We have had a Christmas Twig in the Ostomy Chatroom for several years
now.

Sadly, one didn't survive.....it was <ahem> "watered" and then burned
in the great chatroom fire.

Last year Ali came to our rescue and decorated a new Twig. It was
magnificent, and those of us with mIRC were able to add the picture
to the program to help with the festive cheer.

But will the Twig be here for Christmas 2004?
Its future isn't certain......

Click here to find out:
http://www.autoimmunity.co.uk/ribbon/index.html

Kathy :)

Hi All,

My name is Bobbie and I am 62 living in Illinois.

I had a temporary colostomy for 9 months, while healing from
diverticulitis.

All is well now, and the colostomy was reversed/closed 3 weeks ago.

I have leftover supplies which I am willing to share with whoever might
need them.

I have 4 Convatec convex seals with a 2 1/4" flange (57 mm.)  - I also
have many drainable pouches - also with 2 1/4" flange.  I also have
non-drainable pouches that are opaque - 2 1/4" flange.

Additionally, I have a full bottle of Stomahesive powder, about 1/2 box
of No-Sting skin-prep, a Convatec belt, a full tube of Stomahesive Paste,
and an almost full bottle of blue Banish for odor.

Please contact me directly if you are interested in any of these
supplies.

Bobbie Molony
bbmolony@...

Lozzy's husband committed suicide on Friday night.

Lozzy is a well known member of both Jason's and Shaz's board, and a
chat regular as well.
She has a heart of gold and would help anyone.

I've set up a board so that people can leave messages of condolences
and words of encouragement for both Lozzy and for David's family as
they go through this terrible time.

I shall give Lozzy ownership of the board, which can remain there as
long as she wishes it to.

The link is here:
(There's no need to join in order to leave a message)
http://davidharrison.proboards28.com/index.cgi

Kathy

---Sorry that this got by us! The message and the author have been
taken care of! Thanks for the help and caring!
Joan


  In ostomatessupport@yahoogroups.com, victhenet <no_reply@y...> wrote:
>
> The poster made it look like he was the moderator; and, if we
> complained about his post, he would unsubscribe us.
> I could also help with moderation.
> I have several groups including a Yahoo Remicade group; so,
> I would not mind moderating this group too.
> Vic
>
> --- In ostomatessupport@yahoogroups.com, Peter Folk
> <peter.folk@g...> wrote:
> > It appears that nr597211 is using this list to deliver spam.
> Something
> > for the moderators to address.
> >
> > (If the moderators need help, I could help . . . )
> >
> > Peter Folk
> > Webmaster and Bulletin Editor
> > Saskatoon Ostomy Association
> > http://saskatoonostomy.tk
> >
> >
> I just joined this group; I didn't know that it was
> > > a "bad credit" group?  I thought it was an Ostomy Support
group??
> > > Thanks for clarifying.
> > > Vic

Hi Bobbie
You used the words "bother with this"
It certainly is no bother for anyone here ..
Alot of questions have been answered here and good information givenn out.
I can say no one is a bother here.
Mike

[Non-text portions of this message have been removed]

Hi,

I am 62 years old, female, and I have had a colosotmy for 9 months,
and I just heard of you a couple of weeks ago.

I just had a colostomy closure done on Oct. 1, so you are probably
wondering by now why I am bothering with this.

I just wanted to touch base with others who have had this
experience.  I have learned alot about myself and my husband through
this experience, most of it good.

I had diverticulitis that went very bad, ruptured colon, heart
failure and kidney failure, and permanent inner ear damage from the
Gentamycin.  Through it all I have to say I've kept a pretty positive
outlook.  I also feel that I am very lucky to be alive.

Additionally, I have some leftover supplies, and what is the usual
way of getting rid of them?  Short of throwing them away, and they
are too expensive to do that!

I look forward to hearing from others.

Thanks,
Bobbie

dear cindy, thank u so very much for the warm welcome. Sonja.

Ponieboy96@... wrote:
Hi Sonja

I'm in Virginia (Fairfax)- not too far away. Welcome to the group.

Cindy B.




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---------------------------------
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Sonja.


---------------------------------
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[Non-text portions of this message have been removed]

Hi Sonja

I'm in Virginia (Fairfax)- not too far away. Welcome to the group.

Cindy B.

Shaz has recently opened an "Obay" section on her board for the
exchange of surplus ostomy supplies.

The rules are simple - no money is to be involved, except a modest
amount to cover postage.

