ostomatessupport : Messages : 3250-3306 of 3655

The Aussie chat of the week takes place on Sunday, 6pm - 9pm Perth
Time which is:

UK - 11am - 2pm
Seattle - 3am - 6am
Houston - 5am - 8am
New York - 6am - 9am

All ostomists welcome, whatever the condition, whatever the age.
Maybe you face a possible ostomy in the future? Or simply want more
information? All are welcome.

Want to chat another time? The rooms are open 24/7 and are becoming
increasingly busy throughout the weekend. Drop by and see if anyone
is there.

=========

To join Ostomyland via java go to:
http://www.ostomysupport.info/chat.html (Jason's page)

Or http://www.autoimmunity.co.uk/chat/ostomyland.html (Kathy's page)

and join us in the ostomyland chat room from there. A free-to-use
Java Client is embedded into the page that is dead easy to use.
Nothing to download.

=========

If you use mIRC, or Besirc or some other IRC Chat Client, here's the
server details you need to connect to Ostomyland:

Server: irc.zirc.org
Port: 6667
Channel: #ostomyland

If you prefer a specially configured version of mIRC is now available
which will take people directly to the new channel on the new server.
Full details and the download link can be found at
http://www.ostomysupport.info/mirc.html
(This is my favourite - mIRC can do so much more!)

WebTV Users, you need to use your own TV based software to join us -
included free as part of the WebTV browser software. Use the server
and port and channel
info when requested by your software to join.

=========

We often have members who have never been in a chatroom before.
Please don't be nervous. These pages will show you exactly what to
expect and what to do. If you're still unsure after you've looked at
them, email me for help.

http://www.autoimmunity.co.uk/chat/chathelp14.html

=========

The channels are open 24/7 for general chit chat or ostomy talk
during the week, and are becoming increasingly busy. If you drop by
and it's quiet, stay a while - someone else may join the room soon.

=========

Look forward to seeing you in the meeting, the weekend or later on
in the week.

Kathy :)

Leave a Get Well message for Jason:
http://www.autoimmunity.co.uk/getwell.html

*NEW* Sunday - Aussie Ostomy IRC Chat

#3301

From: Suzanne Powell <suzmaryp@...>
Date: Thu Apr 14, 2005 3:51 pm
Subject: Re: [Ostomates Support] Rash

suzmaryp

Offline

Hi Sue,I was told not to use soap,due to the wafer wouldn't stick to the skin?
Sue

sc_3379 <sc_3379@...> wrote:Hi Sue,
    This is sue too. Yes it will help and to wash with antibacterial soap when
you wash the area. I was told its like a yeast infection.....Dont know if they
were right when they told me that....It was like 15 yrs ago and alot has
changed. I washing up with mild anti bacterial soap and it  helps me.

Sue <suzmaryp@...> wrote:

Hi my name is Sue, I was wondering if any one has any input on itchy
rashes under the wafer?What do you use to get rid of it? My stoma nurse
just said to use a paste,will that help.Thanks. Sue[colostomy-urostomy]





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Reply | Forward | Messages in this Topic (3)

#3300

From: sc_3379 <sc_3379@...>
Date: Thu Apr 14, 2005 3:44 pm
Subject: Re: [Ostomates Support] Rash

sc_3379

Online Now

Hi Joyce,
   You know I used to believe I was the only one in the world. I am soooo glad I
am not. It is hard for me at times to deal with people whom have never heard of
it before. Let me go back one step.....I am single at 50 and would like to find
someone someday that will ok with it. Dating is ok .....but then you get to the
point to move on a little. I just never know how to tell someone you "Your
rectum is on your side"  If you say ostomy they look at you like you have 2
heads.....Oh well I hope there is someone out there someday. Until then I live
life to the fullest. ITS too too short not to.
take care and hope to talk soon
Susan

Joyce Lehmbeck <joycel40@...> wrote:

