Hello Susan,
Yes, I know the feeling of when you tell someone. I have hadpeople say "eeewww,
what's that?" Then you feel weird. I hatedhaving to explain myself all of the
time. I am glad my husband neverhad a problem with it. Now I am so comfortable
around him with it.Sometimes I still get a little embarrased when my stoma
decides itgoing to voice its opinion. Usually when I drink a lot of coffee,
Ithas a lot more to say. Talk to you later.
--- sc_3379 wrote: Hi Joyce,
You know I used to believe I was the only one in
the world. I am soooo glad I am not. It is hard for
me at times to deal with people whom have never
heard of it before. Let me go back one step.....I am
single at 50 and would like to find someone someday
that will ok with it. Dating is ok .....but then you
get to the point to move on a little. I just never
know how to tell someone you "Your rectum is on your
side" If you say ostomy they look at you like you
have 2 heads.....Oh well I hope there is someone out
there someday. Until then I live life to the
fullest. ITS too too short not to.
take care and hope to talk soon
Susan

Joyce Lehmbeck wrote:

My name is Joyce. I had acute uc.Had my ileostomy
surgery in 1983. I
was 18 then. I am now 40. Hated Prednisone. Made me
balloon up so bad.
I have only had one other major problem during the
22 years. I had to
also have 4 ft of my small intestine removed.
Somehow it had become
perforated. No problems since. Have had a total of 6
surgeries. Great
pain meds though. No complaints on that. I am
married. We have been
together for 16 years, married for 10. I have a
step-daughter who is
19 and 2 dogs who are my babies. Spoiled rotten.
They are Harley(10
yrs old) and Molly (3 yrs old). Just got my computer
4 months ago.
Have never chatted or met anyone with similar
surgeries until this
time. I now chat with a few different people like
myself. It is so
nice to know you are all out there.





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