You can post requests for supplies, or donate extras there.
Any commercial postings will be deleted.

http://www.ostomates.org/cgi-bin/yabb/YaBB.pl/YaBB.pl?board=obay

Kathy
http://www.autoimmunity.co.uk

hi, my name is Sonja. im 50yrs young. i live in maryland. i am a
ostomte. please drop me a line anytime and lets get to know each
other.

http://www.autoimmunity.co.uk/chat.html

8pm UK Time which is 3pm EST ish.

All ostomists welcome, whatever the condition, whatever the age.
Maybe you face a possible ostomy in the future? Or simply want more
information? All are welcome.

Go to http://www.ostomysupport.info/chat.html and join us in the chat
room from there. A free-to-use Java Client is embedded into the page
that is dead easy to use. Nothing to download.

A clock showing the current UK time is also on the chat page. Look at
it to see the current UK then you can work out what 8pm UK is in your
part of the world.

Want to chat another time? The room is open 24/7 and is becoming
increasingly busy throughout the weekend. Drop by and see if anyone
is there.

=========

If you use mIRC, or Besirc or some other IRC Chat Client, here's the
server details you need to connect:

Server: irc.zirc.org
Port: 6667
Channel: #ostomyland

If you prefer a specially configured version of mIRC is now available
which will take people directly to the new channel on the new server.
Full details and the download link can be found at
http://www.ostomysupport.info/mirc.html
(This is my favourite - mIRC can do so much more!)

WebTV Users, you need to use your own TV based software to join us -
included free as part of the WebTV browser software. Use the server
and port and channel
info when requested by your software to join

=========

Problems using java? Try the step by step guide which can be found on
the following webpage:
http://www.ostomysupport.info/cgi-bin/yabb/YaBB.pl?
board=techsupport;action=display;num=1088853233;start=0#0

=========

The channel is open 24/7 for general chit chat or ostomy talk during
the week, and is becoming increasingly busy. If you drop by and it's
quiet, stay a while - someone else may join the room soon.

=========

Look forward to seeing you in the meeting Saturday night, the weekend
or later on
in the week.

Kathy :)

IBD and Ostomy Support Boards
(websites, message boards, etc.)
http://www.autoimmunity.co.uk/supportboards.html

Hi Chantelle,
The easiest way to get into the chat is to go to this page:
http://www.ostomysupport.info/chat.html

You simply click on the link on that page, there's nothing to download.

There's a step-by-step guide to using that page here:
http://www.ostomysupport.info/cgi-bin/yabb/YaBB.pl?board=techsupport;action=disp\
lay;num=1088853233;start=0#0

If you have any problems, email me and I'll try and help.

Kathy :)

IBD and Ostomy Support Boards
(websites, message boards, etc.)
http://www.acgm.fsnet.co.uk/supportboards.html


cool_chantelle <no_reply@yahoogroups.com> wrote:
How do I get into the mIRC chats???





---------------------------------
  ALL-NEW Yahoo! Messenger - all new features - even more fun!

[Non-text portions of this message have been removed]

How do I get into the mIRC chats???

hi alice, you did good in calling your doctor, i hope
everything goes fine, and please let me know what
happens if you dont mind... i had ulcerative colitis
for only 3 months it was very severe and medication
didnt help, so they removed all the colon,rectum and
anus and gave me an ileostomy and it was supposed to
be reversed  after a few months, but i had an internal
bledding and then infection etc, so they couldnt
reverse the ileostomy,because  on the 2 of june of
this yer they gave me a permanent ileostomy...
so its been like a year now since my first surgery
when they took the rectum out...so when they did the
secong surgery in june, they had to take out the
j-pouch that they built inside because of  infection
and had to clean the infection that was killing me...
so i asked my doctor why i was feeling that pressure
from behind and he said that its normal, we have to
wait for things to heal properly... i feel that
pressure but not always, and doesnt bother me as much
as it bothers you... so i hope everything goes fine
with you, and take care
best wishes
sorry if my english is not that good, i'm from
venezuela, living in canada and i'm 22 years old, its
so hard for me to manage with my situation, but what
can i do? i get so depressed and sometimes feel like
crying,want to be alone, and not seeing anyone... i'm
sorry alice for writing this much, but you must know
that feeling...
good luck
Paty








--- alicemarie48 <no_reply@yahoogroups.com> wrote:

> Hi Paty,
>
> Thanks for writing, the thing is,is that I had mine
> removed over 4
> years ago. Yesterday it bothered me all day, as if I
> was sitting on a
> lump or something and also like I still had my
> rectum but had a rash,
> that is the only way I know how to explain it and I
> just can't figure
> it out. I finally emailed my family doctor and she
> said it may be
> scar tissue build up. She suggested that we do a CT
> scan. How long
> has it been since you had yours out? Hope your
> coming along okay.
>
> Alice Marie
>
>


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

Thanks for the information, As I said in the other emails, my doctor
does want to check it out with a CT scan. I'm not sure if that would
show? Do you know? I've had it for a long long time but only lately
it has changed and is really bothering me! I guess I'll find out one
way or another, it'll either go away or maybe the CT scan will show!

