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onebighuntingtonsfamily · One Big Huntingtons Family - Support from those who have been there.
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Sorry if I'm so far behind in reading everyone's messages. I went to the other coast Saturday with my kid sister for my grandniece's 1st birthday...my sister...
1 Jul 11, 2006
6:53 pm

Jean E. Miller
hdcureit
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Kudos' to the Indiana Chapter and it won't hurt all of us to join in on this new Campaign-Oprah HD Awareness! Please, pass this along to all your friends and...
1 Jul 5, 2006
3:10 pm

Jean E. Miller
hdcureit
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Phase III of the Huntington's Disease Memorial Quilt made it's grand entrance and unveiling at the HDSA National Convention in June, 2006! As most people...
1 Jul 2, 2006
7:38 pm

Jean E. Miller
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The link to order the Huntington's Disease Caregiver CD's on the HDSF has been updated to include shipping & handling to Canada! The site has also been changed...
1 Jul 2, 2006
4:42 pm

Jean E. Miller
hdcureit
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With over 540 patients, the combined U.S., Canadian and European trials form one of the largest therapeutic programs ever conducted in HD. Amarin Completes...
1 Jun 30, 2006
10:49 pm

Jean E. Miller
hdcureit
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The ordering information for the HD Caregiver Resource CD has been linked to the HDSF website where you can use Pay Pal to order copies. Here is the direct...
1 Jun 24, 2006
8:35 pm

Jean E. Miller
hdcureit
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I'm sorry I haven't posted anything on the CD since returning from Milwaukee. My kid sister's husband died on June 10th at age 58 and it all happened so fast,...
1 Jun 22, 2006
8:30 pm

Jean E. Miller
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Hello.......my name is Desirae. I am a 28 year old married mommy. Im walking in the Huntingtons Disease Walk for a Cure in Orange County. My dad was diagnosed...
1 Jun 21, 2006
3:08 pm

DESIRAE
hdisunfair
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Hi everyone, I'm new here... Anyone around?...
2 Jun 21, 2006
3:42 am

spyroluv2long
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I've also included the below in the attached Word document for handout and sharing. WE MOVE is a not-for-profit organization that has been educating and...
1 Jun 20, 2006
11:21 am

Jean E. Miller
hdcureit
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This was reported on Hunt-Dis. The article's author errs in calling HD "untreatable" vs its current common description of "incureable". As. Dr. Goodman...
1 Jun 19, 2006
10:53 pm

Jean E. Miller
hdcureit
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Thanks to Marsha and company, here is the link to HDL's excellent review of Dr. Hayden's study: ...
1 Jun 17, 2006
12:16 am

Jean E. Miller
hdcureit
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For those who don't received HDSA announcements. This one includes Dr. Nance's comments on Dr. Hayden's new today. ... From: Barbara T. Boyle To:...
1 Jun 16, 2006
10:30 pm

Jean E. Miller
hdcureit
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HDSA has THE NEWS on their website: http://www.hdsa.org/site/PageServer?pagename=HD_Cure...
1 Jun 16, 2006
2:10 pm

Jean E. Miller
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THE SOURCE IS !!! http://www.cmmt.ubc.ca/news_events/news/index.php?news_id=77 Cure Found for Huntington Disease in Mice Offers Hope for Treatment in Humans ...
1 Jun 16, 2006
9:33 am

tara@...
tara1644
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Below is copied in the attached Word 97 document for sharing. HDSA's Juvenile Huntington's Disease Primer & Guide to Best Practices June 2006 For the past five...
1 Jun 14, 2006
1:07 pm

Jean E. Miller
hdcureit
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Obtain the degree you deserve, based on your present knowledge and life experience. A prosperous future, money earning power, and the Admiration of all. Deg...
1 Jun 12, 2006
5:00 am

maneisha-mccarthy825@...
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ArcadeRockstar – Online Arcade. http://www.positionyourself.info/ytmq is formally inviting you to Play in our Online Game Tournaments. Win in any of our...
1 Jun 8, 2006
9:45 am

maneisha-mccarthy825@...
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Below is a message from HDSA national. I apologize if this is a duplication for you but if you have any of the requested video footage, please contact Fred...
1 Jun 7, 2006
10:08 am

Jean E. Miller
hdcureit
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HD trial informationFor anyone whose nearby HDSA Center of Excellence doesn't already have you participating in either one of these studies, and if you won't...
1 Jun 7, 2006
9:20 am

Jean E. Miller
hdcureit
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Hey my name is Sam and Iam a 40 years old woman. I was diagnosed with HD 4 years ago. My sister also has HD and her three children are at risk. My Mum died...
1 Jun 1, 2006
1:49 pm

seahorsedavis
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Wow this is amazing, this company just preappproved me on 220k! My crediit is nothing to be proud of, so i cant believe they gave it to me.. Anyone...
1 May 12, 2006
7:51 am

josalyne-overfelt940@...
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Hello, Would you like at least $1500.00 to $3500.00 per day just for returning phone calls? I do! If you have a telephone and can return calls you are...
1 May 6, 2006
6:03 am

josalyne-overfelt940@...
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Anyone interested in doin somethin new on the net. Come over here and add me http://www.makeitgreat.info/pdoc...
1 Apr 21, 2006
3:25 pm

josalyne-overfelt940@...
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Hi I'm Kat I received my positive test results in Dec04 and am trying to get on with m life. The past couple of months haven't been easy but I'm finally...
8 Apr 20, 2006
7:15 am

josalyne-overfelt940@...
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2006 Huntington's Hero of the Year Award Nominations Requested! It's that time of the year again, where the Huntington's Disease Convention Scholarship Fund...
1 Mar 29, 2006
6:37 pm

Jean E. Miller
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hi all ,I have started a site http://www.outofstress.com which deals all aspects of stress and recovery.Our objective is to help peoplethose who are suffering...
1 Mar 23, 2006
8:22 pm

disease_curezone
disease_cure...
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I am 24 years old and for some reason i am really worried that huntingtons could be in my family and that i am starting to develop the disease. My mum and dad...
1 Mar 2, 2006
3:32 pm

karlmprice
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This message is about Human beings, Democracy, UNHCR, Refugees, The Iraqis, Islam, Kurds, Human rights, Respect, Money, Donations, Angelina Jolie, Pavarotti,...
2 Feb 10, 2006
5:11 pm

RefluxParen6@...
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Hello all, my name is Beth Magallon maiden name Marino. I am 28 yeas old looking for extended family. My immediate family are located in Brookfield, ILL. My...
1 Feb 2, 2006
3:01 pm

embaldy78
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