My name is Joyce. I had acute uc.Had my ileostomy surgery in 1983. I
was 18 then. I am now 40. Hated Prednisone. Made me balloon up so bad.
I have only had one other major problem during the 22 years. I had to
also have 4 ft of my small intestine removed. Somehow it had become
perforated. No problems since. Have had a total of 6 surgeries. Great
pain meds though. No complaints on that. I am married. We have been
together for 16 years, married for 10. I have a step-daughter who is
19 and 2 dogs who are my babies. Spoiled rotten. They are Harley(10
yrs old) and Molly (3 yrs old). Just got my computer 4 months ago.
Have never chatted or met anyone with similar surgeries until this
time. I now chat with a few different people like myself. It is so
nice to know you are all out there.





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#3294

From: "Joyce Lehmbeck" <joycel40@...>
Date: Mon Apr 11, 2005 10:03 am
Subject: Hello, i'm new here

joycel40

Offline

My name is Joyce. I had acute uc.Had my ileostomy surgery in 1983. I
was 18 then. I am now 40. Hated Prednisone. Made me balloon up so bad.
I have only had one other major problem during the 22 years. I had to
also have 4 ft of my small intestine removed. Somehow it had become
perforated. No problems since. Have had a total of 6 surgeries. Great
pain meds though. No complaints on that. I am married. We have been
together for 16 years, married for 10. I have a step-daughter who is
19 and 2 dogs who are my babies. Spoiled rotten. They are Harley(10
yrs old) and Molly (3 yrs old). Just got my computer 4 months ago.
Have never chatted or met anyone with similar surgeries until this
time. I now chat with a few different people like myself. It is so
nice to know you are all out there.

#3292

From: "Bud" <blidzy@...>
Date: Tue Apr 5, 2005 3:46 am
Subject: Appliance care

budsound63

Offline

Hi, I am a 42 year old male and have crohnes disease and an ostomy for
16 years. I have invented a device to use the toilets water supply to
clean my ostomy appliances. It is clean, quick and has made appliance
care and emptying my appliance a breeze. Check it out at
http://www.sonodesigns.com/stomaaid.html

let me know what you think. Thanks

Bud.Lidzy@...

#3291

From: Suzanne Powell <suzmaryp@...>
Date: Mon Apr 4, 2005 5:35 pm
Subject: Fwd: Fw: Only one reason...

suzmaryp

Offline

Note: forwarded message attached.


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#3290

From: Suzanne Powell <suzmaryp@...>
Date: Fri Apr 1, 2005 1:16 pm
Subject: Re: [Ostomates Support] Re: introduction

suzmaryp

Offline

I had the colostomy done feb.2002 and the urostomy Nov.2002,I get alot of
pressure and I feel like I'm passing a brick sideways,I've had tears before and
have been sewed up do to the splitting of the intestines,I see the doc. on the
11th,I'm going to see if he will put a pouch on my belly to collect the mucos, I
figure if I'm going to live this way for the rest of my life, then I might as
well try to be more comfortable,I swear my spinkter muscle closes up alot, so
then I can't pass anything. Sue
plainoldbrenda <plainoldbrenda@...> wrote:
Hi Sue,

Welcome to our group !  When did you get your colostomy and urostomy ?
I dont' think that the mucous is abnormal if you've had your surgery
recently...it takes the body awhile to catch up to your new
plumbing :).  Have you asked the doc about it ?

--- In ostomatessupport@yahoogroups.com, "suzmaryp" <suzmaryp@y...>
wrote:
>
> Hi I'm a 42 year old ,who had cancer and Inow have a colostomy annd a
> urostomy.I will have both bags for the rest of my life,I also have an
> awful lot of mucos and water coming out my rearend,usualy 6 times a
> day,I know that is not normal. Sue

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#3289

From: "plainoldbrenda" <plainoldbrenda@...>
Date: Fri Apr 1, 2005 12:30 pm
Subject: Re: introduction

plainoldbrenda

Offline

Hi Sue,

Welcome to our group !  When did you get your colostomy and urostomy ?
I dont' think that the mucous is abnormal if you've had your surgery
recently...it takes the body awhile to catch up to your new
plumbing :).  Have you asked the doc about it ?