Thanks to all of you for writing!

Alice Marie

Hi thanks for your input, i didn't see it until today, usually I will
get an email when someone posts but I didn't on this. The only one I
got was from Paty. Like I told Paty, my doctor thinks it could be
scar tissue, i know there is nothing they can do for that, I've had
lots of experience with scar tissue. Thanks again for writing.

Alice Marie

Hi Paty,

Thanks for writing, the thing is,is that I had mine removed over 4
years ago. Yesterday it bothered me all day, as if I was sitting on a
lump or something and also like I still had my rectum but had a rash,
that is the only way I know how to explain it and I just can't figure
it out. I finally emailed my family doctor and she said it may be
scar tissue build up. She suggested that we do a CT scan. How long
has it been since you had yours out? Hope your coming along okay.

Alice Marie

hello Alice, don't be embarresed in asking that
question, well i also had my rectum remove, and i feel
the same thing and even sometimes a bit of mucuos
comes out from there, i asked my doctor and nurses
about that and they said that it needs up to a year
the whole thing to heal so i think you shouldnt worry,
i know that is an awful feeling is like you have to
rush to the bathroom sometimes, but what can we do? we
have to give it sometime to heal, i hope that's the
reason why we are feeling that pressure...take care
Best wishes
Paty






--- alicemarie48 <no_reply@yahoogroups.com> wrote:

> This is really an embarrassing question for me, I
> can't figure it
> out, I was wondering if any of you out there have
> had your rectum
> removed and have had any problems??????? I know this
> sounds really
> weird but lately I feel this awful pressure, it goes
> away after a
> while but keeps coming back and I can't figure it
> out since i have
> nothing down there! Has anyone ever experienced
> this?
>
> Alice Marie
>
>




_______________________________
Do you Yahoo!?
Shop for Back-to-School deals on Yahoo! Shopping.
http://shopping.yahoo.com/backtoschool

Alice Marie
I know of what you speak..
From time to time I have the urge to "pass gas"
With no rectum it is not possible.
  I have thought this is like losing a limb a leg specially and have "phantom
pains "
Since I have had my ilestomy in 1995 all sorts of weird thing happen,nothing
serious just odd.
Mike
Gold Beach

[Non-text portions of this message have been removed]

--- In ostomatessupport@yahoogroups.com, alicemarie48 <no_reply@y...>
wrote:
> This is really an embarrassing question for me, I can't figure it
> out, I was wondering if any of you out there have had your rectum
> removed and have had any problems??????? I know this sounds really
> weird but lately I feel this awful pressure, it goes away after a
> while but keeps coming back and I can't figure it out since i have
> nothing down there! Has anyone ever experienced this?
>
> Alice Marie


Hiya
dont often post but felt I had to get in touch.

I had my rectum removed 12 yrs ago, but still get 'urges', as though
I want to pass something. These are quite strong and can be painful,
but they do go away again. I have seen these phantom urges discussed
on other groups, so think they are quite a usual phenomenon.
Apparently, its to do with nerve endings still passing impulses  -or
I think thats what I read!!!

The only other explanation could be peri-anal abscesses. If you have
Crohns, they can still occur even after removal of the rectum. Dont
understand it myself, but I've had 5 post-op and my surgeon told me I
am still prone to them because of the Crohns. If the pressure becomes
more painful and throbbing, I suggest you have it checked out.

