Dear Vivien
Sorry for the delay in reply. Anyway I am happy to
help you as much as I can. Like I said in my previous
e-mail, Mr.Parikh does all the Paediatric Thoracic
work in West Midland (Birmingham).Ammount of work is
good.We do antenatal counselling of all the cases with
thoracic abnormality. I joined this firm on 1st
October,and we have done three cases, two
thotacoscopiocally and one open On Monday the 13th
November we have two cases booked to be done
thoracoscopically. Mr.Parikh has his own data base and
has recorded all the work he has done so far in this
field.
He has given lecture in the Oxford Neonatal Course
this year, if you think that could be of any help I
can provide you the copy of the hand out.
Please let me know.Best of Luck
Khalid
--- Vivien <vivien@...> wrote:

> Khalid,
> Thank you for a prompt reply.
> I am talking at a local meeting with paediatric
> surgery, neonatal medicine and foetal medicine
> (prenatal and post natal management of CCAM.
> Obviously it is not a terribly common problem, one
> of a few congenital lung conditions and there is
> also variation in management (symptoms/malignancy
> risk/personal opinion of individual surgeons).
> For the purpose of the local meeting, I really just
> wanted a flavour of what is done outside Southampton
> (really as an illustration). I have a load of data
> from our unit and have spent some time doing all the
> appropriate background research.
> However, I am expanding my interest with regards to
> a more formal communication with other centres.
> Obviously, that will be done very officially, with
> Mr Burge who I am doing this work with. I intend to
> send out a formal questionnaire within the next few
> weeks (I hope).
> Since my previous training was in cardiothoracic
> surgery (have a CCST in it so I did a serious amount
> of thoracic surgery around the country), I have
> already made contact with a couple of dozen adult
> cardiothoracic surgery consultants who I know
> personally (helped a huge deal that I have worked
> with them at a pretty senior level and therefore
> know who to talk to, and know I will be taken
> seriously too).
> Suffice to say, I wish to get as much information as
> I can (and hopefully get something for BAPS 2006).
> If you could offer a flavour of what you do in your
> centre that would be great (operate on all, do 'x'
> number per year, no malignancies etc, that would be
> great).
> Clearly, I shall follow the appropriate channels for
> more detailed information.
> Best wishes,
> Vivien McNamara
> ----- Original Message -----
> From: Khalid Sharif
> To: paediatricsurgerytrainees@yahoogroups.com
> Sent: Friday, November 04, 2005 7:29 AM
> Subject: Re: [paediatricsurgerytrainees] CCAM
>
>
>
> --- vivienmcnamara <vivien@...>
> wrote:
> Dear Vivien McNamara
> Thank you very much for asking information about
> CCAM.
> May I ask the aim and objective of these
> information
> collection as my consultant Mr.Parikh do all these
> cases regularly and has a large collection of
> cases. I
> have disscussed this with him and he feels that
> these
> information should be collected only on
> Consultants
> request. May I therefore request you to ask your
> consultant to write to him in Birmingham. Thansk
> Khalid
>
> ---------------------------------
> Hi.
> I am after some information regarding the
> managment of
> CCAM's
> (congenital cystic adenomatoid malformation) in
> the
> UK.
>
> I would really appreciate if each trainee could
> ask
> their bosses the
> following questions (unless they know the answers
> already!). I hope
> this will give me a pretty good idea as what is
> done
> in every
> paedaitric surgery unit in the UK.
>
> 1. Is there a local policy for following up a baby
> after a prenatal
> scan suggests a CCAM (or other pulmonary
> abnormality)?
> Frequency and
> timing of scans?
> 2. Does your unit undertake antenatal counselling
> for
> these
> pregnancies? And if so, do you know what
> information
> is given to the
> parents?
> 3. What is the policy once a baby is born who has
> had
> a prenatal
> diagnosis of a possible CCAM? Further scans, type
> (CxR, CT), timing?
> 4. What is done if the baby is asymptomatic?
> Scans,
> paediatric
> surgery follow-up? Do you discuss the topic of
> malignancy with the
> parents?
> 5. If there has not been an antenatal diagnosis
> (no
> scan or missed)
> and there is then a postnatal diagnosis
> (respiratory
> distress etc),
> what does your unit do then?
> 6. Do you know of any babies who have had surgery
> that
> you have been
> involved with - age, presentation, surgery,
> outcome?
>
> I am trying to get a picture of what is done
> throughout the country
> and suspect it is very varied.
>
> I would appreciate any replies ASAP - I have been
> 'off-line' for a
> while as my computer exploded!
>
> In you reply, could you state your unit and if
> there
> is a difference
> between consultants - 'who does what' would be
> interesting.
>
> Thanks. I know you have little free time for
> emails/surveys and
> really should be spending time drinking/shopping
> or
> eating chocolate
> but some prompt feedback would be great.
>
> Cheers,
> Vivien McNamara
> Southampton.
>
>
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