--- In ostomatessupport@yahoogroups.com, "suzmaryp" <suzmaryp@y...>
wrote:
>
> Hi I'm a 42 year old ,who had cancer and Inow have a colostomy annd a
> urostomy.I will have both bags for the rest of my life,I also have an
> awful lot of mucos and water coming out my rearend,usualy 6 times a
> day,I know that is not normal. Sue

#3288

From: "suzmaryp" <suzmaryp@...>
Date: Thu Mar 31, 2005 3:35 pm
Subject: introduction

suzmaryp

Offline

Hi I'm a 42 year old ,who had cancer and Inow have a colostomy annd a
urostomy.I will have both bags for the rest of my life,I also have an
awful lot of mucos and water coming out my rearend,usualy 6 times a
day,I know that is not normal. Sue

#3287

From: "sneha_kathy" <padma.web@...>
Date: Thu Mar 3, 2005 10:49 am
Subject: check this awesome Health Directory

sneha_kathy

Offline

Hello,

I have always had problems using search engines to find what I wanted,
as it always poped up results that I was in no way looking for. I just
happen to go through a very simple page, which relavent links on
health and felt that it could be useful to you too. You may go to
http://www.yahoouk.org/myhealth for the health catalog with the
following sub areas Dentistry, Diseases, Healthcare Administration,
Healthcare Facilities, Home Health, Medical Devices & Nutritional
Supplements.

Kathy

#3286

From: "Wayne R. Adkins" <greenlantern108@...>
Date: Sat Feb 26, 2005 11:58 am
Subject: Rectal Discharge

greenlantern108

Offline

I'm seeking the advice/insight of any ostomates who still have the
rectal portion of their digestive tracts. I had an emergency ostomy
5+ years ago when my large intestine burst due to crohn's disease. I
had the majority of my tranverse & descending colon removed, but i
still have the sigmoid colon & rectum (though non-functoinal). In the
past 5 years, I have had occasional discharge from from my rectum,
but more recently it has become an almost daily experience. Anyone
out there with similar experience? If so, please write me at
greenlantern108@.... Wayne

#3281

From: "Kathy" <Kathy_ya@...>
Date: Fri Jan 28, 2005 9:51 pm
Subject: Meet the Ostomyland Ops

kathy_from_e...

Offline

The Ostomyland Ops are here to help you and make your chat a pleasant
experience.

If you have any problems, you can ask us and we will try our best to
help.

This page will give you a brief outline to who does what, how to
contact us if you have questions and a little information about us.

http://www.autoimmunity.co.uk/ops.html

Kathy

#3279

From: "Kathy" <Kathy_ya@...>
Date: Fri Jan 28, 2005 2:24 pm
Subject: One and a Half MILLION hits!!

kathy_from_e...

Offline

Well almost!

The "Living with a Colostomy" Site reached One Million hits on
February 13th, 2004. It is now close to One and a Half million, which
means that the site will have half a million hits in just under a
year.

But when will that number be reached?

Follow this link and vote for your choice of day/date (GMT times).
You can tell us your prediction here.

No prizes I'm afraid - just the satisfaction of being right!

http://www.autoimmunity.co.uk/vote.html

Kathy

#3278

From: "Mikey" <mikey@...>
Date: Fri Jan 21, 2005 12:20 am
Subject: Re: [Ostomates Support] Thank You For Your Email

sthelens56

Offline

There is a product for deordorizing the pouch Not the m 9
but the other can anyone pass that info onto me
Thanks
Mike
mikey@...
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#3273

From: "Kathy" <Kathy_ya@...>
Date: Sat Jan 15, 2005 6:13 pm
Subject: Saturday Ostomy IRC Chat - and a Message About Jason

kathy_from_e...