Hope that helps,
Karen
~~~XXX~~~

This is really an embarrassing question for me, I can't figure it
out, I was wondering if any of you out there have had your rectum
removed and have had any problems??????? I know this sounds really
weird but lately I feel this awful pressure, it goes away after a
while but keeps coming back and I can't figure it out since i have
nothing down there! Has anyone ever experienced this?

Alice Marie

just an update on my life... lets see.... where should i start. i
am  2 weeks in to college classes and almost 3 weeks in the the new
job...   yes i managed to get on at a day care.  it should be
interesteing.. i am hopefully will be getting a computer  soon.. i am
just using on right now.... but even then i won't be in chat
causse    it is in the middle of my  class so you  won't see me.. but
i will be online.

    lots of love...



WHitney

http://www.acgm.fsnet.co.uk/chat.html

8pm UK Time which is 3pm EST ish.

All ostomists welcome, whatever the condition, whatever the age.
Maybe you face a possible ostomy in the future? Or simply want more
information? All are welcome.

Go to http://www.ostomysupport.info/chat.html and can join us in the
chat room from there. A free-to-use Java Client is embedded into the
page that is dead easy to use. Nothing to download.

A clock showing the current UK time is also on the chat page. Look at
it to see the current UK then you can work out what 8pm UK is in your
part of the world.

Want to chat another time? The room is open 24/7 and is becoming
increasingly busy throughout the weekend. Drop by and see if anyone
is there.

=========

If you use mIRC, or Besirc or some other IRC Chat Client, here's the
server details you need to connect:

Server: irc.zirc.org
Port: 6667
Channel: #ostomyland

If you prefer a specially configured version of mIRC is now available
which will take people directly to the new channel on the new server.
Full details and the download link can be found at
http://www.ostomysupport.info/mirc.html
(This is my favourite - mIRC can do so much more!)

WebTV Users, you need to use your own TV based software to join us -
included free as part of the WebTV browser software. Use the server
and port and channel
info when requested by your software to join

=========

Problems using java? Try the step by step guide which can be found on
the following webpage:
http://www.ostomysupport.info/cgi-bin/yabb/YaBB.pl?
board=techsupport;action=display;num=1088853233;start=0#0

=========

The channel is open 24/7 for general chit chat or ostomy talk during
the week, and is becoming increasingly busy. If you drop by and it's
quiet, stay a while - someone else may join the room soon.

=========

Look forward to seeing you in the meeting Saturday night, the weekend
or later on
in the week.

Kathy :)
Gary's Story:
http://www.acgm.fsnet.co.uk/ourstory.html

Yup, been windowframing for years...doesn't help except for
preventing the waver from coming up on the outside edge. I picked up
some Stomahesive paste yesterday and I'm going to try that tonight.
Based on everything else I've tried, though I figure I might get one
extra day out of it...three instead of two...yeeha. I read about
people going 5-10 days with a wafer all the time. I doubt I could do
that even if I remained perfectly still for the whole time.

Thanks,
Michael

--- In ostomatessupport@yahoogroups.com, fitzshannonmarie
<no_reply@y...> wrote:
> Michael,
>
> I have the same problem...have you ever tried framing your wafer,
by
> this i just mean taping around the wafer it helps me alot when I
> have problems and i go easily 8-10 days...Usually change mine do
to
> feeling like it needs it....It holds up normally really well..
>
> Hope This helps you...Also, I use a two piece system with paper
tape
> already around the wafer...seems to last alot longer too... Ask if
> you have any other questions...Is what were here for..
>
> Sincerly,
> Shannon Fitzpatrick
> Kalamazoo, Mich...
> --- In ostomatessupport@yahoogroups.com, "Michael" <michaeld@s...>
> wrote:
> > Well, I've got the first two covered...I used a blow dryer to
dry
> > the area and I shave the area about every other day.
> > The other two don't apply...I don't use stomahesive and I get my
> > supplies locally.
> > You get 5-7 days? Man, I can't even imagine getting that much
> wear.
> > I've tried Convatec wafers as well and the results are about the
> > same.
> > Mine always start coming up in the same place..the upper left
> area.
> > I've tried using a small piece of Eakin seal in that area and
that
> > will usually get me an extra day but that's not worth the
obscene
> > cost of Eakin seals. (Of course all ostomy products are
obscenely
> > overpriced but that's a rant for another thread;-))
> >
> > Michael
> >
> > --- In ostomatessupport@yahoogroups.com, "Mikey" <mikey@h...>
> wrote:
> > > several things come to mind why flanges wont stay stuck to
guys.
> > >
> > > 1 the area isnt dry...use a hair dryer to dry off the area.
> > > 2.  area needs to be shaved...
> > > 3  too much paste (stomaheseve)
> > > or something I have experienced and that is when U P S
> > > brings my supplies from choice medical in Portland Or
> > > the box is left on the engine cover inside the van.
> > > This softens the wax around the flange and you dodnt get the
> life
> > (me 5-7 days ) you usually do.
> > > Mike
