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osteonews · Osteonews is a list for families of children or adults who have been diagnosed with osteopetrosis, a rare genetic bone disease.

Group Information

  • Members: 136
  • Category: Osteoporosis
  • Founded: Jun 22, 1999
  • Language: English
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Activity within 7 days:

1 New Member - 5 New Messages - New Questions

Description

Osteonews is a list for families of children or adults who have been diagnosed with osteopetrosis, a rare genetic bone disease. We hope to share our experiences in dealing with osteopetrosis and its effects on our children, including bone marrow transplants, alternative treatments and vision loss, a common secondary diagnosis.

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 2 6 6 18 46 1 1 1 5
2008 2 10 9 4 8 1 8
2007 38 20 23 2 5 2 3 5 2 9 19
2006 29 21 186 118 41 136 1 4 5 7 3 9
2005 25 7 24 8 4 16 6 25 56 12
2004 2 7 5 4 1 4 8 1
2003 36 17 16 28 11 6 1 1 1 4 18 14
2002 8 5 6 7 6 7 11 21
2001 14 33 12 12 7 5 17 5 30 8 3
2000 8 46 30 18 53 28 12 12 20 16 10
1999 14 9 10 39 3 23 7
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