Offline

Jason, who runs the 24/7 Ostomy Support room is unwell and having to
have complete rest - including virtually no computer access.

We've set up a board, where you can leave him a message:
http://www.autoimmunity.co.uk/getwell.html
You can Email or PM Kathy in chat with your message and it will go on
the board.
Address is Kathy-getwell@...

Chat details are as follows:
====================

8pm UK Time which is 3pm EST ish.

All ostomists welcome, whatever the condition, whatever the age.
Maybe you face a possible ostomy in the future? Or simply want more
information? All are welcome.

Go to http://www.autoimmunity.co.uk/chat/ostomyland.html (Kathy's
page)

or http://www.ostomysupport.info/chat.html (Jason's page)

and join us in the ostomy chat room from there. A free-to-use Java
Client is embedded into the page that is dead easy to use. Nothing to
download.

Want to chat another time? The room is open 24/7 and is becoming
increasingly busy throughout the weekend. Drop by and see if anyone
is there.

=========

If you use mIRC, or Besirc or some other IRC Chat Client, here's the
server details you need to connect:

Server: irc.zirc.org
Port: 6667
Channel: #ostomyland

If you prefer a specially configured version of mIRC is now available
which will take people directly to the new channel on the new server.
Full details and the download link can be found at
http://www.ostomysupport.info/mirc.html
(This is my favourite - mIRC can do so much more!)

WebTV Users, you need to use your own TV based software to join us -
included free as part of the WebTV browser software. Use the server
and port and channel
info when requested by your software to join

=========

We often have members who have never been in a chatroom before.
Please don't be nervous. These pages will show you exactly what to
expect and what to do. If you're still unsure after you've looked at
them, email me for help.

http://www.ostomysupport.info/cgi-bin/yabb/YaBB.pl?
board=techsupport;action=display;num=1098295095

=========

The channel is open 24/7 for general chit chat or ostomy talk during
the week, and is becoming increasingly busy. If you drop by and it's
quiet, stay a while - someone else may join the room soon.

=========

Autoimmunity - the Hidden Link now has its own chatroom.
It can be accessed via java or mIRC (Jason has kindly configured a
version).
Full details can be found here:
http://www.autoimmunity.co.uk/chat/rooms.html

=========

Look forward to seeing you in the meeting Saturday night, the weekend
or later on
in the week.

Kathy :)

IBD and Ostomy Support Boards
(websites, message boards, etc.)
http://www.autoimmunity.co.uk/supportboards.html

#3272

From: "Shaz" <shaz@...>
Date: Sat Jan 15, 2005 8:40 am
Subject: Thank You For Your Email

shaz032

Offline

Thank you for taking the time to email me. Please understand that it may take me
a few days to get back to you.

If you have an urgent ostomy question, please consider joining us at the Ostomy
Message Board at http://pub26.ezboard.com/bostomymessageboard  You will get
answers to your questions there within 24 hours from experienced ostomates.

Take care.

Shaz

http://www.ostomates.org

#3271

From: "Kathy" <Kathy_ya@...>
Date: Fri Jan 14, 2005 4:01 pm
Subject: Support Rooms Available on IRC

kathy_from_e...

Offline

There are now four support chatrooms available on IRC. All are open
24/7 and everyone - including relatives and friends - is welcome.

If you use mIRC or similar, it is easy to join more than one room at
the same time.
If you use java it is still possible, although you will have to
modify your name slightly for each room.
(e.g. Kathy; Kathy1; Kathy2 etc).

========================================

These are the rooms.

The Ostomy Support Chatroom
This room is open for ostomy and off-topic chat and is the most
popular ostomy support room on the net!
All are welcome, ostomates, friends and family.
Main meet of the week Saturday 8pm UK time.

The Autoimmune Support Chatroom
This is the chatroom belonging to the Autoimmunity website and is
steadily growing in numbers as more people are finding it and
returning. UC and Crohn's are Autoimmune Disorders.
Drop in and see us!