> > > Gold Beach Oregon
> > >
> > > [Non-text portions of this message have been removed]

Some emails that I sent Sharon this past week have been coming back,
saying she's over her quota.  Has anyone heard from here recently?
Considering her circumstances I'm starting to get a bit worried.
I know she's spending more time with her family these last few
months, but she still had been maintaining contact.
If you hear anything, please let me know.
tom
tkillorat@...

Michael,

I have the same problem...have you ever tried framing your wafer, by
this i just mean taping around the wafer it helps me alot when I
have problems and i go easily 8-10 days...Usually change mine do to
feeling like it needs it....It holds up normally really well..

Hope This helps you...Also, I use a two piece system with paper tape
already around the wafer...seems to last alot longer too... Ask if
you have any other questions...Is what were here for..

Sincerly,
Shannon Fitzpatrick
Kalamazoo, Mich...
--- In ostomatessupport@yahoogroups.com, "Michael" <michaeld@s...>
wrote:
> Well, I've got the first two covered...I used a blow dryer to dry
> the area and I shave the area about every other day.
> The other two don't apply...I don't use stomahesive and I get my
> supplies locally.
> You get 5-7 days? Man, I can't even imagine getting that much
wear.
> I've tried Convatec wafers as well and the results are about the
> same.
> Mine always start coming up in the same place..the upper left
area.
> I've tried using a small piece of Eakin seal in that area and that
> will usually get me an extra day but that's not worth the obscene
> cost of Eakin seals. (Of course all ostomy products are obscenely
> overpriced but that's a rant for another thread;-))
>
> Michael
>
> --- In ostomatessupport@yahoogroups.com, "Mikey" <mikey@h...>
wrote:
> > several things come to mind why flanges wont stay stuck to guys.
> >
> > 1 the area isnt dry...use a hair dryer to dry off the area.
> > 2.  area needs to be shaved...
> > 3  too much paste (stomaheseve)
> > or something I have experienced and that is when U P S
> > brings my supplies from choice medical in Portland Or
> > the box is left on the engine cover inside the van.
> > This softens the wax around the flange and you dodnt get the
life
> (me 5-7 days ) you usually do.
> > Mike
> > Gold Beach Oregon
> >
> > [Non-text portions of this message have been removed]

Try sromaheseve paste and see what happens
what do you have to loose beside the price of the tube?
Mike

[Non-text portions of this message have been removed]

Well, I've got the first two covered...I used a blow dryer to dry
the area and I shave the area about every other day.
The other two don't apply...I don't use stomahesive and I get my
supplies locally.
You get 5-7 days? Man, I can't even imagine getting that much wear.
I've tried Convatec wafers as well and the results are about the
same.
Mine always start coming up in the same place..the upper left area.
I've tried using a small piece of Eakin seal in that area and that
will usually get me an extra day but that's not worth the obscene
cost of Eakin seals. (Of course all ostomy products are obscenely
overpriced but that's a rant for another thread;-))

Michael

--- In ostomatessupport@yahoogroups.com, "Mikey" <mikey@h...> wrote:
> several things come to mind why flanges wont stay stuck to guys.
>
> 1 the area isnt dry...use a hair dryer to dry off the area.
> 2.  area needs to be shaved...
> 3  too much paste (stomaheseve)
> or something I have experienced and that is when U P S
> brings my supplies from choice medical in Portland Or
> the box is left on the engine cover inside the van.
> This softens the wax around the flange and you dodnt get the life
(me 5-7 days ) you usually do.
> Mike
> Gold Beach Oregon
>
> [Non-text portions of this message have been removed]

several things come to mind why flanges wont stay stuck to guys.

1 the area isnt dry...use a hair dryer to dry off the area.
2.  area needs to be shaved...
3  too much paste (stomaheseve)
or something I have experienced and that is when U P S
brings my supplies from choice medical in Portland Or
the box is left on the engine cover inside the van.
This softens the wax around the flange and you dodnt get the life (me 5-7 days )
you usually do.
Mike
Gold Beach Oregon

[Non-text portions of this message have been removed]

Hi folks,
I'm one of those "lurkers" that actually surfaces every now and then.
I was wondering if any of you have had any experience with Hollier's
urostomy appliances..specifically wafer Stock No# 15602. I'm in the
process of having to change what I've been using (Holliser #8768)
since they are discontinuing that line the first of the year.
I received a couple of samples of #15602 and it seems to wear about
as well as the 8768's I've been using, although that's not saying
much since I've never been able to get one to stay adhered more than
two days. Once in a while I'll get lucky and manage to keep one one
three days but that's rare.
I don't particularly like the fabric type covering on the wafer
itself. It doesn't seem to serve any purpose on the wafer and I
can't tell how the wafer is holding up. With my current system I can
see through the skin barrier material well enough to see where it's
starting to come up.
Any comments or experinces would be helpful.

Thanks,
Michael Murray