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Hello Maria and all here, I wish to reply again on this topic. You are so very on point about health care.
May I comment further. I post in some length because I have not posted on this for a bit.
For some, physical disabilities health care may not be an issue, but when it is it truly is a giant one and on a human rights basis. So I and others are extremely concerned with the human rights of persons with medical issues in what is called the health-care context. These remain inclusion issues regarding the Disability Convention until incorporated by more persons with medical problems at the table.
We sincerely wouldn't want anyone who is not ill to become ill, for example. But all who have been or are ill now know all too much about the human rights violations that too often occur when trying to deal with those said to be health care providers. Consider the access problems which abound and the discrimination. (By the way, wondering, do we have representatives of World Health Organization here who concentrate on Human Rights? Discussions seem to suggest there is a gap in understanding and dialogue.I have met recently a member of this organization who seems to have humanitarian concerns).
We may (I think do) benefit highly from building and maintaining these bridges, and bridges to other resources such as civil society organizations and other interest groups in the United Nations so we don't fall into exclusions which undercut the broader goals, in context of U.N. Human Rights Instruments developing in broad - but in an organized way keeping the *nothing without us* theme in focus.
Appreciatively, I must state that participation in civil societry NGO's has indeed enriched my own perspectives, and also the DPI (U.N. Department of Information) relationships are very helpful. I much agreed with Kicki's venturing, at the Second Session Ad. Hoc Committee Meetings, on the value of such lineages for the Convention itself and I heartily agreed and continue to agree having involved myself in the area..
As example of beneficiaries of the Treaty, people with pain - a very large group everywhere - are only one example but a clear one where the human rights violations can be enormous, here including open and gross disrespect as well as blocked access to care, and obstruction of choices of many kinds needed for hope and help. In moderating and being a member of chronic pain Internet discussions for some time I can testify that human rights violations are regularly reported whether or not characterized that way. (We need to raise expectations that these rights will be protected and reach all including the frankly impaired and not throw out the persons with avoidance of the medically impaired from good function, because what is medical is best known by those with medical needs just as with the other disabilities represented but not being called medical).
Because pain often occurs across many medical conditions, I have attempted to address this when there are opportunities, and will repost the links later on in different context. Endeavoring in these directions, I have applied to the Disability Caucus Steering Committee to be a member/voice.
I suggest that medical impairment issues are being exempted too breezily (not a moral judgment but a matter of communications flow) in order to express the also very important issues social models, although others may argue it is not... that is, it is indeed agreeably seen that rights for all can be rights for one, but the experiential base of knowledge for those who go through medical systems is something in itself to be contributed to the process because rights rarely will just trickle down on their own accord Express/explicit/welcomed Input from these perspectives can nourish the entire process. These are domains in themselves, with complex components especially as people age, which is also an important topic, disabilities as one ages, also under-represented. (May I say with some humor that I would really rather not be in these categories but what can one do without magic!)
Sending best wishes, and never give up! :) LindaMF.
Individual Email. References: [L. D. Misek-Falkoff, Ph.D., J.D., a U.N. Disability Convention NGOs Rep. of the Communication and Coordination Committee for the U.N. (CCC/U.N. (ECOSOC & DPI)) and (Information Habitat; member of NGOs AARP, AAUW, ACLU , Committee on the Status of Women, Committee on Aging, Committee on Mental Health Human Rights Working Group. Mermber, AAPD. APS (American Pain Society),. Speake/r the National Disability Party and Chronic Pain Caucus Chair. Moderator, Internet pain/law/opther Groups.
----- Sign-line revised 072003 : Recipients, please share where there seems a fit: http://home.att.net/~ldmf-docs/announce-c.htm invisible-NO-MORE (peer-2-peer) ; C-O-P-I-N-G_UN (both peer and support/providers, Community of Pain Interest Networking Grps for UN Participation.
----- Original Message -----From: Maria Veronica ReinaSent: Monday, August 19, 2002 10:51 AMSubject: [DisabilityConvention] Query as to Human Rights Aspects of Medical MattersPeople with disabilities are often restricted in their access to adequate health-care because of a societal policy of distributing resources in a manner that limits the resources available for the provision of health-care to people with disabilities. I wish the Convention would reflect this. I understand that Kicki stressed the point I had wanted to remark. I am sorry for insisting on this issue, but it is that I´m facing everyday. Our health system is broke and we, PWD and people with chronic illness from Argentina, are systematically discriminated. Health Public Service is collapsed and Private Service does not enroll us! How are we going to survive? Anyway, I know that a convention will not resolve all our problems----- Original Message -----From: Kicki NordströmTo: 'L D Misek-Falkoff' ; DisabilityConvention@yahoogroups.com ; Roseangela Berman-Bieler ; Bob Metts ; Markus Sudibyo ; Ron Dudley Chandran ; Joshua Malinga ; Rachel Hurst ; Khalfan Khalafan ; Topong Kulkhanchit ; Kicki Nordström ; Justine Kiwanuka ; Santiago Velazquez Duarte ; Anneli Joneken ; Leo Valdes ; Kalle Konkkola ; Tomas Lagerwall ; info@... ; moira@... ; conventionondisability@yahoogroups.com ; Scott BrownCc: adf ; conventionondisability@yahoogroups.com ; dduncan@... ; fcisneros@... ; PsyDoc70@... ; include@... ; ndpmainSent: Monday, August 19, 2002 3:44 AMSubject: [conventionondisability] SV: Query as to Human Rights Aspects of Medical Matters (was M/C/: An issue related to definitionMedical care must be expressed in a convention on disability in terms of "The need of and access to quality health care must be provided".
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