Kaffs Kaff Chatroom
Want to chat to your friends over a virtual cuppa? Here's the place
to meet.
This room is open to all people with an autoimmune disorder and/or a
stoma, or their relatives and friends.

The Nest Chatroom
Open 24/7 for friendly chat. Meet old friends and make new ones here.

========================================

How to get to the rooms.

mIRC users can download a specially configured version of mIRC here:
http://www.autoimmunity.co.uk/chat/autoimmunitychat.html
(Thank you Jason!)

Or, simply type the following to join each room:

/j #ostomyland
/j #autoimmunity
/j #kaffs_kaff
/j #the-nest

========================================

Java users can join each room by following the links:

Ostomy Chat:
www.autoimmunity.co.uk/chat/ostomychat.html

Autoimmunity Chat:
www.autoimmunity.co.uk/chat/autoimmunity.html

Kaffs Kaff:
http://www.autoimmunity.co.uk/chat/kaffs_kaff.html

The Nest:
http://www.autoimmunity.co.uk/chat/the-nest.html

========================================

Chatroom Help
We often have members who have never been in a chatroom before.
Please don't be nervous. These pages will show you exactly what to
expect and what to do. If you're still unsure after you've looked at
them, email me for help.
http://www.autoimmunity.co.uk/chat/chathelp1.html

========================================

I look forward to meeting you! :)
Kathy

#3265

From: "Kathy" <Kathy_ya@...>
Date: Fri Dec 31, 2004 4:52 pm
Subject: My Happy New Year card to you All

kathy_from_e...

Offline

Here's a card, from me to you!

http://www.autoimmunity.co.uk/cardny.html

Wishing a Healthy 2005 for us all!

Kathy

#3264

From: "elle1012" <elle1012@...>
Date: Fri Dec 31, 2004 10:21 am
Subject: Re: Sad News

elle1012

Offline

--- I am so sorry to hear about Sharon. My thoughts and prayers are
with her family.

Dawn

#3263

From: "jworld5" <jworld5@...>
Date: Wed Dec 29, 2004 1:28 pm
Subject: Sad News

jworld5

Offline

Recently heard that Sharon Flood passed away on Dec18. We will miss
this great lady --She was a good friend and a help to all in the
group.   Please take a moment to remember her and her family.

Sincerely,
Joan

#3262

From: "jworld5" <jworld5@...>
Date: Tue Dec 28, 2004 10:13 pm
Subject: Re: where is everyone

jworld5

Offline

--- In ostomatessupport@yahoogroups.com, "Jessi" <Jess918405@a...>
wrote:
>
> Brenda, Joan....anyone...????

Hi Jessi---Sorry we have not been here in awhile.  I just got home
from spending time at my daughter's home in Canada.
Also- the Tues before Thanksgiving I had gall bladder surgery.  Do
not go back to work for another week. Not the best way to get out of
working the Christmas "rush"       :)
Hopefully -  soon we can get back to our chats!
Hope all is well with you ane the family!
Take Care,
Joan

#3260

From: "Jessi" <Jess918405@...>
Date: Thu Dec 23, 2004 3:04 am
Subject: where is everyone

jess918405

Offline

Brenda, Joan....anyone...????

#3259

From: "Kathy" <kathy_from_england@...>
Date: Sat Dec 18, 2004 7:05 pm
Subject: Saturday/Weekend Ostomy IRC Chat

kathy_from_e...

Offline

8pm UK Time which is 3pm EST ish.

All ostomists welcome, whatever the condition, whatever the age.
Maybe you face a possible ostomy in the future? Or simply want more
information? All are welcome.

Go to http://www.autoimmunity.co.uk/chat/ostomyland.html (Kathy's
page)

or http://www.ostomysupport.info/chat.html (Jason's page)

and join us in the ostomy chat room from there. A free-to-use Java
Client is embedded into the page that is dead easy to use. Nothing to
download.

Want to chat another time? The room is open 24/7 and is becoming
increasingly busy throughout the weekend. Drop by and see if anyone
is there.

