Hi.
I am after some information regarding the managment of CCAM's
(congenital cystic adenomatoid malformation) in the UK.

I would really appreciate if each trainee could ask their bosses the
following questions (unless they know the answers already!). I hope
this will give me a pretty good idea as what is done in every
paedaitric surgery unit in the UK.

1. Is there a local policy for following up a baby after a prenatal
scan suggests a CCAM (or other pulmonary abnormality)? Frequency and
timing of scans?
2. Does your unit undertake antenatal counselling for these
pregnancies? And if so, do you know what information is given to the
parents?
3. What is the policy once a baby is born who has had a prenatal
diagnosis of a possible CCAM? Further scans, type (CxR, CT), timing?
4. What is done if the baby is asymptomatic? Scans, paediatric
surgery follow-up? Do you discuss the topic of malignancy with the
parents?
5. If there has not been an antenatal diagnosis (no scan or missed)
and there is then a postnatal diagnosis (respiratory distress etc),
what does your unit do then?
6. Do you know of any babies who have had surgery that you have been
involved with - age, presentation, surgery, outcome?

I am trying to get a picture of what is done throughout the country
and suspect it is very varied.

I would appreciate any replies ASAP - I have been 'off-line' for a
while as my computer exploded!

In you reply, could you state your unit and if there is a difference
between consultants - 'who does what' would be interesting.

Thanks. I know you have little free time for emails/surveys and
really should be spending time drinking/shopping or eating chocolate
but some prompt feedback would be great.

Cheers,
Vivien McNamara
Southampton.