--- vivienmcnamara <vivien@...>
wrote:
Dear Vivien McNamara
Thank you very much for asking information about CCAM.
May I ask the aim and objective of these information
collection as my consultant Mr.Parikh do all these
cases regularly and has a large collection of cases. I
have disscussed this with him and he feels that these
information should be collected only on Consultants
request. May I therefore request you to ask your
consultant to write to him in Birmingham. Thansk
Khalid

---------------------------------
Hi.
I am after some information regarding the managment of
CCAM's
(congenital cystic adenomatoid malformation) in the
UK.

I would really appreciate if each trainee could ask
their bosses the
following questions (unless they know the answers
already!). I hope
this will give me a pretty good idea as what is done
in every
paedaitric surgery unit in the UK.

1. Is there a local policy for following up a baby
after a prenatal
scan suggests a CCAM (or other pulmonary abnormality)?
Frequency and
timing of scans?
2. Does your unit undertake antenatal counselling for
these
pregnancies? And if so, do you know what information
is given to the
parents?
3. What is the policy once a baby is born who has had
a prenatal
diagnosis of a possible CCAM? Further scans, type
(CxR, CT), timing?
4. What is done if the baby is asymptomatic? Scans,
paediatric
surgery follow-up? Do you discuss the topic of
malignancy with the
parents?
5. If there has not been an antenatal diagnosis (no
scan or missed)
and there is then a postnatal diagnosis (respiratory
distress etc),
what does your unit do then?
6. Do you know of any babies who have had surgery that
you have been
involved with - age, presentation, surgery, outcome?

I am trying to get a picture of what is done
throughout the country
and suspect it is very varied.

I would appreciate any replies ASAP - I have been
'off-line' for a
while as my computer exploded!

In you reply, could you state your unit and if there
is a difference
between consultants - 'who does what' would be
interesting.

Thanks. I know you have little free time for
emails/surveys and
really should be spending time drinking/shopping or
eating chocolate
but some prompt feedback would be great.

Cheers,
Vivien McNamara
Southampton.





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