=========

If you use mIRC, or Besirc or some other IRC Chat Client, here's the
server details you need to connect:

Server: irc.zirc.org
Port: 6667
Channel: #ostomyland

If you prefer a specially configured version of mIRC is now available
which will take people directly to the new channel on the new server.
Full details and the download link can be found at
http://www.ostomysupport.info/mirc.html
(This is my favourite - mIRC can do so much more!)

WebTV Users, you need to use your own TV based software to join us -
included free as part of the WebTV browser software. Use the server
and port and channel
info when requested by your software to join

=========

We often have members who have never been in a chatroom before.
Please don't be nervous. These pages will show you exactly what to
expect and what to do. If you're still unsure after you've looked at
them, email me for help.

http://www.ostomysupport.info/cgi-bin/yabb/YaBB.pl?
board=techsupport;action=display;num=1098295095

=========

The channel is open 24/7 for general chit chat or ostomy talk during
the week, and is becoming increasingly busy. If you drop by and it's
quiet, stay a while - someone else may join the room soon.

=========

Autoimmunity - the Hidden Link now has its own chatroom.
It can be accessed via java or mIRC (Jason has kindly configured a
version).
Full details can be found here:
http://www.autoimmunity.co.uk/chat/rooms.html

=========

Look forward to seeing you in the meeting Saturday night, the weekend
or later on
in the week.

Kathy :)

IBD and Ostomy Support Boards
(websites, message boards, etc.)
http://www.autoimmunity.co.uk/supportboards.html

Reply | Forward | Messages in this Topic (4)

#3258

From: "Kathy" <kathy_from_england@...>
Date: Thu Dec 16, 2004 4:00 pm
Subject: The Chatroom Christmas Twig

kathy_from_e...

Offline

We have had a Christmas Twig in the Ostomy Chatroom for several years
now.

Sadly, one didn't survive.....it was <ahem> "watered" and then burned
in the great chatroom fire.

Last year Ali came to our rescue and decorated a new Twig. It was
magnificent, and those of us with mIRC were able to add the picture
to the program to help with the festive cheer.

But will the Twig be here for Christmas 2004?
Its future isn't certain......

Click here to find out:
http://www.autoimmunity.co.uk/ribbon/index.html

Kathy :)

#3252

From: Bill & Bobbie Molony <bbmolony@...>
Date: Sat Oct 23, 2004 2:51 pm
Subject: Leftovers

bbmolony

Offline

Hi All,

My name is Bobbie and I am 62 living in Illinois.

I had a temporary colostomy for 9 months, while healing from
diverticulitis.

All is well now, and the colostomy was reversed/closed 3 weeks ago.

I have leftover supplies which I am willing to share with whoever might
need them.

I have 4 Convatec convex seals with a 2 1/4" flange (57 mm.)  - I also
have many drainable pouches - also with 2 1/4" flange.  I also have
non-drainable pouches that are opaque - 2 1/4" flange.

Additionally, I have a full bottle of Stomahesive powder, about 1/2 box
of No-Sting skin-prep, a Convatec belt, a full tube of Stomahesive Paste,
and an almost full bottle of blue Banish for odor.

Please contact me directly if you are interested in any of these
supplies.

Bobbie Molony
bbmolony@...

#3250

From: "Kathy" <kathy_from_england@...>
Date: Tue Oct 19, 2004 4:58 pm
Subject: Condolences for Lozzy

kathy_from_e...

Offline

Lozzy's husband committed suicide on Friday night.

Lozzy is a well known member of both Jason's and Shaz's board, and a
chat regular as well.
She has a heart of gold and would help anyone.

I've set up a board so that people can leave messages of condolences
and words of encouragement for both Lozzy and for David's family as
they go through this terrible time.

I shall give Lozzy ownership of the board, which can remain there as
long as she wishes it to.

The link is here:
(There's no need to join in order to leave a message)
http://davidharrison.proboards28.com/index.cgi

Kathy