pain, but
> at least I was able to work while taking Vicoden ES, or Vicoprofen.
> The pain continued to get worse, I had more injections and all it did
> was keep me on the thin line with where I worked. I had to get an
> injection every 2 weeks, for 4 months, and missed 2 days of work each
> time. On January 1 2001, I slipped on my front stairs and went down 7
> steps, and that was a week in the hospital with fractured ribs,
> hairline fractured shoulder, and of course, my back. What a way to
> start off the New Year. My partner and I decided that we were going
> to move to Florida, where the only Ice we encountered was in a
> glass.LOL. He transferred down to a position with his company in
> Tampa, but we lived in St. Pete because we had friends that lived
> there. It was a little town called Gulfport, on the southern end of
> St. Pete. I started seeing a PM Dr there, and was diagnosed with
> Arachnoiditis, which explained the pain all the time. There are alot
> of contradicting opinion's on "A", but the Dr I was seeing believed
> that "A" is chronic, so I was finally treated right. The med's,
> however, interfered with my job, and I was let go due to "economic
> adjustments in the work place". Living in a small town, and having
> one car, it was very hard to find a job. I was let go in July of
> 2001, and my partner and I decided in September 2001 to move to Ft.
> Lauderdale because there seemed to be more jobs available there. I
> started seeing another Dr, who sent me to a surgeon, who, of course,
> said I needed a fusion at the L5/S1 level. I should have gotten a 2nd
> opinion, but I wanted the pain to stop.
> ***************Let me say that I am sorry this is so long, but we are
> about 1/2 way thru, and it is 2 hours since I started because I can't
> sit here for more than 20 min at a time.********************
>
> Anyway,The Surgeon said he was going to put a cage, and a rod with
> screws. I had operation on October 9, 2001 and it was suppose to be 4
> hours long, but it turned out to be an 8 & 1/2 hours. Apparently,
> there was so much scar tissue built up in the space that he could not
> insert the cage, and he had to use 2 rods with screws. He also
> claimed that he packed bone in the area where it would fit, but there
> is NO indication that he did this. I had no other scars that would be
> from where the bone was taken from, usually the hip or thigh from
> what I was told, but I might be wrong. After the surgery, I was in so
> much pain, and it only subsided a little. In December, I still hurt
> so much, but was told that it could take up to 6 months before I was
> pain free. What a concept, pain free, something I have not been in
> years. My partner couldn't get a job because of how much he made in
> his last job. When he transferred to Florida, his salary was kept the
> same, which was above the scale in Florida by about 2 dollars an
> hour. I could not work, and he was not working, so we decided to move
> back to Chicago in December 2001 where our family is. I went thru the
> run around of finding a Dr again, and finally found one. In Feb.
> 2002, I found a Dr that by April, had me on 500 mg of MSContin, and
> MSIR for BT, as well as a load of neuro meds, and anti depressants.
> Because of an insurance glich, he was not getting paid, and stopped
> seeing me. I had to be hospitalized in Sept 2002 for withdrawal. I
> have to cut this short, (about time huh?) so I will say I am seeing
> a great Dr here in Chicago, and am going to have a morphine pump put
> in. I am now on Oxycontin, 160mg a day, with Percocet 10/650 for BT,
> as well as 6 other meds for neuro problems, anti-depressant's, and
> muscle relaxants. I finally have a little more control over my life,
> and what I can do, and I haven't had that since the surgery. It was
> also discovered that the surgery in Ft. Lauderdale in 2001 was
> botched. There was no bone packed in the area, he used the rods and
> screws to do the job, and, he did not snap off the heads of the
> screws, so they are sticking into my muscle. I had the surgeon's
> office send me ALL paperwork for my lawyer, and there is no
> notation's of this at all. The only proof I have is my partner's,
> since he was in the office when this was explained to me, and he
> might be considered objective. A surgeon I saw here in Chicago told
> me that the risks outweighed the benefits of going back in the
> correct this. So, currently, I have been diagnosed with
> Arachnoiditis, DJD, failed back syndrome, intractable pain, permanent
> nerve damage, partial loss of the use of my left leg, and Disabled.
>
> That is my story, and I am truly sorry it was this long. We want to
> get back to Florida because I do better in warmer weather, and now my
> partners Mom, who has just been recently divorced, wants to move with
> us. It is a good thing we get along so well, or it would be a very
> bad Idea. It might be a bad idea anyway, but we live with her now,
> and there are so few problems that I am not worried about it.
>
> Thank you for reading this, I did not mean to bore anyone, but I
> wanted to be as accurate as I could be. The meds I am on make me
> forget things, and it is good to get it out so I do remember, even
> though I am reminded everyday with a pain scale of no less than 7 on
> a good day.
>
> I am interested in making new friends, if I haven't scared you all
> off, so please feel free to e-mail me at ampain247@...
>
> Thank you again,
> Andy
>
>
>
>
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